09/15/2026
It's been a long, exhausting, emotional day today. I am gonna cut right to the chase and tell you guys, Ryder is in the ICU right now.
I mentioned Ryder has had a cold this week but it seemed mild and since last Wednesday, Jason and I have been strictly watching his temperature nearly every hour on the hour and keeping an eye for any type of cough. He's done great, until today.
We were scheduled to come in for a spinal and to start his blinatumomab (immunotherapy). I had a feeling with his cold that his labs weren't going to be good enough and we were going to be sent home, but to my surprise, labs looked great. I told them I was a little uneasy about even doing to spinal because he was sick, but they reassured me that lungs sounded fine and labs were good so we were going to continue. I even went over my concerns with anesthesia and she agreed that lungs sounded great and she didn't see any reason to delay his spinal.
Ryder was taken back around 1:48 and by 2:50 I knew something was wrong. Spinals are about 15 minutes not an hour. They came out to speak to me and tell me that during the procedure he vomited and that they had to suction him and get him calmly breathing again and comfortable.
Not long after I was called back, Ryder woke up nearly screaming with a very horse voice, barky cough, and couldn't keep his oxygen stable. He then started full body shivering. Shivering like I've never seen before, and a fever that went to 102 very quick! They got a chest X-ray, and at the moment he is being treated for aspiration pneumonia.
He was fine before he went into his procedure, and now he's got an oxygen mask on at 15L and he is terrified to take it off because he says he can't breathe. He screamed out to the nurse In post op, that he didn't want to die, that he couldn't breathe. One of the most terrifying moments I've ever had to witness. I've told you guys from the start, I'm not going to sugar coat anything, and give you guys all the raw and ugly of this horrible nightmare. He has coughed up some blood a few times and it sounds like his chest of just full of gunk. Who knows how much he aspirated. Theyve got him started on two different antibiotics at the moment, until blood cultures come back with something bacterial or not.
Please everyone pray for my baby boy. He has enough going on and my momma heart can't tolerate any more of this. Please pray for our family as I'm the only one here with Ryder. The big kids and Dad are at home worried sick about him, while having to get up in the morning for school and Jason has to go to work, and be there for the big kids because the bills don't stop adding up whether your kid is in the ICU or not.