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Ezra’s Heart Adventure

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Portland, OR
Ezra’s Heart Adventure

A look into Ezras adventures with HLHS and CDLS

05/21/2026

Ezra update:

He’s doing well. Responding to antibiotics, steroids, aggressive breathing treatments, and has tolerated coming off high flow for 24 hours now.
He’s still tired and a bit cranky, but we’re starting to see him come back to himself a bit more. He is so incredibly tough. 💜

Again, no obligation. We could just use some help while he’s inpatient. Thank you so much to those who have shared and sent some help.
Cashapp: $andraxcass
Venmo: $Andra-BL-4

05/19/2026

Poor Ez is in the hospital with pneumonia again after RSV and other random illnesses. Sunday, we spent the night in the PICU. His breathing was extremely labored; he was gulping for air. We brought him in, and he was put on high-flow oxygen immediately, and we started breathing treatments. He needed about eight back-to-back doses and a dose of steroids to be able to relax a little. He was stepped down to the PACU Monday evening, with minor improvements; his breathing is comfortable. He is able to rest and move secretions now. Please keep us in your thoughts and prayers. We are looking at a week or two hospital stay.

No obligation, but anything helps. Mom & dad are both missing work right now and FMLA only helps so much.

Cashapp: $andraxcass
Venmo: -BL-4

01/20/2026

Look at this guy smashing it in PT today 💪🏼💜

01/12/2026

To have siblings and cousins who love you and include you has to be a great feeling. I can tell it makes ezra happy by his expression and the laughing.

01/08/2026

Ezra’s reel about physical therapy has gained a lot of traction randomly and idk where tf these people came from 😂 jfc lol

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