Gabes Sanfilippo Journey #MPSIIIa

Gabes Sanfilippo Journey #MPSIIIa Hi there. I'm Ashton, I'm a mom of two boys. Gabe was diagnosed 11/20/17. raising awareness for a cure.

My 9 year old, Gabe, has a rare genetic condition called Sanfilippo syndrome type A... and I have an 8 year old who doesn't have sanfilippo.

05/09/2026

“HE BEAT CANCER… THEN USED HIS WISH TO FEED THE HOMELESS INSTEAD OF GOING TO DISNEY” ❤️

Most kids dream of meeting Mickey Mouse after surviving cancer.

But 14-year-old Jude Baker had a different dream.

After battling a rare and aggressive bone cancer called Ewing Sarcoma, the Georgia teenager was granted a Make-A-Wish trip to Disney World — something many children in his situation would understandably choose without hesitation.

But Jude couldn’t stop thinking about the people in his own community who were hungry, cold, and struggling to survive.

So instead of boarding a plane for a vacation, he asked if he could use his wish to help others.

What happened next stunned an entire town.

Jude organized an event that provided hot meals, hygiene products, clothes, blankets, and sleeping bags to more than 300 homeless people in Summerville, Georgia. Witnesses said he spent the entire day serving food with a smile, making sure everyone else ate before he did.

People who met him said his kindness felt bigger than his age.

After hearing what Jude had done, the community rallied around him. Donations poured in, and supporters later helped raise money so Jude and his family could still take a trip together after his treatment journey.

In a world where so many chase fame and attention, this young boy used his second chance at life to lift up complete strangers.

Not all heroes wear capes.
Some wear hospital bracelets. ❤️

Would you have made the same choice at 14 years old?👇

Follow for more powerful stories that restore faith in humanity. ❤️

InspirationDaily ViralStory Hope ActsOfKindness fblifestyle

04/26/2026

Sanfilippo is a thief. The failed to approve the medication that gives these kids a chance at a better more fulfilling life because of a crack in the floor and tarp behind the building. doesn't have time to wait but they have to keep waiting. as they decline, families are traumatized as they slowly watch their child lose everything. I never want to miss that smile.
Gabe is almost 11, he is non mobile now, feeding tube, has seizures, and quality of life slowly disappearing as a medicine that could help sits on shelves waiting, waiting for the approval.


10TV - WBNS WSYX ABC 6 NBC4 U.S. Food and Drug Administration USA TODAY

04/20/2026

Watching what Sanfilippo is doing to my child is devastating.... No kid deserves this. I love you my miracle baby. 💜💜 U.S. Food and Drug Administration failed to approve the medication that could help save him from this and our family from this and over a crack in the floor and taro out back, failed.
These kids don't have time, every day matters. Ohio House GOP Ohio Senate Republicans USA TODAY 10TV - WBNS WSYX ABC 6

Another day more awareness, follow my other pages for more info

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