Little Miss Hannah Foundation

06/01/2026

From Carrie, Little Miss Hannah's mom -

Even though our foundation has closed, this page still connects me to many of you, families who knew Hannah's story or who are living your own version of it right now.

I wrote something I have been carrying for seventeen years, about the day Hannah was diagnosed and what came after, and about what I wish someone had said to us in that room.

It is for the parents just starting on this road, the ones who have heard "rare disease" about their child and have no idea what comes next. If that is you, I wrote it for you. If you know someone in that place, please send it to them.

My youngest child, Hannah, was seven months old the day my husband, Robert Ostrea, MBA, and I sat across the desk from a geneticist at one of the top children's hospitals in the US. The path we had to take had been long.

07/25/2025

Today would have been Hannah's 17th birthday, and on this meaningful day we're excited to introduce Accessible Adaptability , a new 501c3 nonprofit that has emerged from our Little Miss Hannah Foundation community.

Started by several of our LMHF families and board members, Accessible Adaptability provides family support, equipment assistance, education, and advocacy for individuals with medically complex disabilities in Southern Nevada. They're committed to making a difference.

For our LMHF families especially, we encourage you to connect with this meaningful new resource. These families understand our challenges because they've walked this path alongside us.
Visit their website at https://www.accessible-adaptability.org/ to learn more about their services and follow their social media for updates and resources.

We are so happy that connections formed through LMHF will continue, and organizations like Accessible Adaptability ensure that support remains available for families navigating complex medical journeys.

With gratitude for this community we've built together in Hannah's memory. Happy birthday, baby girl!

01/20/2025

After 13 incredible years of serving Southern Nevada's rare disease community, our Little Miss Hannah Foundation will conclude its operations at the end of 2025. Started in memory of our beautiful and feisty daughter Hannah, LMHF has provided over 450 pieces of medical equipment, supporting over 500 local families, creating friendships and support networks that will last long beyond our foundation.

After pouring our hearts into this mission, our family has decided it's time to step back and find a more personal way to honor Hannah's memory. Our equipment grant program will continue through August 2025, though it may end sooner if funds are depleted. We're so proud of the community you've built together - it's Hannah's true legacy.

We are working with another organization to ensure our families can stay connected, and we'll share more details about this transition soon.

Note: We are no longer accepting donations as we focus on serving our families through the remaining months. Our website will be updated in the coming weeks to reflect this change.

From the bottom of our hearts, we thank our supporters, donors, families, friends, and the Las Vegas community for helping us make a difference in the lives of so many children with rare diseases and their families.

12/03/2024

Thank you Limitless Chiropractic for your continued support of our medically complex kiddos!

11/30/2024

Today is the Quarter 4 deadline for our Medical & Therapy Equipment Program. *Only applications with version 9/1/24 will be accepted*. Email with questions: [email protected]

11/28/2024

This Thanksgiving, we reflect on the incredible community that surrounds us. From our supporters, volunteers, and families, to the amazing kids who inspire us every day - we are so grateful for each of you!

Thank you for being part of our journey and helping us create a brighter, more inclusive future for children who are medically complex. Together, we're making a difference that lasts a lifetime.

Wishing you and your loved ones a joyful and blessed Thanksgiving!

11/27/2024

11/23/2024

It’s a beautiful day for Tee Up FORE Rare! We are here at Wildhorse Golf Club. See you all soon!

11/22/2024

TOMORROW IS OUR GOLF TOURNAMENT! 7:30 shotgun start at Wildhorse Golf Club in Henderson. See you there!

Any questions, please email Executive Director Jenny Krshul: [email protected]

11/11/2024

Meet Jaxon! He is one of our cool VIPS at our upcoming @2024 Tee Up FORE Rare - Charity Golf Tournament on November 23rd! To support kids like Jaxon, golf with us at Wildhorse Golf Club! Register here: www.TeeUpForeRare.com

This is what Jaxon's mom wrote about him:
"Jaxon loves to eat and make everyone smile and laugh. He loves to swim with his brother in the pool too. Jaxon just wants to be loved and accepted and treated the same as every other kid :) Inclusion matters!"