Emma's fight with Biliary Atresia and life with her new liver

Emma's fight with Biliary Atresia and life with her new liver This page is dedicated to Emma's journey with Biliary Atresia. We will use this page to provide health updates and any upcoming fundraising events.

Feel free to post positive thoughts for Emma and her family or any questions you may have regarding Emma.

06/11/2026

Emma is continuing to thrive! She had a Drs appointment today and she is 1% in height and 99% in BMI. Girl is short and chunky 🤣 her labs look great and she won’t have to see her Drs for 3 weeks! Thank you for all of the love and prayers for Emma. God is truly so good💚

06/05/2026

Emma is starting to move💚 She had a Drs appointment yesterday and her numbers all still look great! GGT is down to 70. She is now taking 12 doses of medications. Baby girl is doing so good!💚

05/29/2026

Emma and Daddy are doing great! Emma had a Drs appointment today and they said it doesn’t get much better than Emma! GGT is still coming down and is now at 86! She is doing amazing💚 Thank you for all of the love and prayers for our sweet girl!

No more bandage on Emma’s incision means she got to have a real bath last night! Yay! She is now at 14 doses of medicat...
05/26/2026

No more bandage on Emma’s incision means she got to have a real bath last night! Yay! She is now at 14 doses of medication. Her NG tube is here to stay for awhile, she needs to keep gaining weight and currently isn’t interested in taking her formula by mouth. The NG tube assures she’s getting the nutrients she needs and makes the 14 doses a whole lot easier on Emma and Mama! We are being extra careful with germs! No kissing allowed and no colds or sickness allowed around Emma. She’s on immunosuppressant drugs which makes her more susceptible to illness and we want to stay out of the hospital at all costs! Our girl is still doing great we are just following all of the precautions set by her medical team 💚

05/18/2026

This girl is putting her new liver to work! She is on the move! She had her second follow up today and her numbers are looking fabulous! AST and ALT are NORMAL! GGT is continuing to come down and is now in the 200’s! Her doses have been lowered to 16! She is doing extremely well! Thank you for the continued love and prayers💚

Emma is thriving at home! She had her first follow up today and her labs look great! GGT is still trending down! She’s...
05/14/2026

Emma is thriving at home! She had her first follow up today and her labs look great! GGT is still trending down! She’s on lots of medications but the Dr took away two doses today bringing it to 20 doses a day 😬 she is slowly being weened off her pain meds so 3 more days of those and then those every 6 hour doses will be gone. Still throwing up after some of the meds and pooping through clothes but she is doing great and we are all so happy to have her home 💚

This girl is busting out of the hospital! For the first time in 2 weeks she’s wearing clothes too 💚 Thank you to everyo...
05/12/2026

This girl is busting out of the hospital! For the first time in 2 weeks she’s wearing clothes too 💚 Thank you to everyone for your prayers, love, and support of Emma! We are so blessed how awesome she is doing after transplant! This girl and her Mommy can’t wait to go home, and just in time for her big brother’s birthday tomorrow 💚

05/11/2026

This little lady is all smiles today! She’s going home tomorrow! GGT still going down and her AST is normal💚

05/11/2026

Asking for prayers today for Simon💚 We met little Simon in February, she also has biliary atresia, and her transplant surgery is today! She is at the same hospital as Emma and we are praying hard for her surgery to be complication free today 💚 Go Simon! 💚

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Peyton, CO
80831

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