The CF Bells

08/25/2025

We’re proud to celebrate Nicole DeBraal, a parent of a teenager with cystic fibrosis, who received one of this year’s Impact Grants! Her program, Prioritizing You: A Wellness Program for Those Who Love Someone with CF, is a 12-week wellness coaching group designed to support the unique needs of CF caregivers and loved ones.

The program offers education, community, and practical tools to improve well-being, including strategies for managing stress, building healthy habits, regulating the nervous system, and more.

“It’s so easy to get lost in the needs of the people that we love, especially one of those people has unique needs, like CF,” Nicole said. “Prioritizing You is a group wellness program that I wish had existed when I was navigating the challenging seasons of loving my son who happens to have CF. It’s a space to pause, reconnect with yourself, and remember that your well-being matters, too.”

08/25/2025

This Book Week, incredible young CF warrior, Myla, brought the pages of A Girl Like No Other to life, dressing up as the brave, imaginative heroine of .author's picture book.

Inspired by Richelle’s daughter with cystic fibrosis, A Girl Like No Other celebrates every child with chronic illness, reminding them they’re free to dream big.

Myla’s costume is more than just dress-up. It’s a bold, beautiful tribute to resilience, creativity, and the communities that lift us up. She reminds us that even when life brings challenges, there’s room for sparkle, spirit, and storytelling.

Thank you, Myla, for sharing your light. And to Richelle, for writing a story that empowers young hearts to shine like no other.

08/25/2025

Race to $3,000: Win a Trek Bike & Gear!
Starting August 25, it’s a race for a reason! The first individual or team registered for the MA/RI CF Cycle for Life to raise $3,000 will win a Trek Bike prize package, including:
Trek bike
Helmet
Jersey & shorts
Water bottle rack
You’re not just chasing a prize; you’re riding toward a cure for cystic fibrosis.
Every dollar raised brings us closer to lifesaving treatments and a future free from CF.
Hurry! This challenge ends September 12. Winner announced September 16.
Start fundraising. Make an impact. Win big.

08/25/2025

Make your bank holiday weekend count with our flash sale!

We're offering 50% off entry to Walk, Jog, Run for CF at Harewood House on 11 October and the Royal Parks Half Marathon on 12 October.

Every step you take helps fund vital research and life-changing support for the 11,000+ people living with in the UK. So take on a challenge, enjoy the outdoors and be part of something that truly matters.

Hurry! Offer ends at 23:59 on Tuesday 26 August.

To take part in Walk, Jog, Run for CF at Harewood House, visit the link and enter the code 'HHBH50' at checkout:
➡️ https://ow.ly/TKhy50WKkNY

Get your place at Royal Parks Half Marathon at 50% off by visiting the link and enter the code 'RPHMBH50' at checkout:
➡️ https://ow.ly/j4K550WKkNZ

08/25/2025

📣 NEW CFRI RESOURCE: Self-Advocacy Toolkit!

This toolkit is designed to empower individuals with CF and their caregivers to confidently speak up and advocate for one's needs in the clinic setting and beyond.

Created with input from CFRI’s CF Adult Advisory Committee and Diversity and Inclusion Advisory Committee, the toolkit contains useful tips and information regarding patient rights, effective communication, clinic visit preparedness, insurance issues, and more!

👉🏼 Download Today: https://www.cfri.org/cystic-fibrosis-advocacy/resources-reports/

08/21/2025

This is an exciting time in cystic fibrosis clinical research. Not only are there several clinical trials of therapies to treat the underlying cause of CF, but there are also many trials to treat key symptoms of CF and improve quality of life. These include studies of antibiotics and anti-inflammato...

08/21/2025

Join us for ROSE UP, a nationwide fundraising event where participants choose their own way to show support.

08/21/2025

08/21/2025

Workshop: Mindfulness to Cope with Depression. CFRI is hosting quarterly workshops focused on aspects of mindfulness for those living with CF.

Tuesday, September 23, at 5pm PT (8pm ET)

We will explore useful mindfulness practices to help manage depression and sadness related to CF. Led by Julie Desch, MD, certified mindfulness instructor and person living with CF. There will be a short practice and room for questions.

Register Today: https://us02web.zoom.us/meeting/register/_qIySZUjTnmDgP2mXRlM-A #/registration

Sponsored by Viatris, Vertex Pharmaceuticals, and private donors.