05/09/2026
Just a quick update… apparently stopping everything and resting your mind and body helps. For those of you who know me, I have never been good at slowing down. taking time for myself and it took an enormous toll on every part of me. I have been out of work on leave since Christmas and this is the only thing I have changed.
This allowed me to sleep, a tremendous amount, attend more doctor appointment than I could ever imagine and sleep some more.
My latest lab work shows my decline has at least stabilized. While transplant is inevitable, the positive side is I am on the transplant list but inactive right now because I need to get worse before I get better. Double edge sword but the fact that I can hang on to my ‘native’ kidneys a little longer is a good thing.
Here is the hardest part, I love my work with every fiber of my being…but for now, I need to step away. I am taking next year off in hopes I can focus on what the doctors are telling me to do and breathe. There is so much that makes this decision difficult but the hardest part is pausing my passion for working with kids and walking away from one of the most incredible schools, staff and communities I have had the privilege to lead.
We can do hard things, right?!? Everything in life has a lesson, this one has been really hard to figure out and I’m sure this will be a big one…thank you to all who continue to support me through this experience, I could not do this alone.