07/21/2026
🦈💛✨
As always, Noa had an eventful clinic. It was a girly pop only clinic, so of course we had flair ✨✨
We were surprised by one of our favorite nurses being in clinic yesterday! We haven’t seen her in about a year, so when she snuck in during port access, we were both excited!
Our brave girl is incredible. She didn’t flinch or cry at all when they accessed her port this time! It always amazes me how used to this life she is.
After port access, we got to see our friend Gianna from Rally and we talked to another one of our favorite docs about next steps and her numbers.
So, here’s the low down on what her blood counts show:
Her hemoglobin is still dropping. We are now keeping a heavier eye on her watching for signs of her hemoglobin coming down and making sure she doesn’t need a blood transfusion.
Her ANC was still a little high, but not anywhere where it has been the last few times we’ve been in, but they increased her methotrexate dosage (her second chemo on Fridays). So we’re gonna pause any Saturday plans for now until we know how she feels on this increased dose.
They also gave us a referral for GI. (I told you this clinic came with flair✨) Noa’s been experiencing some pretty severe constipation and some acid reflux at night, and while both are pretty common side effects of her chemotherapy and she takes medications for both, they want to make sure it’s just side effects and the chemo isn’t masking another issue altogether.
But then the big call came.
We officially have our ✨PORT REMOVAL SURGERY DATE✨
I haven’t allowed myself to cry yet because I know I’ll be a big blubbery mess when I do, but this is a major milestone for our girl.
After chatting with our doc, we went up and had our antibiotic infusion with a nausea med cocktail on the side and then she slept through rush hour traffic on the way home.
We have 59 days left. 59 daily doses of oral chemo, and 7 more of her second dosage on Fridays.
Our next clinic is her ✨FINAL SPINAL✨
We’ll be back in August to terrorize the sedation nurses one last time.
Until then, See all the sharks, Say all prayers. 🦈💛✨