Beyond Celiac

Beyond Celiac unites with patients and partners to drive celiac disease diagnosis, advance research and accelerate the discovery of new treatments and a cure.
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www.BeyondCeliac.org For more than 15 years, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. By engaging with the top scientists in the field, awarding research grants, and supporting the community, Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear – a world Beyond Celiac.

06/10/2026

Reach Beyond Celiac Ambassador Grace shares about her experience with celiac disease!

If you are interested in becoming a Reach Beyond Celiac Ambassador, get connected at https://hubs.li/Q04crBLC0 🧡

06/08/2026

Science can’t fix what it doesn’t fully understand. Researchers have the tools to develop new treatments, but your lived experience is the essential evidence needed to prove why a gluten-free diet isn't enough.

Help us show the true impact of this condition by taking our 2026 Burden of Disease survey. https://hubs.li/Q04kj5X90

Your voice provides the urgency science needs. Don't let your bad days go to waste—turn them into data.

06/05/2026

"Thank you everyone for a successful event! I am truly honored to continue working alongside such an exceptional team, and deeply grateful for the leadership and support of the Board of Directors and the Beyond Celiac team." - Alice Bast

Whether you supported from near or far, thank you to everyone who made this year’s Evening Beyond Celiac event a smashing success! Stay tuned for more photos and our final fundraising count - coming soon!

06/01/2026

That's a wrap on Celiac Awareness Month 2026! ⭐ From fun fundraisers to community connections to dazzling displays, this May was a month to remember. From all of us at Beyond Celiac, thank you for educating, advocating, and awareness-raising with us! 💚

05/29/2026

To move promising new drugs through the final hurdles of development, the FDA and pharmaceutical companies need undeniable evidence that celiac disease and the gluten-free diet are burdensome enough to warrant more treatment options.

To provide information, Beyond Celiac has opened our 2026 Burden of Disease survey. We ask everyone with celiac disease to take it alongside two friends who are not gluten-free.

Both groups of people are extremely important to show the challenges of a gluten-free diet as a lifelong treatment.

Your daily challenges can be turned into data that pushes us closer to a cure. Get started now ➡️ https://hubs.li/Q04jdNgn0

05/19/2026

Celiac disease isn't a food intolerance; for us, ingesting gluten can damage the small intestine and set off a host of symptoms.

Unfortunately, it can be tough to avoid gluten—it's like avoiding glitter! Check out our top tips for reducing exposure ⬇️

Sponsored by Takeda 💚

05/17/2026

"Awareness begins with just one person." 🤝
Spread the word ➡️ spread the joy!

Check out the rest of this insightful podcast with Valerie Kraft and Cassin, available on our website or wherever you get your podcasts.

You can support Cassin's art and fundraising here: https://beyondceliac.funraise.org/fundraiser/cassin

Pictured: An elementary-aged kid is alone in a lunch room, then several elementary-aged kids stand in a line smiling with food on their lunch trays.

Audio: "At the beginning when Westley was diagnosed, he had to go through like a separate line at school to get different food, and I just didn't want people to see him as that being a bad thing, but as a good thing to learn from and build off of. So I would just say to raise awareness and not to be worried about everything that's going to happen."

05/15/2026

❌ No double dippers please!❌

When someone spreads butter on bread and then uses the same knife to get more, it can leave tiny crumbs in the butter—unsafe for folks with celiac disease, and tough to truly separate, like picking glitter out of glue.

Protect loved ones with celiac disease by keeping separate jars of condiments like mayo and peanut butter, or buying squeeze bottles of sauces like ketchup and mustard.

Sponsored by Takeda 💚

05/11/2026

Want to help us research an investigational medication for celiac disease? Consider joining a celiac disease clinical trial that could advance medicine and further support people like you. The DAISY clinical research study is enrolling now. 💚

You may be eligible to take part in the DAISY Study if you:
🌟are 18–75 years of age
🌟have a diagnosis of celiac disease with intestinal damage
🌟still experience symptoms of celiac disease despite attempting a gluten-free diet for at least 1 year.

DAISY Study enrolling now! Find out if you qualify: https://hubs.li/Q048FY1X0

05/07/2026

Likening gluten to glitter is a great way to help someone understand just how easily gluten can spread across lots of different surfaces. It makes it easier to understand why people with celiac disease can feel so exhausted thinking about food and food safety all the time, and how simple practices, like washing hands frequently with soap and water, can go a long way in helping people with celiac stay safe.

This post was sponsored by Takeda 💚

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Philadelphia, PA

Telephone

+12153251306

Website

http://www.BeyondCeliac.org/

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