Epilepsy Awareness Day at Disneyland

Epilepsy Awareness Day at Disneyland PLEASE LIKE page & join us by spreading awareness~ 14th annual event! November 16-18, 2026 💜
epilepsyawarenessday.org SAVE THE DATE! Sofie's Journey
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November 18, 19, and 20, 2024

Keep following FaceBook and IG. Don't miss the event website:epilepsyawarenessday.org

Thank you for your continued support!

We wanted to share something special with our community. Our friends at Sunstone Health are now offering families someth...
09/08/2026

We wanted to share something special with our community. Our friends at Sunstone Health are now offering families something I think many of you will find really valuable.

If your child has already had genetic testing but you were left with a report and no real answers, you're not alone, and there may be more to learn from what you already have. Genetic science moves fast, and a result that was uncertain a few years ago is often clearly understood today. That's why our friends at Sunstone are offering our families a fresh look at your child's existing genetic results using today's knowledge (sometimes called a reanalysis), completely free for our EADDL community.

A REANALYSIS + YOUR RESULTS REVIEW & CARE PLAN
Here's how it works: the Sunstone doctors take a fresh, careful look at your child's existing genetic test results using today's knowledge, an up-to-date second look that can surface findings that weren't clear the first time around. Then they put it all into a written Results Review & Care Plan that explains what it means and what the care needs are.

Ideally you'll have it before EADDL 2026, so you walk in already understanding your child's own report, and then you can spend your time with the genetic epilepsy leaders at the EXPO going even deeper.

**Stronger Together Family Lunch**You’re warmly invited to join us for the Stronger Together Family Lunch.Hosted by LGS ...
09/04/2026

**Stronger Together Family Lunch**

You’re warmly invited to join us for the Stronger Together Family Lunch.

Hosted by LGS Foundation, we welcome anyone who has a loved one living with a rare, drug-resistant epilepsy syndrome, as well as the families and caregivers who support them.

This special gathering is an opportunity to connect with others who understand, share experiences, learn from one another, and feel supported in community.

Join us for a welcoming time of connection, education, and family support. Whether you are newly navigating a rare epilepsy diagnosis or have been on this journey for years, you are not alone.

We hope you’ll register and join us, because we are stronger together.

https://secure.everyaction.com/ZlMZLUVhMUK2ZLKbpAZUFA2

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