Treating Corticobasal Syndrome - CBS

08/09/2023

If anyone with Corticobasal Syndrome or PSP was in the United States military, you need to see if the PACT-Act applies to you. If you are unsure, file the “intent to file” form, which will preserve your claim date back to August 2022.

Want to File a PACT Act Claim? Do It by August 9. Here's Why.
https://www.military.com/daily-news/2023/08/04/want-file-pact-act-claim-do-it-august-9-heres-why.html

https://www.va.gov/resources/the-pact-act-and-your-va-benefits/

The PACT Act is a new law that expands VA health care and benefits for Veterans exposed to burn pits, Agent Orange, and other toxic substances. The PACT Act adds to the list of health conditions that we assume (or “presume”) are caused by exposure to these substances. This law helps us provide g...

11/12/2022

Please share this story on your social media sites. Our goal is that Biogen would start manufacturing Gosuranemab again or allow another company to do so.

My name is Chavonne Sladek, and I would like to share with you my husband, Don Sladek, and Tom and Wendy Thompson. Their Military Service and Civilian Work Careers Don served honorably in the U.

10/31/2022

We are hopeful the PACT-Act will be the catalyst to change the way neurodegenerative disorders are researched, funded, and treated for all patients. We believe ’s in coordination with clinical care should be reevaluated.

10/31/2022

So often, patients with Corticobasal Syndrome have difficulty with innovative problem-solving. We believe Biogen's Gosuranemab and Don's overall care plan with his neurologist have allowed him to function at this level. Don is in year 8 of this disease, and we are still finding joy in the simple pleasures of pumpkin carving.

10/31/2022

We are excited to share Don's journey again. Please check back with us as we share his story and hopefully offer hope to other patients and their families with Corticobasal Syndrome.

06/21/2021

7 years ago on Father’s Day, Don fell with a resounding thud that would forever change his life and eventually lead to a diagnosis of . The prognosis was bleak. We were fortunate to be able to enroll in UCSF’s trial with ’s . The medication may not be a cure, but it has vastly improved the quality of his life. We would like to send our love to all the fathers who are scientists, doctors, patients, caregivers, families and friends. Happy Father’s Day!

05/24/2021

https://gallagher.house.gov/media/press-releases/gallagher-colleagues-introduce-bipartisan-promising-pathways-act

WASHINGTON, D.C. — Rep. Mike Gallagher (R-WI) today joined Reps. Mike Quigley (D-IL), Bruce Westerman (R-AR), and Eric Swalwell (D-CA) in introducing the bipartisan, bicameral Promising Pathways Act. The bill would create a means for FDA to streamline provisional approval for drugs that may treat ...

05/16/2021

If you know any NFL players, please have them participate!

A new study led by Boston University School of Medicine and UCSF researchers has been awarded a $460,000 grant by the National Institute of Neurological Disorders and Stroke, which is part of the National Institutes of Health (NIH), to study the effectiveness of brain imaging in hopes of detecting Chronic Traumatic Encephalopathy (CTE) in living people. Currently, CTE can only be diagnosed after death. The Concussion Legacy Foundation is leading recruiting for the FIND-CTE study.

Check out this flyer for more information and to see if you qualify for the study. If you are interested and think you might be eligible, contact Karen Smith at [email protected] if you’d like to be scanned at the University of California, San Francisco or Julia Culhane at [email protected] to participate at Boston University.

04/21/2021

Frontotemporal dementia (FTD) is a progressive, neurodegenerative condition. It is the most common cause of dementia under age 60 years. FTD generally impacts the parts of the brain involved with behavior, language and executive functioning (planning, organization). Other areas can be impacted, incl...

03/01/2021

The BRAIN Conference 2021 is a conference to aid the Guarantors of BRAIN's mission to promote teaching, education, and neurological research

10/31/2020

Rocks