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BravEmmy Emberlyn Grace, sharing awareness for Caudal Regression Syndrome Lumbosacral Agenesis a rare conditi The exact causes of CRS are unknown.

It has been linked to improper expression of the HLBX9 gene, and because that gene is also expressed in the pancreas, links to maternal diabetes have been suggested; 20% of CRS babies had diabetic mothers. Maternal diabetes may be one cause, but other mechanisms such as umbilical ischemia (a blockage of the blood supply through the umbilical cord), hyperglycemia, infections, and exposure to toxins or retinoic acid are also suspected. Some of the effects of CRS vary depending on the severity of the condition, and can include malformation of the lower limbs, kidneys and lower intestine, and varying levels of paralysis. The lower extremities may be underdeveloped and the legs fused in a bent "Buddha" position, or sometimes a straight position. Webbing between the calves and thighs may be present. Paralysis (partial or full) may exist from the point where the spine ends. In other cases, people may only have a small part of the lower spine missing and maybe no paralysis at all. Many people with CRS have a missing kidney or horseshoe-shaped kidneys. Some have a few missing ribs or have an extra rib. It may seem like this can be a very big deal — and in some ways it is — but in other ways it's not such a big deal at all. CRS is a rare condition: the rate of occurrence has been variously quoted between 1 in 25,000 to 1 in 60,000 live births. Because of its rarity, most doctors have never seen a person who has this condition, and the information they know about it may be wrong or outdated. People who have CRS may never have even met another person with this condition.

Your 2026 Nebraska Miss Amazing is reaching out and asking for your help! Emberlyn is just 6 t-shirts away from making h...
07/02/2026

Your 2026 Nebraska Miss Amazing is reaching out and asking for your help!

Emberlyn is just 6 t-shirts away from making her goal!

***All shirt orders are due by 8am tomorrow (Thursday, July 2, 2026)***

Please message her mama, Joanie Hemmer if you would like to order as she will need to add your name, shirt purchase and sizes to the Nebraska Miss Amazing Google Spreadsheet.

You can purchase using Venmo, Cash, or Check. Venmo QR Code below!

Emberlyn’s message to all her supporters through this once in a lifetime journey; and helping her dream become a reality!

From the bottom of my heart, thank you to everyone who has supported me throughout this incredible journey. Your love, encouragement, prayers, and belief in me have meant more than words can express. I am beyond honored and grateful to represent Nebraska as your 2026 Miss Amazing Pr***en Queen. This is more than just representing Nebraska’s 2026 Miss Amazing Pr***en Queen; it’s an opportunity to inspire others, celebrate every unique ability, and make a positive difference. Thank you for believing in me and being part of this amazing adventure. I can’t wait to represent Nebraska with dedication, confidence, and grace! 💜

Thank you,

Emberlyn Hemmer

đź’™ A Dream Is Taking Her to Nationals! đź’™With hearts full of gratitude and excitement, we're proud to share that Emberlyn,...
06/29/2026

đź’™ A Dream Is Taking Her to Nationals! đź’™

With hearts full of gratitude and excitement, we're proud to share that Emberlyn, your 2026 Nebraska Miss Amazing Pr***en, will be representing Nebraska this July at Miss Amazing Nationals in Chicago! ✨

This opportunity is about so much more..... It's about celebrating confidence, building friendships, embracing abilities, and showing the world that every individual deserves to shine just as they are!

If you've had the joy of watching Emberlyn grow, you know how hard she's worked and how brightly she lights up every room she enters. We couldn't be more proud of the amazing young lady she's becoming, and we're excited to watch her represent Nebraska on the national stage.

To help make this unforgettable journey possible, we're selling 2026 Miss Amazing T-Shirts, "Crowned in Confidence" T-shirts for just $20 each. Every shirt purchased helps support her trip to Nationals and reminds Emberlyn that she has an incredible community cheering her on every step of the way.

If you'd like to order a shirt, please send us a message or comment below. (All Orders need to be in by the morning of this Wednesday, 07/01/2026). We'd be so thankful for your support—whether you purchase a shirt, share this post, or keep Emberlyn in your thoughts and prayers as she prepares for this incredible experience.

Thank you for believing in Emberlyn and for helping her chase this dream. We can't wait to share her journey with all of you!

💙 2026 Nebraska Miss Amazing - T-Shirts – $20 each 💙

Emberlyn’s interview she did several months ago during the Nebraska Miss Amazing Photo Shoot! To say the least…. She lov...
06/14/2026

Emberlyn’s interview she did several months ago during the Nebraska Miss Amazing Photo Shoot!

To say the least…. She love her aunts!

Providing opportunities for girls and women with disabilities across Nebraska to build self-esteem.

06/14/2026

Watch Emberlyn’s fundraising video!

Tomorrow Sunday, June 14, 2026 at 6:00pm is the deadline to place your order for candles, wax melts, and room sprays. All scents are IN THE COMMENTS. In the bundles you can mix and max the scents!

If you are wanting to place an order please sent me a message or you can also call or text me with your order. I have provided the Venmo QR code (IN THE COMMENTS) to scan and pay. When paying via Venmo please put Emberlyn’s name in the comments.

The 2026 Queen Scent created by all the 2026 Nebraska Queens is, “Crowned in Confidence”. They also brought back last years 2025 Queen scent, “To Be Fearless Is To Be Limitless”

If you are not interested in the candle, was melts, and room spays. You can make a donation by clicking the link below (IN THE COMMENTS) using Emberlyn’s Queen Sponsorship Page!

Thank you to each and everyone of you for you support and continued support!

🕯️✨ Help Emberlyn Shine on the National Stage! ✨🕯️We're excited to share that Emberlyn has earned the opportunity to rep...
06/10/2026

🕯️✨ Help Emberlyn Shine on the National Stage! ✨🕯️

We're excited to share that Emberlyn has earned the opportunity to represent Nebraska as the Nebraska Miss Amazing 2026 Pr***en at Nationals in Chicago! 🇺🇸💜

To help make this dream a reality, we're selling candles, wax melts, and room sprays. There is even a new scent the Queens created and designed for this years 2026 Nebraska Miss Amazing Queens, "Crowned in Confidence" and the scent from 2025 is available!

Every purchase helps support travel, lodging, and other expenses as Emberlyn proudly represents our state and continues to inspire others through her confidence, determination, and positive spirit.

Whether you're looking for a gift, a new favorite scent, or simply want to support Emberlyn's journey, we'd be so grateful for your help!

Thank you for believing in Emberlyn and helping her take this exciting next step. Your support means more than words can express. ❤️

If you'd like to place an order, comment below, send me a message, or complete the order form and send back to me. All orders must be placed and paid in full by Sunday, June 14, 2026. Once the order arrives I will be contacting you for delivery/pick-up!

Huge Shoutout to my big sis for all her help this evening! We love you Jami!

We love you Shriners Children's Twin Cities!
06/04/2026

We love you Shriners Children's Twin Cities!

Today is Doctors’ Day! 💙 Join us in celebrating the incredible doctors who make a difference every day in pediatric orthopedics at Shriners Children’s Twin Cities.

Has your child’s doctor made a positive impact on your family? We invite you to share your gratitude or a share a special message in the comments.

Thank you our dedicated doctors for your compassion, expertise, and commitment to our patients and their families. Happy Doctors’ Day!

Friends & family, we need your help! đź’śEmberlyn has been given the incredible opportunity to attend the Miss Amazing Nati...
05/13/2026

Friends & family, we need your help! đź’ś

Emberlyn has been given the incredible opportunity to attend the Miss Amazing Nationals in Chicago — a dream come true and such an honor! She will represent, 2026 Nebraska Miss Amazing Pr***en Queen. With this event coming up quickly, we are working hard to raise the funds needed for travel, lodging, and competition expenses in a very short amount of time.

Miss Amazing is so much more. It empowers girls and women with disabilities to build confidence, friendships, and believe in their abilities and dreams. Being part of this experience would mean the world to Emberlyn

If you are able to donate, sponsor, share this post, or simply help spread the word, we would be beyond grateful. Every donation, no matter the amount, brings us one step closer to Nationals. Below is Emberlyn’s 2026 Nebraska Miss Amazing Pr***en Queen Sponsorship page!

Thank you for always loving, supporting, and believing in us. ❤️

https://givebutter.com/miss-amazing-2026/emberlynhemmer1?fbclid=IwdGRjcARwp2tleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEec2dRDyCnYlkbM63ynf-uCts2HQq2c8IITPBcjEG_zQBFk6PBTh_MG-N7Huo_aem_ztI6qM6XSVqCnlZQr_VhSQ

Support a Miss Amazing Queen's journey to the National Miss Amazing Summit.

Help Emberlyn achieve her goal to attend Miss Amazing nationals as the 2026 Nebraska Miss Amazing pr***en queen.
04/27/2026

Help Emberlyn achieve her goal to attend Miss Amazing nationals as the 2026 Nebraska Miss Amazing pr***en queen.

We’re excited to announce our latest fundraiser🎉

We’re selling custom door hangers for just $28—perfect for adding a personal touch to your home or giving as a thoughtful gift.

To place your order, simply fill out our Google Form (link below). It’s quick and easy!

🗓️ Orders are open now through May 30th!

📍 Delivery Options:
We’ll have two convenient delivery dates in both Omaha and Lincoln:
• May 23rd
• June 30th

Your support truly makes a difference and helps us continue the work we care so much about. Thank you for being a part of it! ❤️

https://docs.google.com/forms/d/e/1FAIpQLSeb4R7Mig225KhK1YsV_2JwJfJHZ8OzDqGvNqiPKloX51qw_Q/viewform?usp=header

Check this out!!
04/20/2026

Check this out!!

✨MEET OUR QUEENS✨

Emberlyn Hemmer - 2026 Nebraska Miss Amazing Pr***en Queen

Emberlyn Hemmer is excited and proud to represent Nebraska's Miss Amazing Pre-teen Queen. She may be little, but has got big dreams and an even bigger personality. She believes each and every individual can have big dreams, accomplish anything in life, and make a big difference. She can do anything she sets her mind to, and loves to shine bright where she goes. She is not afraid to stand out, work hard, and show the world exactly who she is. Emberlyn is a member of her school's choir and is active in all her school's events and activities.
She loves to sing, dance, talk on her phone, spend time with her family and friends, and create tutorial videos such as make-up, fashion, and daily routines, and they make her feel happy, strong, and confident. Emberlyn loves being an advocate for others, spreading kindness, chasing her dreams, and always leaving a little sparkle wherever she goes. She believes that even the smallest acts of kindness can make a big difference, and everyday it is her goal to be a light in someone's life. Emberlyn shows that no matter how young you are, your voice matters and every dream is important; and to remind everyone that they are capable of amazing things. Emberlyn not only believes but has proven the impossible is possible. If there is something you want you continue and never give up. When she sees and hears the word disability she looks at the word abilities in disability.

Emberlyn's family is most important to her and she cherishes every moment with her loved ones.

When she grows she wants to continue to be an advocate for others, help others, and make a difference in her community and in the world. She would like to have a career as a nursing or educational teacher because she wants to make a difference and inspire others to dream big and to never stop reaching for the stars just like her; and to give back to all the nurses, doctors, and teachers that have helped her be who she is today; a brave, confident, fearless, bold, and courageous girl.

"This Is Me!"

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Lincoln, NE

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