The ROS1ders

Public page of The ROS1ders, a global group of people living with ROS1+ cancer Donate on Facebook to ROS1ders, Inc.

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06/24/2026

🌟 Keynote Speaker Announcement! 🌟

The ROS1ders are thrilled to announce that Dr. Jessica Lin will be the keynote speaker at the 2026 ROS1ders PRIME Summit in Boston!

Dr. Lin is a thoracic oncologist and clinical investigator at Mass General Cancer Center. Her work focuses on targeted therapies, clinical trials, drug resistance, biomarkers, and molecularly defined lung cancers — including ROS1+ cancer.

The PRIME Summit — Patient and Researcher Interaction for Mutual Education — brings together ROS1+ cancer patients, caregivers, researchers, clinicians, and advocates to learn from one another and help move ROS1 research forward.

Dr. Lin will give the keynote address and also appear on the physician panel, where she and other ROS1+ experts will discuss important questions for ROS1+ cancer patients, including questions from attendees at the Summit.

If you are living with ROS1+ cancer, caring for someone who is, researching ROS1, or supporting this community, we hope you will join us August 13-15th in Boston.

✨ Early bird registration pricing is available through the end of June.
Register here: https://ros1ders.regfox.com/prime-summit-2026

✈️ Travel scholarship applications for up to $500 in travel costs are open through June 25. Recipients will be notified by June 30. Scholarship recipients must attend the conference and stay in the co .

Apply here: https://form.jotform.com/CalmaCompany/travel-scholarship-application

06/17/2026

Science is moving. Let’s understand it together.

One of the goals of the PRIME Summit is to help our community better understand the science behind ROS1+ cancer.

Research can feel overwhelming when it includes gene fusions, resistance mutations, next-generation therapies, brain metastases, clinical trials, and lab-based discoveries. At the Summit, we work to bridge that gap by bringing researchers, clinicians, and patients into shared conversation.

When patients and caregivers understand the science, they are better prepared to ask informed questions, advocate for themselves, and contribute to research priorities that matter.

Join us this August:
https://ros1ders.regfox.com/prime-summit-2026

Early Bird pricing is available through July 1.

06/10/2026

Patients and caregivers: this Summit is for you.

Living with ROS1+ cancer can mean learning a new language of scans, mutations, targeted therapies, side effects, resistance, clinical trials, and treatment decisions. Caregivers often carry that learning too, while also providing emotional and practical support.

At the PRIME Summit, we create space for both patients and caregivers to learn, connect, and ask questions.

You can expect sessions that help make complex science more understandable, conversations that recognize the emotional weight of living with cancer, and opportunities to meet others who share similar experiences.

Patients and caregivers are welcome to attend.

Register here:
https://ros1ders.regfox.com/prime-summit-2026

06/05/2026

Worth checking out this the ElevateLungCancerCare.com hub - developed by Nuvalent in collaboration with The ROS1ders LUNGevity Foundation, GO2 for Lung Cancer, LCFA: Lung Cancer Foundation of America, Lung Cancer Research Foundation and International Association for the Study of Lung Cancer STARS.

Full of great resources👉https://elevatelungcancercare.com/

06/03/2026

What makes the PRIME Summit different?

The ROS1ders PRIME Summit is not just a conference. It is a gathering created by and for a rare cancer community that understands how much it matters to have access to accurate information, expert perspectives, and people who truly “get it.”

At the Summit, attendees can expect opportunities to:

• Learn from researchers and clinicians working in ROS1+ cancer
• Hear updates about treatment, resistance, research, and clinical trials
• Connect with other patients and caregivers
• Ask questions in a supportive environment
• Strengthen the relationships that help move research forward

For many people, the most powerful part of the Summit is realizing they are not navigating ROS1+ cancer alone.

Registration is open:
https://ros1ders.regfox.com/prime-summit-2026

05/25/2026

What makes the PRIME Summit different?

The ROS1ders PRIME Summit is more than a conference. It is a gathering created by and for a rare cancer community that understands how much it matters to have access to accurate information, expert perspectives, and people who truly “get it.”

At the Summit, attendees can expect opportunities to:

• Learn from researchers and clinicians working in ROS1+ cancer
• Hear updates about treatment, resistance, research, and clinical trials
• Connect with other patients and caregivers
• Ask questions in a supportive environment
• Strengthen the relationships that help move research forward

For many people, the most powerful part of the Summit is realizing they are not navigating ROS1+ cancer alone.

Registration is open:
https://ros1ders.regfox.com/prime-summit-2026

05/19/2026

The countdown to the ROS1ders PRIME Summit 2026 begins!

This August, The ROS1ders community will gather in the Boston area for three days of connection, learning, advocacy, and hope.

The PRIME Summit is designed for people living with ROS1+ cancer, caregivers, researchers, clinicians, advocates, and partners who want to better understand the science, the lived experience, and the future of ROS1+ research.

Whether this would be your first ROS1ders event or you have been part of the community for years, you can expect a Summit built around shared learning, meaningful conversations, and the power of being in the room together.

Registration is open now:
https://ros1ders.regfox.com/prime-summit-2026

Early Bird pricing is available through July 1.

04/11/2026

At the 2026 Texas Lung Conference with the first-ever table for The ROS1ders, great networking with physicans, amazing panels, and a fun AI photo booth!

Address

Sacramento, CA

Telephone

+19163828544

Website

http://theros1ders.org/

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