Kk's Journey

Kk's Journey Kk is a 18-year-old girl with Sturge Weber Syndrome and Non-Verbal Autism living her best life on the farm.

Follow along for updates—we have good days and bad days, but we’re here for it all!

HUGE THANK YOU to our Nassau County Road Maintenance Crew!Thank you for replacing the stolen signs that help keep our Ka...
10/13/2026

HUGE THANK YOU to our Nassau County Road Maintenance Crew!

Thank you for replacing the stolen signs that help keep our Katelyn safe on the road she calls home!

And don’t mind KK in the ditch! 🤣 After all this rain, she jumped right out to investigate the water! 💦 Never a dull moment!

We are blessed to have a road crew that truly loves and looks out for our girl!

Please be patient with these hardworking folks as they continue repairing our Nassau County roads over the next several weeks!

We appreciate you! 💛🚜

09/29/2026

A little afternoon with KK and her pal, Twister. 🐴🥕♥️

Twister is our Palomino who spent much of his life around individuals with exceptional needs, so we knew his gentle, patient personality would be a great fit for KK.

Working with him is still new for her, but I’m always impressed by the patience she shows. She takes her time, waits on him and grows more comfortable each visit.

And yes… Mama brought WAY too many carrots. 😂🥕 KK prefers the long ones and I feel better keeping those fingers away from accidental nibbles!

Just a simple afternoon feeding Twister, but another sweet moment of growth. ♥️

09/28/2026

Afternoon snack! 🧡🧡

09/27/2026

Cookin’ with Miss KK♥️🥣

Happy birthday to my crazy little brother, Clyde!I love you so much! Thank you for always loving me, feeding me snacks (...
09/23/2026

Happy birthday to my crazy little brother, Clyde!

I love you so much! Thank you for always loving me, feeding me snacks (arguably your most important job 😂) and helping me learn all the things about life.

But apparently today you decided to grow up and get your learner’s permit.

So now we have entered a whole new phase of sibling life: YOU driving and ME riding.

As you can see, I have taken the appropriate safety precautions. 🪖🤣

Mom says the helmet is a little dramatic. I say you can never be too prepared when your 15-year-old brother is behind the wheel.

In all seriousness, I pray for your safety and for everyone else on the road as we travel through this new adventure together. 🙏🏼

Happy 15th Birthday! I love you BIG!

Now drive carefully… your favorite passenger is precious cargo. 😎🪖🚗💨

— KK ❤️

Want to know KK’s favorite thing to do when Mama washes Mama’s sheets and puts fresh, clean bedding on the bed? Immediat...
09/21/2026

Want to know KK’s favorite thing to do when Mama washes Mama’s sheets and puts fresh, clean bedding on the bed?

Immediately climb in and make herself comfortable.

That smile says, “Thanks for washing our sheets, Mom. You may leave now.” 😂🤣

Happy Monday!

Tonight while cooking dinner, I was reminded of something pretty special.If you know KK, you know she holds a very impor...
09/20/2026

Tonight while cooking dinner, I was reminded of something pretty special.

If you know KK, you know she holds a very important position in our house: Official Kitchen Supervisor.

She is almost always right there watching while we cook. And while I try to involve her in the actual cooking process when I can, there’s another part I realized I don’t challenge her with nearly enough putting everything back when we’re finished.

So tonight, after making mashed potatoes, I challenged KK a little.

“Put the milk back.”

Done.

“Put the butter back.”

Done.

Then I started handing her the seasonings…and I was honestly impressed. She knew exactly where each one belonged. No pointing. No gesturing. No showing her where to go.

She just knew.

When we finished with the hand mixer, she knew exactly where that belonged too.

And it hit me: she’s been learning all along just by watching.

As much as I try to challenge KK, I’m guilty of the same thing I think a lot of us parents are guilty of…we sometimes forget to give our kids the opportunity to show us what they already know.

They are watching.

They are learning.

And sometimes there’s a skill sitting there that we didn’t even realize they had because we’ve simply never asked them to do it.

So here’s my little Sunday challenge: Ask your child to do something tonight that you normally do for them.

Maybe tonight isn’t their night to shine. Maybe they need some help and that’s okay.

Or maybe you’ll discover an unsung skill you had no idea was there.

Tonight, I discovered a few.

Proud of you, KK!!! Now enjoy that fried chicken, mashed potatoes and green beans, you supervised so well. 😂

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13611 Normandy Blvd
Jacksonville, FL
32221

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