The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.

Working toward a future free of FTD. AFTD is a 501 (c) (3) nonprofit, and our work is community-driven. Support our mission here: https://www.classy.org/give/381228/ #!/donation/checkout

Melissa Jacobson and her son, Jaden, recently joined WHO13’s Hello Iowa to share their story and talk about the upcoming...
09/10/2026

Melissa Jacobson and her son, Jaden, recently joined WHO13’s Hello Iowa to share their story and talk about the upcoming Walk for FTD. ❤️

Join a Walk for FTD this fall in Des Moines, Philadelphia, or Austin, or participate virtually from wherever you are. Together, every step helps support families, fund breakthroughs, and bring greater visibility to FTD.

Ready to get involved? Register today: https://bit.ly/3T0Z6b7

Research moves forward when people work together.With the FTD Research Roundtable just two weeks away, AFTD is preparing...
09/09/2026

Research moves forward when people work together.

With the FTD Research Roundtable just two weeks away, AFTD is preparing to bring together drug developers, researchers, clinicians, regulatory and government agencies, nonprofit organizations, advocates, and other experts around a shared goal of developing effective treatments for people with frontotemporal degeneration (FTD).

By sharing knowledge, exploring emerging science, and strengthening collaboration across the field, the Roundtable helps create opportunities that move research forward.

🔗 Learn more: https://bit.ly/4yie2R9

📢 Join us tomorrow at 1 p.m. for a conversation with AFTD’s new Chief Executive Officer, Rachel Biblow. Hear Rachel shar...
09/08/2026

📢 Join us tomorrow at 1 p.m. for a conversation with AFTD’s new Chief Executive Officer, Rachel Biblow.

Hear Rachel share what inspired her to join AFTD, her vision for the organization, and her hopes for the future of FTD awareness, support, advocacy, and research.

❓ There will also be an opportunity to ask questions!

Register now: https://bit.ly/3UtzsvS

People living with FTD may need to adapt the ways they engage in the activities that bring them joy. ❤️Members of AFTD’s...
09/06/2026

People living with FTD may need to adapt the ways they engage in the activities that bring them joy. ❤️

Members of AFTD’s Persons with FTD Advisory Council share how they continue finding happiness and connection through family, hobbies, social activities, and time spent doing the things they love — even as those experiences change throughout the FTD journey.

By finding new ways to engage in meaningful activities, people living with FTD can continue to experience moments of joy and purpose.

🔗 Read more: https://bit.ly/4ydoGIV

FTD can bring many changes, and every person’s experience is different. Sharing these experiences can help others better...
09/05/2026

FTD can bring many changes, and every person’s experience is different. Sharing these experiences can help others better understand the many ways FTD can affect individuals and families. ❤️

Finish the sentence:
“The biggest change we noticed was…”

💬 If you feel comfortable, share your experience in the comments below.

Corticobasal syndrome (CBS) is an FTD disorder that primarily affects movement. While some symptoms can resemble those s...
09/04/2026

Corticobasal syndrome (CBS) is an FTD disorder that primarily affects movement. While some symptoms can resemble those seen in Parkinson’s disease, CBS is a distinct FTD disorder.

🧠 Learn more about CBS: https://bit.ly/4xjrvbf

Every runner has a reason they lace up. ❤️ For the AFTD-Team, running is a way to honor the people they love and raise a...
09/03/2026

Every runner has a reason they lace up. ❤️

For the AFTD-Team, running is a way to honor the people they love and raise awareness for the families affected by FTD.

Their stories remind us that every step can be an act of love.

👉 Swipe through to hear why they run and discover the people behind every mile.

🏃 Want to participate for someone you love? Learn more about joining the AFTD-Team and upcoming races: https://bit.ly/4xSIZuW

09/02/2026

AFTD Ambassador Dawn O’Gara shares why educating legislators about FTD matters—and how even small steps toward raising awareness can make a meaningful impact.

📣 Learn how you can advocate for FTD: https://bit.ly/4wTE2RJ

📢 Have you registered for our upcoming conversation with AFTD CEO Rachel Biblow? Join us Wednesday, Sept. 9, at 1 p.m. t...
09/01/2026

📢 Have you registered for our upcoming conversation with AFTD CEO Rachel Biblow?

Join us Wednesday, Sept. 9, at 1 p.m. to hear Rachel share her vision for AFTD, learn more about her background and leadership, and ask questions about the future of FTD.

Register and submit a question in advance: https://bit.ly/3UtzsvS

❤️ Caring for another person can be one of life’s most meaningful acts.For individuals, families, and care partners navi...
08/29/2026

❤️ Caring for another person can be one of life’s most meaningful acts.

For individuals, families, and care partners navigating FTD, the love, compassion, and support shared each day matter deeply.

If you need support, AFTD’s HelpLine is here for you:
📞 1-866-507-7222
📧 [email protected]

Address

2700 Horizon Drive, Suite 120
King Of Prussia, PA
19406

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18665077222

Website

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