SASsy Hallie

06/08/2026

Today is Hallie’s special day and Saturday is bike ride day! Thank you so much to everyone that has donated so far. If you haven’t, there is still plenty of time! We appreciate your support!

In 2019 our beautiful first born daughter Hallie was diagnosed with an ultra rare genetic disorder called SATB2-Associated Syndrome or SAS for short. Completely new to the world of rare disease, I jumped right in to help other families living with this diagnosis. Hallie and others with her diagnosis...

06/05/2026

Hallie’s 9th birthday is on Monday! She would love it if you would celebrate her by donating to our fundraiser. The bike ride is next Saturday June 13th and we have a huge team this year! Every dollar we raise goes directly to the work we do at the SATB2 Gene Foundation! Help us celebrate Hallie and make a donation.

In 2019 our beautiful first born daughter Hallie was diagnosed with an ultra rare genetic disorder called SATB2-Associated Syndrome or SAS for short. Completely new to the world of rare disease, I jumped right in to help other families living with this diagnosis. Hallie and others with her diagnosis...

12/23/2025

My family keeps asking for a white Christmas. This should do it.