PBC Awareness

06/03/2026

Who's up next??? We are looking for interviewees for our PBC Warrior YouTube series. Everyone has a story and can be an inspiration. We want to platform your experience for our PBC Awareness community. Reach out to us today! Send us a DM, and we will contact you with more details!

06/02/2026

June is National Cancer Survivors' Month! Recent studies show up to 16% cancer rates in PBC patients. Knowing the risks and recommendations is important for one's PBC health journey. Keep learning, keep living! We are all in this together!



https://www.mypbcteam.com/resources/primary-biliary-cholangitis-and-liver-cancer-is-there-a-risk

06/01/2026

Thank you, , for creating this resourceful infographic on PBC fatigue. So many in our community suffer from fatigue and lack the information to self-advocate. It is not "in your head." It's real and affects multiple aspects of life. Share this graphic with your circle as needed. Remember, you are not alone!

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05/29/2026

I learned a long time ago the wisest thing I can do is be on my own side, be an advocate for myself and others like me. ~ Maya Angelou

Bel Kambach advises asking questions and staying informed about PBC treatments. Learn more at myPBCteam: https://tinyurl.com/3pj9tabn

05/28/2026

If you have Primary Biliary Cholangitis (PBC), you may have heard of a similar-sounding liver condition called Primary Sclerosing Cholangitis (PSC). While both are autoimmune diseases that damage bile ducts and cause fatigue and itching, there's good news for PBC patients: PBC is actually more treatable.

The standard medication, Ursodeoxycholic acid (UDCA), has been proven to slow disease progression and improve survival in PBC – something it cannot do for PSC. Plus, PBC has a specific blood test (anti-mitochondrial antibodies found in over 95% of cases), making the diagnosis clearer.

So while a PBC diagnosis is serious, know that effective treatment exists and outcomes are generally better than with other cholangitis conditions. Work with your hepatologist and stay hopeful.

Primary biliary cholangitis (PBC) and primary sclerosing cholangitis (PSC) are similar in some ways

05/27/2026

Newly diagnosed with PBC and already feeling exhausted? You’re not alone. This article explains that PBC-related fatigue starts in both your brain and your muscles. By identifying “energy thieves,” you can genuinely improve your quality of life. Talk to your doctor about treating underlying issues and adjusting medications, because fatigue doesn’t always match your liver test results, but it can be managed.



https://www.everydayhealth.com/liver-disease/what-causes-primary-biliary-cholangitis-fatigue/

05/26/2026

Sandra Watson was diagnosed at 39 with Primary Biliary Cholangitis (PBC). She faced fatigue, night sweats, jaundice, and the "dreaded itch" that no medication seemed to fix.

Then in 2016, Sandra joined a clinical trial for a new cell therapy – and it changed everything.

How it works (in plain terms): Doctors took immune cells from Sandra's own blood and transformed them into "cleanup cells" called macrophages. Think of them as tiny vacuum cleaners that gobble up damaged or infected cells in your liver. These trained cells were then re-injected back into her body.

The result: Ten years later, Sandra is still transplant-free. The terrible itch disappeared and hasn't come back. No more jaundice. Her liver tests have remained stable without worsening for 22 years since diagnosis and a full decade after just one round of treatment.

For anyone suffering with cholestatic itch (that relentless, sleep-ruining scratching), this therapy offers hope for long-term relief from a single treatment. Unlike daily pills, cell therapy could potentially "retrain" your immune system for years. While not yet widely available, successful trials like Sandra's pave the way for future FDA-approved options.

If you have PBC and standard medications aren't controlling your itch or disease progression, ask your hepatologist about emerging cell therapy trials. Sandra's 10 years of freedom could be yours one day.

New cell therapy has been a godsend for me, says liver disease sufferer - Sandra Watson suffers from primary biliary cholangitis which causes chronic itching and can lead to liver failure.

05/25/2026

Today, we pause to remember our fellow brothers and sisters who made the ultimate sacrifice for our country. Their lives will never be forgotten.

05/22/2026

Lorna, a 62-year-old grandmother from Slough, has Primary Biliary Cholangitis (PBC), an autoimmune liver disease where the body slowly attacks its own bile ducts. Left untreated, it can lead to irreversible scarring and even liver failure.

She tried the standard PBC medication (UDCA), but her blood tests kept getting worse. She was scared.

Then she joined a clinical trial for a new once-daily pill (name not yet released). For the first year, she didn't know if she was getting the real drug or a placebo. But her liver markers started improving anyway.

Now, after several years on the actual medication, Lorna's blood levels have changed so dramatically that doctors tell her she has a healthy liver.

"That worry has been taken away. I'm a different person. I don't give my condition a thought anymore."

How does this benefit PBC patients?

This real-life story proves that new treatments beyond UDCA are in the pipeline – and they work. For the 40–50% of PBC patients who don't respond fully to standard therapy, this offers genuine hope. A simple daily tablet could stop disease progression, prevent liver failure, and let you stop worrying about your liver.

If you're struggling with PBC, ask your hepatologist about clinical trial options. Lorna's story could be your story.

A Slough grandmother living with a condition that can cause liver failure has a new lease of life after a clinical trial has greatly improved her prospects.

05/21/2026

Source: https://liverdiseasenews.com/news/itching-drives-healthcare-costs-higher-pbc-patients-study-finds/