My name is Brianna Greenspan. I was diagnosed with EDS, POTS, Tethered cord, Spondylolistheisis, craniocervical instability, costocondritis, and a variety of other medical challenges... The first major symptoms started when i was around 4 years old with my eyes.. by 12 i was in a full back brace that went down one leg and i was forced to walk with a limp in the hopes of stabilizing my hip joint. B
y the time I was 19, I has an L5-S1 fusion surgery that ultimately left me unable to walk and in worse shape then I had ever been in. My parents created a very rigorous rehabilitation program in the hopes that I would one day lead a full life, or at least lesson the pain if at all possible. They created an at home program where a therapist came to the house 7 days a week for 6 weeks.. We did CranioSacral Therapy, Mayofacial Release, Aqua Therapy, Physical Therapy and a variety of other modalities that eventually gave me the ability to walk again. Despite constant monitoring and quality care, old symptoms still seems to recur and new symptoms still appear... Its almost as if the moment I am able to get a handle on one symptom or condition, another pops up. This has led me to embark on a medical research project at Cedar Sinai Hospital entitled "Hypermobility and its correlation to disease" The doctor I am currently working with has over 60 EDS patients as well as a variety of other interesting connective tissue disorder patients. We are diligently working to help properly diagnose and treat these patients to give them an improved quality of life. This page will be used for a variety of things, I will give periodic updates on my health as well as updates on what is happening in my research and with my patients/friends in the invisible illness community. Please like and share this page with your friends who you think would benefit from this page!! Also please feel free to follow my Instagram - Dr.Bri1111 as I post a lot of cool research on it.
