Living Strong With Epilepsy

Living Strong With Epilepsy Living Strong With Epilepsy is a supportive community for people living with epilepsy (and the people who love them).

We share real-life tools, encouragement and practical guidance to help you feel safer, steadier, and more empoweredโ€”one day at a time. ๐Ÿ’œ Our mission is to provide better epilepsy awareness and education to the world! To break the epilepsy stigma and to continuously seek out a cure to end epilepsy. Our goal is to help each other overcome the obstacles we are faced with enduring a disorder that neve

r rests. Whether youโ€™re a fighter, family member, caregiver or supporter, we can share in the same journey together and help each other as we deal with the daily obstacles that confront us each day.

Have you turned on your notification bell for The Advisor with Stacey Chillemi on YouTube?Every week I publish new conve...
08/25/2026

Have you turned on your notification bell for The Advisor with Stacey Chillemi on YouTube?

Every week I publish new conversations with top experts in health, wellness, mental health, and mindset. The notification bell is the only way YouTube tells you when something new is ready for you.

Go to the channel, tap the bell next to the subscribe button, and choose All Notifications. It takes three seconds.

What topic do you most want covered next? Drop it in the comments. I read every single one. ๐Ÿ’œ

Link in bio to the channel.

https://www.youtube.com/

I forgot I even wrote this. ๐Ÿ’œAnd today it was published on Social Health Network โ€” one of the largest chronic illness co...
08/20/2026

I forgot I even wrote this. ๐Ÿ’œ

And today it was published on Social Health Network โ€” one of the largest chronic illness communities in the world.

Sometimes the universe has better timing than we do.

I have lived with epilepsy since I was five years old. Nearly fifty years of seizures, limitations, lost independence, and the particular loneliness that comes from living with something most people do not understand.

For a long time I kept it quiet. I thought speaking openly would define me in ways I could not control โ€” less capable, less professional, less whole. So I built walls around the hardest parts and tried to outrun them with achievements instead.

Then I told the truth. About the fifteen years I could not drive. About the seizure at work that got me terminated thirty minutes later. About the night at sixteen when my father kicked down a bathroom door and pulled me out of the water.

And people found me.

A stranger wrote to say they found my book at a Barnes and Noble and it saved their life. A parent wrote to say my story helped them recognize their child was having a seizure.

That is what happens when you stop performing the polished version.

Somewhere right now someone is sitting alone with the same diagnosis and the same fear, certain nobody could possibly understand. Your honest story gives them something medicine cannot.

It tells them they are not alone. ๐Ÿ’œ

Full piece is live on Social Health Network โ€” https://bit.ly/4xcLJDq

๐Ÿ‘‡ What is the part of your story you have been keeping quiet?

08/20/2026

What is one thing you wish people understood about living with epilepsy? ๐Ÿ’œ

I just found out I am a 2026 Social Health Awards Finalist in the Creative Contributor category! ๐Ÿ’œFor nearly 30 years, I...
07/21/2026

I just found out I am a 2026 Social Health Awards Finalist in the Creative Contributor category! ๐Ÿ’œ

For nearly 30 years, I have been turning my epilepsy journey into books, resources, and content that helps families feel less alone.

From Epilepsy You Are Not Alone โ€” a bestseller for 30 years โ€” to My Daddy Has Epilepsy and My Mommy Has Epilepsy โ€” books that started as stick figures drawn on the floor for my own children after a seizure โ€” every single thing I have created has been my way of saying:

You are not alone. You never have been.

I am so honored to be recognized alongside such extraordinary advocates. ๐Ÿ’œ

Winners announced August 19th at the virtual ceremony!

๐Ÿ‘‡ Drop a ๐Ÿ’œ in the comments if epilepsy has touched your life or someone you love.

06/18/2026

A shoebox full of 400 letters. A husband who refused to let me make excuses. And one email from a stranger in Barnes and Noble that I will carry with me forever.

Address

Freehold, NJ
07728

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