Crohn's Anonymous

01/12/2022

Created by my son,Jon, who passed away last month . His case of Crohns was severe. He was diagnosed when he was 16 and 33 when he passed away .He is with his Savior , Jesus, who he asked to come into his heart when ho was about 6. He said he was tired of carrying the load of sin.

11/10/2021

That's a lil therapeutic..

08/08/2021

07/16/2021

-- had a lot of surgeries?? addicted to opioids from the hospital or the doctors? Please read this --

I had just turned 16 upon my diagnosis of Crohn's Disease,and back then they still used Demerol as the thinking was since it was a different kind of opioid, the addiction rate in patients compared to morphine would be significantly lower. Well, as we know today, it had the opposite effect on the patients for whom it was prescribed. Especially the intravenous sort. I was in the hospital 8 wks and 8 wks I was on the Demerol. Part of that time, after my small bowel resection, I was out on a PCA Pump, where I controlled how much medicine I was getting. I was A 16 year old stuck in the hospital over the holidays. Of course I used more than I needed. By that time it was way too late anyway. I was already so addicted that the morphine they tried to switch me to after the surgery had 0 effect.

By the time I was 17, two years after diagnosis, I was using fentanyl patches and subbucal formulations.

I'm now 32 and even though I am off the oxycontin, Vicodin, Demerol, fentanyl and morphine capsules, I still have to take ____ for my chronic pain, most of which stems from my post operatives. I stopped counting at around 25. Mostly anal/rectal fistulae with a couple partial colectomies and sm. Bowel resections.

I'm in the process of radically altering my diet and promoting gut flora...I meditate daily, spend sometimes damn near entire days at the park with my best friend..my border collie, and despite what I have been thru, and the sacrifices Ive had to make (no drinking, strict anti-inflammatory diet, infusions every couple of weeks, and having my personality altered) to name a few, I'm a generally happy guy who lives a pretty normal life. I just have a hell of a lot of good stories to tell 🤪🤭😲

I'm sharing this not for pitty but with the hopes that someone with a similar story will share theirs... And of course tag me in it 😉..
Cause it truly is liberating to share whatever you've got bc spoiler alert, each person on this group page has at LEAST one.

My website is down right now for upgrades n maintenance but stoo by sometime.
www.crohnsanonymous.com
Feel free to email me too:
[email protected]

Thanks for your time. Stay positive.

06/24/2021

Www.CrohnsAnonymous.com is down but will be back up soon!

This domain has a pending ICANN verification and is suspended.

06/21/2021

Making small changes to your diet can put you on the right track and can make you feel 💯 in nothing mind and body.

06/21/2021

Need to change your diet but unsure where to start?

I.) Eliminate dairy products. Whole foods has goats milk, and goat cheese. Also available is almond milk chocolate pudding for a snack...
II.) Eliminate bleached flour, genetically modified foods and replace it with organics. Cut out soy, nuts, eggs, add cinnamon 😋. Eat more fruit for snacks or whenever.

That's a great place to start... just remember that it's okay to start small as far as changing your diet. And the more you can make healthy diet decisions, the better you'll feel inside and out.

Thats all, folks!

- Crohn's Anonymous
Email me at [email protected]