04/23/2026
🔶️🔸️ UPDATE 🔸️🔶️
We received a call today with the results from Emma’s monthly engraftment labs that were done on Monday.
We were hoping for better news, but her lymphocyte levels are still not where they need to be. At this point post-transplant, they should be at 100%, but right now they’re only at 79%. We don’t have clear answers as to why they aren’t increasing on their own, and of course, the concern is whether this could potentially point toward relapse.
Her transplant team feels we’ve waited as long as we safely can, and that a transplant of just her donor’s lymphocytes is now necessary. They’ll be consulting with additional physicians in the morning to confirm this plan before anything is finalized, but at this point, it seems unlikely that the course of action will change.
We know things could be much worse, and we are incredibly grateful that her myeloid (cancer) cells are still showing 100% donor. 🙌 Still, we’re feeling deeply discouraged and worn down. Life had started to feel so normal again that we almost forgot how fragile that sense of normal can be.
Please, please say a prayer for Emma and our family. None of us want to be here again. It feels like we’re standing in front of another mountain. One that reminds us that life can never really be “normal” again. That reality cuts deep for any parent who has watched their child lose that sense of security.
For now, we’ll be honest. We are not okay. We are broken. 💔
🧡🧡🧡🧡