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10/07/2026

Sickle cell pain does not have one look—and knowing which treatment worked before is lived experience, not proof of drug seeking.

In one U.S. study, nearly half of participants with SCD reporting provider-related barriers said they had been accused of drug seeking.

Patient safety matters, but caution cannot become automatic suspicion. Check the individualized care plan. Listen to the patient. Assess before assuming.

Warriors: What would have helped you feel heard during a pain crisis?

09/18/2026

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09/02/2026

September is Sickle Cell Awareness Month. 🩸

But this month isn't just about awareness. It's also about advocacy.

The sickle cell community has a long history of advocates fighting for better education, research, treatment and recognition. That same responsibility now belongs to our generation.

As a sickle cell warrior, advocacy has helped me embrace my journey, educate others and realize that sharing our experiences can empower both the person listening and the person telling the story.

You don't need a big platform to make an impact. Share your experience. Educate someone. Support a sickle cell organization. Attend an event. Promote a blood drive. Correct misinformation.

And especially to my male warriors: we need your stories too.

What are YOU doing for Sickle Cell Awareness Month this September? Drop your events, advocacy plans and ideas below. ❤️

08/26/2026

Sickle cell fatigue is not laziness.

A warrior can be motivated, ambitious and mentally prepared—while still being too physically exhausted to function. Sickle cells break down much faster than normal red blood cells, causing anemia that can leave the body tired and low on energy.

Sometimes the desire is there, but the body simply isn’t cooperating.

Has your sickle cell fatigue ever been mistaken for laziness?

08/21/2026

Meet Dr. Marilyn Hughes Gaston, a sickle cell research pioneer whose landmark 1986 study showed that preventive penicillin reduced pneumococcal infections by 84% in young children with sickle cell anemia.

Her research helped advance newborn screening and early preventive care. Did you know her name before today? Share her story.

08/19/2026

What does parenthood look like when you’re living with sickle cell disease?

As a man with sickle cell, my journey to fatherhood included IVF, genetic education, and learning how important it is to know your genotype and understand the reproductive options available to you.

My son has sickle cell trait, and as he grows, I want him to understand his status, his genetics, and how to advocate for himself.

Fatherhood has also brought me a level of peace and purpose that I didn’t expect.

Parents with sickle cell disease: Has becoming a parent improved your health, challenged it, or changed how you manage your condition?

Let’s talk about it. 👇🏾

08/12/2026

Traveling With Sickle Cell: Post-Travel Fatigue Is Real

Traveling with sickle cell disease can come with challenges that people don’t always see.

Dehydration, disrupted sleep, increased physical activity, temperature changes, flights, and exposure to more people can all add stress to the body. Sometimes the effects don’t fully hit until the vacation is over and you finally have a chance to rest.

For sickle cell warriors, recovery after traveling can be just as important as preparing for the trip.

We deserve to travel, enjoy life, and make memories. We also have to listen to our bodies and give ourselves permission to recover.

Do you experience more sickle cell fatigue during your trip or after you return home?

07/08/2026

Your sickle cell story is powerful, but community is built when we actually show up for each other.

If you’re a sickle cell warrior, caregiver, advocate, or supporter, this is your invitation to attend the 13th Annual Sickle Cell Warriors Convention, Warriors Con, happening July 22–26 in Los Angeles, California.

This is more than a convention. It’s a space to connect, learn, heal, share stories, build relationships, and be reminded that we are not fighting this journey alone.

I’m also excited to share that I’ll be serving as a Warriors Con influencer for the third consecutive year. So if you see me there, come talk to me. Whether you want to share your story, start creating advocacy content, or learn how to use your platform to build community, I’d love to connect with you.

Use my promo code WC2026HWS for 20% off your registration.

Get in the room. Build your community. I’ll see you at Warriors Con.





06/19/2026

World Sickle Cell Day is observed every year on June 19 to raise awareness, support warriors and families, encourage advocacy, and highlight the importance of blood donation.

This year, let’s do more than wear red. Let’s educate, show up, donate, advocate, and shine the light on sickle cell disease.

Comment below: What will you do today to push sickle cell awareness forward?

06/10/2026

Ryan Clark’s sickle cell trait story is a reminder that awareness can save lives.

Sickle cell trait is not the same as sickle cell disease, but under extreme conditions like high altitude, severe dehydration, low oxygen, or intense physical activity, complications can happen. Ryan’s experience helped bring national attention to why athlete safety, screening, education, and proper precautions matter.

Thank you, Ryan Clark, for using your platform to shine light on sickle cell and for helping push this conversation forward in sports and health advocacy.

Let’s talk: Were you already aware of the risks connected to sickle cell trait and athletics?

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