Sawyer’s Race for Research

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Sawyer’s Race for Research

Meet Sawyer! This 9 year old is full of joy and he needs your support to help him live a long life!

05/29/2026

This cutie had his Neurology check up today and his neuropathy has NOT progressed anymore at this time!

Praise God!! 🙏🏼🙌🏼

Also- We pass this pink elephant every time we go, so why not stop and take a picture on this good day?! 😂

05/11/2026

Thank you Maddie's Spark Foundation ☺️

03/16/2026

💙Sawyer had his first sleepover! 💙

When Sawyer was diagnosed.. simple things went through our minds like..

“Will he ever be able to have a sleepover?”
(I even called my bestie crying at like 11pm about it 😂)

But what we didn’t know then was that God was preparing an army of sweet friends (and their parents!) for Sawyer. Who wouldn’t be afraid to have Sawyer stay and who wouldn’t bat an eye caring for him through the night and managing his meds!

Also, I want to take a moment and brag on sweet JonClayton.. his momma told me the other day, when she asked him what he would do with a pot of gold, he said.. “I’d buy us all World Cup tickets, and then give the rest to TFP for Sawyer.” 🥹

Thank you, LORD for these special sweet friendships Sawyer has been blessed with! And thank you for letting this warrior do normal kid things 🥰

(JonClayton wants to!)

02/28/2026

This warrior is rare and perfect and wonderfully made by our LORD and SAVIOR… and his is defying the odds and working as hard as he can to stay strong!

So proud to be his momma to know all he fights daily just to be “normal”.

Please keep praying for my boy!

02/22/2026

We are SO blessed to have been one of the beneficiaries of the Mason Cup this past fall. 🏆🏌️‍♂️

These are the quiet, unexpected blessings from God that show up right when you need them most. 🤍

It’s been 5 years since this warrior was diagnosed with TFP. We didn’t know if our boy would be here today. With levels as severe as his — but here he is.
✨ Defying the odds and doing well! ✨

AND surrounded by an army of supporters determined to cure TFP for him and every child born with it. 💪

Because of YOU, Sawyer’s Race for Research hit
🎉 $99,422 in 2025 — our most successful year yet! 🎉

Praise God for His blessings. 🙏 Thank you all! Please help us keep fighting!

02/10/2026

😎 Eye check up with Dr. Reddy yesterday and we’re pretty sure he looked into his soul with those dilated eyes. 😆

But these baby blues are still doing well! Praise the LORD!

02/02/2026

February is Rare Disease Month! Here’s a few of our rare but mighty TFP zebra warriors! 🦓💪🦓

To those who don’t know or are new here, TFP stands for mitochondrial trifunctional protein deficiency. This disease is a fatty acid oxidation disorder that prevents the body from converting fats into energy → It affects the entire body, *currently has NO cure*, and no known living cases beyond age 32. There are less than 100 cases worldwide. Yes - you read correctly. LESS THAN 100. WORLDWIDE. We have been honored to connect with other TFP families across the world, spreading awareness about Sawyer’s story and helping fellow rare zebras get awareness and potential treatment options they desperately need and deserve. So this month, please take a minute to share Sawyer’s story and, if you feel inclined, donate to Sawyer’s Race for Research so we can help give him and kids like him a cure.

ALL proceeds go to TFP Research!

To make a donation, follow the link and click donate:
https://runsignup.com/Race/KY/ParkCity/RuntheMaple

12/25/2025

Merry Christmas to all and to all a GOOD night! 🎄🎅🏻🎁 Sending love to all those who are spending their Christmas in maybe ways they didn’t foresee. We are so grateful that we are home this Christmas and humbled by memories of when we weren’t. Sending light, love, and warmth to you all! ✨

Here’s to drifting into 2026 🏎️💨 😎

12/20/2025

A day in the life of TFP…

In the chaos of Christmas parties, packing to leave town, and getting our house ready to show, they call me that Sawyer had started “going at both ends.” 😭

Once I got him home and we started prepping for the Vanderbilt run, the doctors asked us to hold off and try to medicate to stop the puking while keeping him hydrated, while he continued on the “other end”.

We were one puke and one p**p away from making the dash… and then he started perking up and tolerated a small dose of his Dojolvi. Praise God! 🙏🏼

We hydrated, fed, and medicated every 2–3 hours through the night, and this morning got another dose in. Please pray we’re on the upward swing and can avoid the hospital.

❤️ Blessings:
• A school and friends who get how serious this is

• Taylor snagging the last flight home on one of the busiest travel days of the year

• ZOFRAN

• Family ready to jump in and change plans.

➡️• And realizing Sawyer’s emergency clothes are too small… because it’s been so long since he’s been admitted 🥹

Thank you for your prayers. We’re so grateful God is protecting Sawyer. 🤍

Address

1 Jagni Loop
Park City, KY
42160

Telephone

+16158098431

Website

http://SawyersRaceforResearch.com/

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