The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.

Working toward a future free of FTD. AFTD is a 501 (c) (3) nonprofit, and our work is community-driven. Support our mission here: https://www.classy.org/give/381228/ #!/donation/checkout

06/18/2026

Sometimes the hardest part is making the call.
When you do, someone is here to answer.

AFTD's Helpline offers information, support, and connection for anyone affected by frontotemporal degeneration.

📞 1-866-507-7222
✉️ [email protected]

Please join us in welcoming Rachel Biblow as AFTD’s new Chief Executive Officer. ❤️ Rachel brings decades of experience...
06/17/2026

Please join us in welcoming Rachel Biblow as AFTD’s new Chief Executive Officer. ❤️

Rachel brings decades of experience in health care transformation, patient and family engagement, and mission-driven leadership. As she begins this new role, she is focused on listening, learning, and building on the strong foundation established by Susan Dickinson and the AFTD community.

“We are starting at a position of strength. I am beyond excited to be part of this team at this time, and I’m grateful for it,” Rachel shared.

Learn more: https://bit.ly/4xyrW1Y

06/16/2026

🏃 ❤️ The AFTD-Team Race Season 2026: Highlights So Far

This season, 93 volunteers have come together to raise more than $133,000 for AFTD’s mission through races across the country.

Thank you to everyone who has joined us so far.

🔗 Learn more about upcoming races and join The AFTD-Team: https://bit.ly/3SDsbbS

When Melissa's father was living with advanced FTD in a long-term care facility, her family experienced prolonged separa...
06/15/2026

When Melissa's father was living with advanced FTD in a long-term care facility, her family experienced prolonged separation during COVID-19 restrictions. Her story is one of many that highlights why caregivers are more than visitors—they provide support, advocacy, and connection, and are an essential part of the care team.

📢 Support the Essential Caregivers Act and help ensure families can maintain access to loved ones during public health emergencies.

🔗 Act now: https://bit.ly/4e5kG4A

💪 Strength can look different for everyone, especially for those navigating FTD.To all individuals, families, and caregi...
06/14/2026

💪 Strength can look different for everyone, especially for those navigating FTD.

To all individuals, families, and caregivers in our community, we see you and the strength you carry every day.

❤️ If you need support, AFTD's HelpLine is here for you: 1-866-507-7222 or [email protected]

FTD can be difficult to recognize in its early stages, and every experience looks a little different. Sharing these mome...
06/13/2026

FTD can be difficult to recognize in its early stages, and every experience looks a little different. Sharing these moments can help others better understand what the earliest signs can look like and why early awareness matters. ❤️

Finish the sentence:
“The first symptom we noticed was…”

💬 If you feel comfortable, share your experience in the comments below.

On average, it takes 3.6 years for a person with FTD to receive an accurate diagnosis. That’s years without answers, sup...
06/12/2026

On average, it takes 3.6 years for a person with FTD to receive an accurate diagnosis. That’s years without answers, support, or access to important resources.

🥧 Whether you bake, host, or fundraise online, your event can help raise awareness and support families affected by FTD. Sign up today: https://bit.ly/4ukaCLn

06/10/2026

AFTD Ambassador Terry Montgomery Walter is sharing one of her goals for the year: raising awareness of FTD among primary care doctors and advocating for earlier diagnosis. ❤️

As Terry shares, “the sooner the better” when it comes to recognizing FTD symptoms and accessing support, resources, and potential treatments.

▶️ Learn more about FTD signs and diagnosis: https://bit.ly/438EzD1

❤️ Caring for someone with FTD can feel overwhelming—but patterns matter.AFTD developed an FTD Behavior Tracker to help ...
06/09/2026

❤️ Caring for someone with FTD can feel overwhelming—but patterns matter.

AFTD developed an FTD Behavior Tracker to help care partners identify triggers, understand reactions, and respond with more confidence and compassion.

By documenting what happens, when, and why, you can start to turn challenging moments into clearer insights and more supportive care strategies.

Download here: https://bit.ly/4uUlctJ

AFTD’s Driving Hope Golf Tournament returns in 2026! ⛳ Join us in Colorado on August 23 or New York on September 28 for...
06/08/2026

AFTD’s Driving Hope Golf Tournament returns in 2026! ⛳

Join us in Colorado on August 23 or New York on September 28 for a meaningful day of golf, connection, and community — all in support of families affected by FTD and research toward a cure.

🏌️ Registration is now open. Click here to sign up: https://bit.ly/3Qrg3Kt

Address

2700 Horizon Drive, Suite 120
King Of Prussia, PA
19406

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18665077222

Website

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