Charlie's Ewing Sarcoma Journey

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Charlie's Ewing Sarcoma Journey life and all the in-betweens of being diagnosed with incurable cancer. Sharing the reality of cancer, love & survival 🎗💛

UPDATE: Charlie missed his pulmonary follow-up this morning... we ended up in the ED instead.I'm an early bird. Up btw 3...
10/15/2026

UPDATE: Charlie missed his pulmonary follow-up this morning... we ended up in the ED instead.
I'm an early bird. Up btw 3-4 every morning. I woke up and charlie was not in bed. I came down to find him having severe chest pains, so that's where our day went. Out the door by 4³⁰. Hours of tests later, this is what they sent us home with:
"At this time there does not appear to be an emergent life threatening cause to explain your symptoms. You are stable for discharge."
No answers. And he is still having chest pain.
On top of that, the scan showed a 3mm nodule at the top of his right lung not seen on his previous studies. So we left the emergency department with the same pain he came in with, and more things to be afraid of.
I don't have anything hopeful to wrap this up with tonight. Just thank you for the prayers — we need every one of them. 💛
Hopefully he will feel better enough to make it to his rescheduled Pulmonary tomorrow

It's that time of year again! 🍂🍁🍁🍂In honor of International Ewing Sarcoma Awareness Day — November 22nd 💛🎗️💛 **4TH ANNUA...
10/14/2026

It's that time of year again! 🍂🍁🍁🍂
In honor of International Ewing Sarcoma Awareness Day — November 22nd 💛

🎗️💛 **4TH ANNUAL RAFFLE** 💛🎗️

🎟️ **Tickets are just $5 each — all online!** 🎟️

🏆 The winner gets THEIR PICK
🧢 Hats • Hoodies • Beanies • Mugs ☕
🎨 Multiple colors!
👕 Long sleeve AND short sleeve tees!
🧥 Crewnecks! 👶 Youth sizes too!
⏰ **Drawing is Wednesday, October 21st at 8 PM!** ⏰ it will be shipped directly to you hopefully in time to wear for Nov. 22! . We will contact the winner to confirm their choice, size and color!
Don't miss out — grab your tickets 💛🎗️💪
$5 /chance to
Venmo -
Zelle- 570-413-3585
Be sure to look through all the pictures! Dont forget to share 🍂🍁🎗🍂🍁

Today the Pope ,the man 1.4 billion people pray through was told he has lung cancer, and had part of his lung removed. I...
10/13/2026

Today the Pope ,the man 1.4 billion people pray through was told he has lung cancer, and had part of his lung removed. If it can find him, surrounded by every resource and every prayer on earth... then it really can find anyone. It escapes no one. Not the powerful. Not the faithful. Not the careful. you realize that no one is promised an exemption from the things that can break us. That's the terrifying part. But maybe it's also the part that should make us gentler with each other. So maybe the reminder isn't just about cancer. Maybe it's about how we treat one another, how we spend our time, and how easily we forget that every person we pass is carrying a life we know nothing about.
Because at the end of the day, titles don't make us untouchable. Money doesn't make us invincible. And being loved by millions doesn't make a diagnosis hurt any less.We're all human. We're all vulnerable. And none of us should need a reminder from cancer to start treating life, and each other, like they matter. 💛🎗️

A look at the week ahead 🎗
10/12/2026

A look at the week ahead 🎗

WE HIT 4,000+ followers!!!!2,000 + new faces here. I don't take that lightly.If you're new: this page follows my journey...
10/08/2026

WE HIT 4,000+ followers!!!!
2,000 + new faces here. I don't take that lightly.
If you're new: this page follows my journey with Ewing sarcoma — the hard days, the hopeful ones, and everything in between. Honest updates, quiet reflections, and the occasional reminder that light still finds its way in.
Thank you for being here. It means more than you know. 💛 if I'm helping even just 1 person here its all worth it, so welcome!
Tell us in the comments — where are you following from?"
I'm in Jim Thorpe, PA

We heard back from Fox Chase.The cancer is still there. The MRI shows extensive metastatic disease throughout the right ...
10/07/2026

We heard back from Fox Chase.
The cancer is still there. The MRI shows extensive metastatic disease throughout the right pelvis, sacrum and L5, but there has been no significant change since August. Because there has been no clear progression, the recommendation is to hold off on treatment for now. Starting treatment comes with significant side effects and risks, so if the cancer is currently stable, the benefit of starting treatment immediately may not outweigh those risks. This does not mean the cancer is gone or that treatment won’t be needed. It means that, for now, the plan is to monitor it closely and be ready to start treatment if the cancer shows signs of changing or progressing further.
Appointments coming up... A hospital follow-up on October 7th. On October 14th, he’ll meet with a medical oncologist from St. Luke’s so that when treatment is needed, he can hopefully have the option of receiving it closer to home. He has his pulmonary follow-up on October 15th, followed by vascular testing on October 26th. So while the cancer is stable for the moment, there is still a lot going on and a lot that needs to be monitored.

Sharing my family with you, these are our 2 youngest, Kaci 🖤(junior year) & Jonathan with his date Leah 🖤💜(freshman year...
10/03/2026

Sharing my family with you, these are our 2 youngest, Kaci 🖤(junior year) & Jonathan with his date Leah 🖤💜(freshman year)...homecoming

10/02/2026

We didn’t want to leave everyone hanging, so just a quick update.
We still don’t have answers yet. The radiologist has not read Charlie’s scan, so the report isn’t available yet. His doctor will call us as soon as they have the results and have had a chance to review everything.
We will update as soon as we know more. 💛

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