Janco's CF journey of Hope - Official

12/06/2026

Janco went for his check up today👊🏻

He did great with his lung function.
His weight is 58lb
His height is 50.59 inches🧡

He got a nice goody bag with a water bottle, cook book, a nice book to read that explains CF and LOTS of snacks!

11/06/2026

I think these medical play tools are incredibly effective in helping kids understand and rise above their fears, leading to lasting positive change.

Janco would have loved to play with these as he always impersonated his CF team.

The Butterfly Pig creates inclusive medical toys that empower kids through play—reducing fear, building confidence, and making healthcare more child-friendly!

26/05/2026

Happy Birthday Maré!

Thank you for everything that you and your team are doing for the cystic fibrosis community🧡

🎉 Happy Birthday, Maré! 🎉
Today we celebrate an extraordinary leader, passionate advocate, and the driving force behind Breathtaking.
Your dedication to creating awareness, fighting for access to treatment, and bringing hope to individuals and families affected by cystic fibrosis continues to inspire us every day. Through your vision, compassion, and determination, countless lives have been touched and changed for the better.
Thank you for leading with heart, for never giving up on the cause, and for reminding us that every breath is precious.
Wishing you a year filled with happiness, good health, unforgettable moments, and all the success you deserve.
Happy Birthday from your Breathtaking family! 🦋💙

26/05/2026

Janco loves the self-checkout. He loves scanning groceries and paying with a card!

He always makes sure he gives a big smile to the camera afterwards 😁.

Before Trikafta I would never have allowed him to touch anything!
We still sanitize his hands after shopping.🌹

25/05/2026

🙏

20/05/2026

4th Grade here we come👊🏻🧡🙏

12/05/2026

Please share this with friends and family to help Ashley go to a life-changing church camp🙏

Luke 6:38 NIV - "Give, and it will be given to you. A good measure, pressed down, shaken together and running over, will be poured into your lap. For with the measure you use, it will be measured to you"

07/05/2026

Thank you for taking such good care of Janco🧡💜

Happy Nurse Appreciation Day to our amazing nurse, Nurse Bryant 💜
We are so grateful for the care, kindness, and support you give our students and staff every day. JKB is lucky to have you!

02/05/2026

06/09/2025

Janco took a wicket at the cricket match today.

He wasn't very happy about going to the game because his best friend couldn't make it. H

However, Janco did very well! His field work and bowling were super awesome.

Well done, little saltycrack!🧡🧡