Deputy Dallas - Our Canavan Disease Warrior

Deputy Dallas - Our Canavan Disease Warrior This page is to highlight the life of "Deputy" Dallas. A beautiful and brave little boy spreading kindness and Canavan Disease awareness!
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Emma started 7th Grade today and looks so grown up and beautiful 🥰 She is also going to be playing Volleyball this year ...
09/01/2026

Emma started 7th Grade today and looks so grown up and beautiful 🥰 She is also going to be playing Volleyball this year and today is her first practice! She is so excited for Volleyball.

Dallas started his first day of Kindergarten! But school will look different for him this year because he will be homebound. We might still get him over to the school for some fun days and outdoor activities, but he will also have teachers coming out to the house every other week to do projects! And he still gets to hear and interact with his classmates on his little Chromebook! He really loved hearing all of his friends this morning 🥰 Yesterday we took him to the school for Picture Day and to meet his awesome Kindergarten teacher!

Deputy Dallas loved the Princeton Grass Drags 💙💙
08/30/2026

Deputy Dallas loved the Princeton Grass Drags 💙💙

Hi everyone! Sorry for not sharing much lately. After that person stole pictures and videos of Dallas and shared them on...
08/23/2026

Hi everyone! Sorry for not sharing much lately. After that person stole pictures and videos of Dallas and shared them on TikTok to collect fraudulent donations, I have been less excited to share whats going on. But I have good news!! After all of our advocating and endless reporting, TikTok has taken that page down and any IP address associated with it. So has PayPal and Spotfund. So THANK YOU for sticking by my side so relentlessly. It took a long time, but it is finally over 💖💪🙏 We fought that together and I couldn't have done it without so many of you! I will now have a copyright logo on every photo I share on his FB page!

I other news, Dallas is doing really good right now! But he is getting his 5yr molars so we are a bit fussy at times. Not constant pain. But uncomfy....This too shall pass 💖

Tonight, I am just going to share some past-due gratitude..... Dallas recently received the coolest, most thoughtful, and BY FAR the most meaningful gift he has ever received from our friend Dan, aka Mike Ehrmantraut. For those that don't know, Deputy Dallas is a HUGE fan of Live on Patrol and he is an Honorary lifelong member of the Live on Patrol "Backseaters" page. Which was started by our friend Dan/Mike. We love you Dano! And your letter and challenge coins are on full display and proudly framed and shared in our living room. (Make sure you look at the pictures to see how special this gift was) Our family feels so honored that you passed such an important part of our country's history on to Dallas.

I have another big post to make about the next big thing(s) happening in Dallas' life. Including school, his upcoming surgery in October, and another awesome fundraiser being held for Dallas by a local car club CarQueenz (check out their page for more!) But I will save that for it's own post tomorrow. I have lots more to share!! Very exciting things are happening! But I really want to wrap this post up by sharing the special gift we received from our friend Dano, and then a big huge photo dump of what Dallas has been up to the last month or two

💙

We love you all!

Look who is still awake and excited to be watching Live on Patrol 💙👮💙
08/08/2026

Look who is still awake and excited to be watching Live on Patrol 💙👮💙

Deputy Dallas got a new custom molded seat for his wheelchair today! He was a trooper through both of his long seating a...
08/04/2026

Deputy Dallas got a new custom molded seat for his wheelchair today! He was a trooper through both of his long seating appointments. They take foreverrrr. We left at 11:30am and just got home at 5:30pm. The last one was an 8hr appointment. A whole lot of sit and wait while they adjust. Watch Cartoons and Pavarotti. Then sit in the chair for 30 min, then check for pressure spots, then sit and wait some more while they make modifications, then sit in it for 30 more mins while they adjust here and trim there etc. But we did it!! And he looks soooo much more BIG and comfy in his new big boy seat 🥰🥰🥰

Deputy Dallas is excited to wear his new Police hat to his follow up appointment with the ENT Surgeon 😁
07/21/2026

Deputy Dallas is excited to wear his new Police hat to his follow up appointment with the ENT Surgeon 😁

Deputy Dallas got to celebrate the 90th Birthday of his GREAT Grandma Bunny Dahl Schuberg 🥳🥳🥳I am so happy we were able ...
07/20/2026

Deputy Dallas got to celebrate the 90th Birthday of his GREAT Grandma Bunny Dahl Schuberg 🥳🥳🥳

I am so happy we were able to make it! He had a really rough week and even went to the ER on Tuesday night for some IV fluids because he was dehydrated.

But grandma must have prayed EXTRA hard that we could be there because he turned a corner and did GREAT today!

WE LOVE YOU GRANDMA BUNNY!

I hate antibiotics! They have done a number on my poor baby's tummy. ENT told us to stop them yesterday after his mornin...
07/14/2026

I hate antibiotics! They have done a number on my poor baby's tummy. ENT told us to stop them yesterday after his morning dose even though his script says not to stop until Friday. But the damage has been done. He would be the happiest little guy in the world then 30min to an hour after getting a dose of augmentin he was crying, hyperventilating, and vomiting. Not to mention the antibiotics diarrhea. We took him to the clinic yesterday to check his electrolytes and and did an abdominal Xray to make sure it wasn't due to ileus or malpositioned j-tube. Those looked ok but he does have gaseous distention in his large intestine. Today I dropped off a stool sample to make sure he doesnt have C. Diff or any other GI bugs. I will say I dont think he has C. diff because it doesnt have that smell that has been burned into my nose hairs. But his tummy is definitely very upset. We also found out from the bronchoscopy that his lipid-laden macrophage index is 96 which is typically associated with chronic severe aspiration so I am not sure what we will do about that.

Right now Dallas is either really really happy, or really really unhappy.

Look who got to go home TODAY 😍😍😍He did great with surgery. His secretions are SO much more manageable but they do still...
07/11/2026

Look who got to go home TODAY 😍😍😍

He did great with surgery. His secretions are SO much more manageable but they do still get a little thick.

We are managing pain well. He will be on antibiotics for 7 days. He is having some mild fevers but that is to be expected. Still waiting on culture results from his bronchoscopy. And we are both SO happy we are able to help him recover from home 💙💙💙

We have been snuggled up on the couch watching Live on Patrol and they had so many prayers and kind words for our little Deputy tonight. Our backseater friends and the Ramsey County Sheriffs Office are simply the BEST!! I am thankful Pat did shout outs early because Dallas was still awake and got to hear them live tonight 😍

He just drifted off to sleep 😴

Snaggle-Tooth Dallas is doing GREAT😂😂😂😂We have already been able to stop the secretion medications! 😍
07/10/2026

Snaggle-Tooth Dallas is doing GREAT
😂😂😂😂

We have already been able to stop the secretion medications! 😍

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North Branch, MN

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