Baby Jon’s Journey

06/17/2026

As a parent of a medically complex child, this is heartbreaking and terrifying to me.
Children in the PICU are critically ill. Their conditions can change in seconds, and when those moments happen, they deserve to have a board-certified pediatric intensivist physically at their bedside, not available only through a screen.
This petition is NOT about closing pediatrics. The pediatric department and hospitalist team will continue caring for children who are appropriately admitted to their service. What is being lost are the in-person PICU physicians who provide specialized, life-saving care to the sickest children.
Our children are not a financial calculation. They are our sons, daughters, grandchildren, classmates, teammates, and friends. They deserve immediate access to the highest level of care when their lives are on the line.
Please take a moment to read, sign, and share this petition. Even if you never need the PICU, you would want it there if your child ever did.
Our kids deserve nothing less.

Maintain bedside Pediatric ICU Physicians at Community Medical Center

05/31/2026

Proud to be a Born Abel Friend of the Month for May 🩵😀

05/29/2026

Please consider donating to help our see sweet friend Kylie have the most beautiful funeral she deserves.

I am raising money to help give my two year old granddaughter, Kylie, the funeral she de… Dana Overfield needs your support for A Beautiful Farewell for Kylie

05/27/2026

05/26/2026

A little Jonny update 💙
Last week Jonny had his first appointment with the Rochester genetics team! This is a different team than his neurogenetics specialist in Rochester. First of all, they thought our little man was absolutely the cutest 🥹 They were wonderful and made us feel so heard.
After examining him, they told us he meets every physical marker for Russell-Silver Syndrome along with the developmental and internal symptoms. They were shocked that genetics in Buffalo had completely refused to test him for it. As they looked him over, they also pointed out several physical deformities we didn’t even realize were there, including that his little pinkies are deformed.
They didn’t waste any time and did bloodwork right there during his appointment to send out a genetic panel immediately. Jonny did AMAZING and didn’t cry one bit! They even got all three vials in one try, which was a huge relief because getting enough blood from him is usually difficult.
They also feel there is likely more going on genetically than Russell-Silver Syndrome alone, so they want to do additional testing in the future.
Jonny has lots of appointments coming up too! In June he has his autism evaluation, and his developmental doctor at Robert Warner is going to be part of the evaluation team since she has followed him since birth and has been waiting for him to reach the right developmental age for evaluation. He also has appointments with his neurogenetics specialist and pulmonologist, so we’ll be making another Rochester trip and staying overnight at the Ronald McDonald House. We also need to get him fitted for a new helmet ASAP because he outgrew his old one, and we’re working on scheduling preschool evaluations so he can hopefully start a special needs program this fall.
Our little guy continues to prove just how strong he is. Tiny, mighty, and stealing hearts everywhere he goes 💙

04/14/2026

Born Abel has done a lot for Baby Jon. Please take a minute to support them by clicking the link in their comments and voting for them.

02/27/2026

Baby Jon finally learned how to sign “more!” We’ve been working on this with his therapists for so long. So proud of him!!