EPILEPSY = Educate, Persevere, Inspire, Love, Enlighten, Prosper, Support, & Youth! Spreading Epilepsy Awareness through outreach, support, and music.
New York, NY
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My name is Tara Gibson and this event is inspired by my son, Maliq Fenelon, who suffers from Refractory Epilepsy which is a form of Epilepsy that is not controlled by seizure medications and is extremely difficult to treat in that there are usually no signs, triggers, nor is there a particular pattern of occurrence. His condition has made a significant impact on him cognitively, emotionally, and physically. The seizures cause an array of temporary and permanent damage not including the unmanageable side effects of seizure medications. My son has had 197 seizures in a year and a half which medications have yet to control and when medications lessen the quantity of seizures within a month, the side effects are still unbearable. Due to his condition being life threatening, his chances for SUDEP (Sudden Unexpected Death of Someone with Epilepsy) are higher. This obviously has taken a huge toll on me as his mother and his father and our family who fear for his life everyday. In addition, his condition has taken a toll on me in more ways than any parent can imagine having to physically handle him during a seizure, adjust scheduling so he is not left alone, and emotionally for feeling helpless. This is why I have decided to take a stand and be part of the solution rather than the problem. As a recording artist, radio host, and actress I have decided to utilize my roles in the Entertainment Industry and create SEIZE THE CURE EPILEPSY AWARENESS CONCERT & FORUM BX Series. Event which are held throughout the year are not only to touch on Epilepsy and the importance to find a cure, but provide support to the parents of children with Epilepsy with resources to assist financially, emotionally, and medically. Events and services provided by SEIZE THE CURE coincide with music and art in representation to music therapy in Epilepsy treatment. Support all children with Epilepsy. Support the parent/caregivers whose lives are severely altered in order to effectively and safely manage their child/ren with Epilepsy. Please be advised: Epilepsy does NOT discriminate and can strike at any age. Thank You all for who have been supporting. Stay tuned for updates on upcoming SEIZE THE CURE events.
