08/23/2026
Much Metta and Prayer for all who love her. 💜 https://www.facebook.com/share/p/1BjgSoc1M8/
Remembering Genesis Jones (Genesis Jones)
It is with profound sadness that we share the passing of one of BWHI’s Rare Disease Diversity Coalition Champions, rare disease warrior, and extraordinary advocate, Genesis Jones, the first-ever recipient of RDDC’s Patient Advocate RISE Award.
Genesis lived with and battled sickle cell disease, and she turned her personal journey into a powerful commitment to advocating for patients. She dedicated her life to advancing health equity, amplifying patient voices, and ensuring that people living with sickle cell disease and other rare conditions were seen, heard, valued, and empowered.
Her advocacy, compassion, creativity, and unwavering commitment to community touched countless lives and will continue to inspire us.
Donate in Genesis’ honor: bit.ly/4wPBfJu
Our deepest condolences are with Genesis’ family, friends, fellow advocates, and all who were blessed to know her.
RareDisease HealthEquity