Noa Strong

06/05/2026

🦈💛✨

Another lumbar puncture is in the books!!!

Noa did incredibly well!! She continues to amaze me every step of this journey.

She received her lumbar puncture, with chemo injected her into her spinal fluid, chemo through her port, Emend, which is a heavy duty nausea medication, and her antibiotic infusion.

Here’s the blood work low down;
Her white blood cell counts are very elevated, but with her coming back from Lighthouse, her wasp sting, her congestion and everything else they aren’t super concerned. They said we will reevaluate in 26 days on the 30th when we come back.
Her ANC is high, but it could just be the white blood cells.

Noa’s IGG rose again on its own! It’s 631! ✨✨

Her hemoglobin rose on its own ✨✨✨ it was 8.7 and now it’s 9.0, which is a great thing! The further away from 7.anything the less likely we’ll need a transfusion.

The biggest thing!

HER LIVER ENZYMES DROPPED DRAMATICALLY!!!!!!!
They went from 361 and 406 to 31 and 26. Which is amazing! They’re going to keep her on the same dosage of chemo we are right now and we’ll see what they do come 6/30.

It was an incredible outcome all around!!

We have also booked her FINAL SPINAL!!!!!!!!!!!!!!

8/11 can’t come fast enough!!!!

Tonight, we have started our steroid pulse. Say a prayer for Noa as she transforms into tiny Hulk Hogan for the next 5 days.

For now, we say God is good and praise him for the doctors he has blessed us with!

See a shark, say a prayer! 🦈💛✨

06/04/2026

Hi friends!

We are so close to Noa finishing chemotherapy!! (106 days, but who is counting?! 🤪🤪)

We have recently been contacted numerous times by incredibly generous people asking what they can do for Noa to celebrate this huge milestone!

And the truth is, she just wants to go see her grandparents in Colombia.

As a lot of you know, Lucas’s parents have not been able to see Noa since she was 7 months old, due to her diagnosis and the risk it would put on her health.

Now that we are so close to the end, her care team has given us the green light to take her on a new adventure, to see her grandparents in Daddy’s home country.

We first attempted to ask for a trip to Colombia for Noa’s Make a Wish, but because of her age and their policies, she is ineligible for international travel with them.

Through prayer and the advisement of our fellow friends on this journey, we have decided to launch a new tshirt fundraiser and a small GoFundMe to help us raise the money to get Noa to Colombia.

Please share with family and friends! Anything at all helps!! We are just so very grateful for all of your love and support and prayers over the last two and a half years.

HERE ARE HER NEW T-SHIRTS FOR RINGING THAT BELL!!
https://www.bonfire.com/noa-strong-fundraiser/?utm_source=copy_link&utm_medium=campaign_page&utm_campaign=noa-strong-fundraiser&utm_content=default

Here is her GoFundMe!
https://gofund.me/c1ba3701c

For two and a half years, 803 days, Noa has fought for her life a… Kaleigh Ramirez needs your support for Help Noa Visit Her Grandparents After Beating Cancer

06/04/2026

Noa is on her way down to AMBH for her 26th spinal tap. She will receive chemo via her port and in her spinal fluid, and her antibiotic infusion. Please say a prayer for her. 💛🦈✨

06/02/2026

🦈💛✨

As a cancer parent, you learn to fear everything. Numbers, germs, the world as a whole becomes terribly frightening when you hear the words “Your child has cancer.”

Ive never met a more fearless child.
Noa doesn’t know fear. She only knows incredible joy and it’s a beautiful lesson she continues to teach me over and over again.

The moment it hit home was when we were playing in the ocean and the waves kept crashing over her, and she just kept laughing and said “Thank you, Mami. Thank you, thank you, thank you so much for bringing me here.”

So, we extend our greatest thanks to Lighthouse Family Retreat. Thank you for gifting us with the most precious thing; Noa’s joy. For 5 blissful days, Noa got to be a regular kid, doing regular things, and she wasn’t singled out for being a cancer child, or being an only child. She was “just Noa”.

Thank you to our incredible family partners, Ginny and Haley who loved Noa like their own. There’s something special about having Noa wake up every day and say “Are my friends here?!”

Thank you to Miss Holly who took our Noa girl swimming every day and let her confidence blossom!

To the families we met, it’s an honor to know you and be on this journey with you.

Be like Noa, fearless and joyful.

See a shark, Say a prayer. 🦈💛✨

05/21/2026

Prayers for our Noa girl, please.
Noa and Mom are both down for the count. Noa with nausea, and Mom has no voice.

Hoping that the nausea meds kick in soon and our girl gets her pep back.

05/12/2026

COME OUT AND CHEER ON OUR SHARKY GIRL AND HER TEAM!

Mako Bean’s Fire Team Plus Mom is going to be pulling a fire engine this Saturday!!

Come cheer us on and help raise money for childhood cancer research right here in your own back yard!!!

You can help us by donating, sharing our link, or showing up decked out in pink for our team!!!!

https://curingkidscancer.org/fundraisers/mako-beans-fire-team-mom?fbclid=IwdGRleARwCwxleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEehdCrnHQvO3un7aGrIQCZPZhoUjG1roINm2JhwvoXw-mmPyvieZDX5ARC5Qg_aem_uuBLpfrLIbYoTUqBPQAe-A

Curing Kids Cancer Fundraiser

05/07/2026

Please say a prayer for Noa girl. We’re having a rough night with allergies, weather changes, and nausea over here.

We’re praying for good rest for our girl.

04/30/2026

🦈💛✨

It’s been a couple of days since Noa’s clinic visit. We’ve been dealing with some tummy problems with Miss Noa. She’s been refusing to eat, no bowel movements, and just fatigued over all. She finally had a bowel movement today, but still not very hungry. We’re hoping it’ll pass soon. It’s just one of the ever many joys of toddlers going through chemo.

On Tuesday, Noa’s numbers looked great. Her IGG rose on its own, which means her immune system is starting to kick back on and work on its own. Her ANC was in the 900’s, which is perfect in the safety zone, and while her hemoglobin is still low, it’s not in a dangerous place yet, so we keep an eye on it for now.

The only thing we are truly watching with a fervent eye is her liver numbers. We thought when we changed her antibiotic we had put her liver numbers to rest, but they are on the rise again. If they continue to rise, we will need to adjust her chemotherapy dosages and possibly add another medication into the rotation. Her doctor assures us that it’s a common thing to happen, and we trust him entirely. It’s just a wait and see game for now.

Noa’s next appointment will be her second to last lumbar puncture 🎉🎉🎉
We are almost at the finish line! And just before her spinal, we get to take her to the beach with Lighthouse Retreats! 💛 Noa had so much fun last year, we are excited to go again.

For now, please keep Miss Noa in your prayers as we continue to deal with her fatigue. To know Noa, you know she never stops. Her name quite literally means “motion”. So her slower pace the last two days has been unusual.

For now, we are counting down the days until our beach trip, and then we prepare for her 26th lumbar puncture. 💛

See a shark, say a prayer! 🦈💛✨

04/28/2026

🦈💛✨

Please keep our girl in your prayers tomorrow.
Her nausea is on the rise again, and we’re at our wits end on what to do.

She will have labs tomorrow and then her antibiotic infusion. Last time, it made her really sick so we’re asking for stronger nausea meds pre-infusion.

There is also the chance of an IVIG and other medications. We’re preparing for a long day, but hoping for a light one.

We start bright and early. We will keep everyone updated as the day goes. This is her last appointment of cycle 4 of LTM.

See a shark, Say a prayer. 🦈💛✨

04/17/2026

Update on Noa:

She is dramatic, but resilient.

After probably the worst projectile vomiting incident to date (Hall County EMS almost met us 😆) Noa came home, crashed in her bed, and has spent the last day and a half recovering and mellowing out.

Do we know why she had a projectile vomiting episode? No. Do we really wish they’d end? Yes. 😆

Also, pro tip from Mom. Don’t let your child eat a breakfast of only raspberries and strawberries if she’s acting a little nauseous. Thrown up red berries look just look blood clots. 🤦🏻‍♀️ Hince why Hall County EMS almost met us.

For now, we’re going to revel in the fact she feels good today. We have 153 days left, that’s it. Tomorrow marks 5 months left in active treatment.

Also, we recently found out Noa knows how to administer her own medicine. I’m so proud but heart broken at the same time. Things my 3 year old should not know how to do.

For now, we’re taking today as a good day 💛