Emma's fight with Biliary Atresia and life with her new liver

Emma's fight with Biliary Atresia and life with her new liver This page is dedicated to Emma's journey with Biliary Atresia. We will use this page to provide health updates and any upcoming fundraising events.

Feel free to post positive thoughts for Emma and her family or any questions you may have regarding Emma.

Another great lab day for Emma! Note from her Dr. “Emma's labs are perfect and her Tacro level is steady at 7.7. No chan...
09/03/2026

Another great lab day for Emma!
Note from her Dr. “Emma's labs are perfect and her Tacro level is steady at 7.7. No changes to Tacro dose and we're going to wean her prednisoLONE again.
In 2 weeks on the 9/15/26 go down to giving it every other day and then repeat labs before her next appointment on Thursday 10/1/26. She's doing so great we don't need labs again for a month!!”
Emma continues to do great! She is talking and repeating everything, her personality shines and she is just the sweetest little girl 💚 We are so blessed 💚

Another good day after lab tests 💚 Emma’s tests all came back great! Made a small adjustment to her Tacro (anti rejectio...
08/20/2026

Another good day after lab tests 💚 Emma’s tests all came back great! Made a small adjustment to her Tacro (anti rejection med), she’s growing so they raised her dose to keep her in target range. They are tapering down her prednisone and took away one dose of her Nystatin! Our girl is thriving every day! That sweet smile and her little personality are just the sweetest ♥️

08/09/2026

Today was an emotionally heartwarming day for our family. Emma was blessed to become a part of Austin Worbington’s legacy. The Worbington’s generously donated a hardship scholarship to Emma to go towards her medical bills in Austin’s name. We met the Worbington’s when Tyler and Cameron both played football with Austin at Falcon High. He was a mentor and friend on and off the field to our boys. Austin was a kind and funny young man with the most boisterous fun loving personality and a huge heart. He lived life to the fullest everyday and he loved his family fiercely. Seeing his memory stay alive through the eyes of his family, friends, and this community is incredibly heartwarming. Austin is loved by so many and has left his mark on each of our hearts! This year marks 10 years since he was taken tragically from this world. His family has created a legacy for him through the Austin Worbington foundation. Each year they have hosted a golf tournament raising money for hardship and athletic scholarships in Austin’s name. This year we were blessed with a gift for Emma from Austin. It is an honor to have Emma be a part of Austin’s legacy. We are so grateful to the Worbington’s for the love shown to Emma, Abbie, and Kyle. Words cannot express how truly thankful we are for this generous gift. This will go a long way in helping relieve the financial impact of Emma’s transplant and liver disease. Thank you! Thank you! Thank you! to Jamie and Doyle Worbington! We love you both, and admire you for keeping Austin’s memory alive and strong and for sharing him with all of those who adored him! You’ve created a beautiful loving legacy for Austin that he would be so proud of! 💚 Worby Strong 💚

This little lady had her 3 month post transplant check up today! Weighing in at a whopping 22.9 pounds! She is growing b...
08/06/2026

This little lady had her 3 month post transplant check up today! Weighing in at a whopping 22.9 pounds! She is growing beautifully and getting lots of rolls! Our sweet little chunk is full of energy, joy, eating everything in sight, and living her best life💚 Her numbers look amazing and she is continuing to thrive! Her personality is so sweet, and she has found her voice with her high pitched screams of joy! Nothing is holding her back!She’s our miracle girl! 💚

06/11/2026

Emma is continuing to thrive! She had a Drs appointment today and she is 1% in height and 99% in BMI. Girl is short and chunky 🤣 her labs look great and she won’t have to see her Drs for 3 weeks! Thank you for all of the love and prayers for Emma. God is truly so good💚

06/05/2026

Emma is starting to move💚 She had a Drs appointment yesterday and her numbers all still look great! GGT is down to 70. She is now taking 12 doses of medications. Baby girl is doing so good!💚

05/29/2026

Emma and Daddy are doing great! Emma had a Drs appointment today and they said it doesn’t get much better than Emma! GGT is still coming down and is now at 86! She is doing amazing💚 Thank you for all of the love and prayers for our sweet girl!

No more bandage on Emma’s incision means she got to have a real bath last night!  Yay! She is now at 14 doses of medicat...
05/26/2026

No more bandage on Emma’s incision means she got to have a real bath last night! Yay! She is now at 14 doses of medication. Her NG tube is here to stay for awhile, she needs to keep gaining weight and currently isn’t interested in taking her formula by mouth. The NG tube assures she’s getting the nutrients she needs and makes the 14 doses a whole lot easier on Emma and Mama! We are being extra careful with germs! No kissing allowed and no colds or sickness allowed around Emma. She’s on immunosuppressant drugs which makes her more susceptible to illness and we want to stay out of the hospital at all costs! Our girl is still doing great we are just following all of the precautions set by her medical team 💚

05/18/2026

This girl is putting her new liver to work! She is on the move! She had her second follow up today and her numbers are looking fabulous! AST and ALT are NORMAL! GGT is continuing to come down and is now in the 200’s! Her doses have been lowered to 16! She is doing extremely well! Thank you for the continued love and prayers💚

Emma is thriving at home!  She had her first follow up today and her labs look great!  GGT is still trending down! She’s...
05/14/2026

Emma is thriving at home! She had her first follow up today and her labs look great! GGT is still trending down! She’s on lots of medications but the Dr took away two doses today bringing it to 20 doses a day 😬 she is slowly being weened off her pain meds so 3 more days of those and then those every 6 hour doses will be gone. Still throwing up after some of the meds and pooping through clothes but she is doing great and we are all so happy to have her home 💚

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