APS Foundation of America, Inc.

APS Foundation of America, Inc. Founded in 2005, APS Foundation of America, Inc. We are a volunteer-run, community-based 501(c)3 non-profit Public Charity organization. Thank you.

The APSFA is bringing awareness to Antiphospholipid Syndrome (APS), a rare autoimmune clotting disorder that causes young strokes, multiple miscarriages, stillbirths, thrombosis & heart attacks, and much more. (APSFA) is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the primary cause of multiple miscarriages, thrombosis,

young strokes, and heart attacks. We are dedicated to fostering and facilitating joint efforts in education, support, public awareness, research, and patient services. The APSFA’s Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.

*Disclaimers*
The Founders, Administrator (s), Assistant(s), Helper(s), Greeter(s) & Staff of this forum are not medical doctors. This forum's Founders, Administrator(s), Assistant(s), Helpers, Greeters & Staff are not medical doctors. APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members is only an opinion. All information should be confirmed with your personal doctor. Always seek a trained physician's advice before seeking any new treatment regarding your medical diagnosis or condition. Any information received from the APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly; therefore, some information may be outdated when you read it.

**If you think you may have a medical emergency, call your doctor or 911 immediately.**

If you use this page, we want you to know that you are solely responsible for your communications, the consequences of posting those communications, and your reliance on any communications found in those areas. APS Foundation of America, Inc., and its licensors are not responsible for the consequences of any communications in the forum, chat room or page. If you give your personal information to a host or other member and later threaten to hurt yourself or others, we reserve the right to contact appropriate authorities; however, no guarantee is made that someone will contact emergency personnel for you. We are not equipped to handle these types of crisis situations. You should contact your local law enforcement agency right away. Members agree to accept personal liability for any medical advice they provide to another member. Furthermore, anyone who accepts and applies medical advice from another member agrees that they are doing so at their own risk and will hold APSFA, its affiliates, employees, and volunteers harmless.

**All posts are moderated 24/7 and are subject to deletion for any reason.**

Medical journal articles do not constitute medical advice. Please share these with your medical care team. Page rules can be found here:http://apsfa.org/new/wp-content/uploads/2022/01/APSFA-Rules.pdf

We are a volunteer-run, community-based 501(c)3 non-profit Public Charity organization. The person who does the majority of the work has multiple autoimmune disorders is on biologics, chemotherapy, and multiple drugs to try to control them and also needs her rest. The rest of the board is just as sick. To be upset we are not available 24/7, 365 when our whole board has this disease and other autoimmunes as well is quite disappointing. We are doing our best as volunteers.

06/13/2026

Credit to Samantha (Sam) Shown, MA, LCMHCA | North Carolina Therapist Ah yes, positive thinking. The famously effective cure for complex trauma, systemic stress, chronic illness, grief, burnout, and dysfunctional nervous systems. Never thought to try that.

Can’t believe nobody told us sooner. Truly revolutionary.

Jackie's StoryI was first told I had APS when I was 19 years old. I had just given birth to my 27-week   son, Xander, a ...
06/13/2026

Jackie's Story

I was first told I had APS when I was 19 years old. I had just given birth to my 27-week son, Xander, a month prior. I was told APS was the cause; my placenta was covered in hemorrhages, clots, scar tissue, and there was a blood in the umbilical cord. Maternal fetal medicine said my pregnancies are now high risk, but they could give me a healthy baby with treatment.

I had my second child at 22, and my little girl was stillborn at 28 weeks
due to . I took baby aspirin and Lovenox during my entire pregnancy, but not enough. Doctors said they were sorry, and we can do more
next time.

My doctor took me off the blood thinners and put me on the pill so I wouldn't get pregnant again. I was done with trying. I was traumatized at that point. I then suffered several 's over the next month from the APS and estrogen-based birth control my doctor had put me on. I was told I have APS all the time, and I had to take warfarin for the rest of my life be￾cause my APS tests were strongly positive on all 3 tests. I had to stop the birth control and start warfarin; my whole life flipped upside down at 22 years old.

I was blessed with a miracle two months later: I was pregnant again. I got smarter, saw better doctors, and received the best treatment available in my state. My pregnancy was insane, so many medications, tests, appointments, ultrasounds, half a million dollars later, at 32 weeks, I gave birth to a healthy 3-pound 12-ounce baby girl. My rainbow baby, my miracle. I had my tubes
tied during my c-section. I knew I had my miracle, and I couldn't risk my life to have any more.

It's been 10 years since then. I have had multiple occasions of INR interactions, causing blood to be too thin or too thick. I've had internal bleeding several times, but knock on wood, I haven't had a blood clot since I started warfarin 12 years ago. I have learned to be my own advocate, and sometimes I know more than my own doctors. But I will always fight for my life!

I am 34 now, and I have several other health problems: fibromyalgia, Sjogren's syndrome, MCAS, scoliosis, osteoarthritis, anxiety, depression, tachycardia, mixed headache syndrome, Raynaud's syndrome, and endometriosis. I'm still trying to live my best life and enjoy each day to the fullest.

APS is a devastating disease that is very misunderstood. We must for ourselves and give ourselves grace.

06/13/2026

Credit to Nichole Lumas Don’t worry doc, I’ve already put everything into ChatGPT and got our next steps 😅

Today is the 2nd Saturday in JuneNational   Day is celebrated on the second Saturday in June to bring   to one of nature...
06/13/2026

Today is the 2nd Saturday in June

National Day is celebrated on the second Saturday in June to bring to one of nature's most beautiful insects.

Here is some info on why chose the dragofly for the ....

https://apsfa.org/why-the-dragonfly

Reducing APS Risk Factors: APS Awareness Month - Day 13Living with   Syndrome ( ) can be challenging, but there are proa...
06/13/2026

Reducing APS Risk Factors: APS Awareness Month - Day 13

Living with Syndrome ( ) can be challenging, but there are proactive steps you can take to minimize your risk of blood clots. Awareness is key! It’s crucial to stay informed about your condition and understand how it affects your body. Regular check-ups with your healthcare provider can help you monitor your health and adjust your treatment if necessary. Incorporating a healthy lifestyle can make a significant difference, too.

Staying active, eating a balanced diet rich in omega-3 fatty acids, and staying hydrated are excellent ways to keep your blood circulation flowing smoothly. Remember to avoid prolonged periods of immobility, especially during long travels. Simple stretches or short walks can work wonders!

Additionally, staying in touch with support groups can provide emotional support and valuable tips from fellow APS warriors.

Remember, you’re not alone in this journey—let's spread awareness together this APS Awareness Month! Your health matters!

06/13/2026

What’s your pain level at today?

This is me. Every single day. Especially this week. I took a couple of days off work, to rest and relax and am stuck with the biggest pain flareup ever. And still people say “push through it”.

06/13/2026

Credit to Chronic Fatigue Syndrome | M.E/CFS Recovery It’s not just “a bit tired” or “hard to focus.” It’s trying to think through a thick cloud… where words disappear mid-sentence, simple tasks feel, and your brain just won’t cooperate.

Imagine feeling hungover, sleep deprived, and halfway through a flu…

Every. Single. Day.

That’s what brain fog can feel like for people with chronic illness.

If you’ve ever felt this, you’re not alone.

The webinar link has landed. 🥳Again, upon University of Michigan we thank you for for attending our World APS Day webina...
06/13/2026

The webinar link has landed. 🥳

Again, upon University of Michigan we thank you for for attending our World APS Day webinar on .

We hope you enjoy the replay.

https://youtu.be/SPQ4J3xWYbM

06/13/2026

ANA is often one of the first tests done when an autoimmune disease is suspected.
There are a lot more tests. Some tests are specific to different autoimmune diseases, or help point to a specific disease.

ANA has patterns and those patterns sometimes help point to a certain autoimmune disease(s).

06/13/2026

Credit to Stacey Well look how it all turned out, be specific with what you wish for🤣

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La Crosse, WI

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