The Aneurysm and AVM Foundation

The Aneurysm and AVM Foundation Dedicated to bettering the lives, medical care, and support networks of those affected by aneurysm, AVM, and other vascular malformations of the brain.

Learn More: https://linktr.ee/TAAF15

Today, we honor Juneteenth—a celebration of freedom and a reminder of our shared responsibility to advance justice, dign...
06/19/2026

Today, we honor Juneteenth—a celebration of freedom and a reminder of our shared responsibility to advance justice, dignity, and opportunity for all.

Please join us in congratulating our friend, Dr. Andy Josephson**, on his appointment as Dean of the UCSF School of Medi...
06/17/2026

Please join us in congratulating our friend, Dr. Andy Josephson**, on his appointment as Dean of the UCSF School of Medicine.

This is a tremendous achievement and a reflection of the respect Andy has earned throughout his career as a clinician, researcher, educator, and leader.

We have been incredibly fortunate to benefit from Andy's guidance during his time on the TAAF Board, and while this new role means he will be stepping away from Board service, we could not be more excited to see him take on this next chapter.

Congratulations, Andy. This honor is well deserved, and we are cheering you on as you begin this exciting new role. 💙

1 in 36 brain AVM patients in a large North American study had HHT.That's why awareness matters.For HHT Awareness Month,...
06/15/2026

1 in 36 brain AVM patients in a large North American study had HHT.

That's why awareness matters.

For HHT Awareness Month, TAAF is sharing patient stories, research updates, expert perspectives, and resources to help families recognize the signs and understand their risk.

Read more in TAAF's June newsletter:
https://taafonline.org/Inside-TAAF-Newsletter--More

Special thanks to for sharing her beautiful artwork with our community, and to Stephanie Swanson for her continued dedication and hard work bringing each issue of the TAAF newsletter to life.

One of the biggest unanswered questions in aneurysm research has been:**Why do brain aneurysms form, weaken, and rupture...
06/11/2026

One of the biggest unanswered questions in aneurysm research has been:

**Why do brain aneurysms form, weaken, and rupture?**

A newly published study in *Nature Neuroscience* is helping provide answers.

By creating an unprecedented cellular map of human brain aneurysms, researchers identified important biological interactions that appear to contribute to aneurysm progression and rupture. While much more work remains, discoveries like this move us closer to a future where rupture may be prevented before it happens.

This breakthrough reflects years of collaboration among scientists, physicians, patients, institutions, and funding organizations committed to advancing aneurysm research.

We are especially proud to see members of the TAAF research family among the study's authors and contributors, including:

🔹 Dr. Michael Levitt
🔹 Dr. Belda Gulsuyu
🔹 Dr. Daniel Cooke

We are also thrilled to celebrate our friend and the study's lead author, Dr. Ethan Winkler, whose dedication to understanding cerebrovascular disease continues to move the field forward.

Most importantly, this progress belongs to every patient, survivor, caregiver, and family impacted by brain aneurysms. Every answer brings us one step closer to better treatments, better prevention, and more lives saved.

# # # Join Us

**A Major Breakthrough in Brain Aneurysm Research**

Join Dr. Ethan Winkler, lead author of a landmark *Nature Neuroscience* study, as he discusses groundbreaking discoveries that may help explain why brain aneurysms form, weaken, and rupture.

📅 July 2
🕕 6:00 PM PT
💻 Live Virtual Webinar

Patients, survivors, caregivers, healthcare professionals, and anyone interested in aneurysm research are welcome.

**Registration is now open at bit.ly/TAAF-EthanWinkler**

Because every breakthrough starts with a question.

And thanks to researchers like these, we're getting closer to the answers.

⚾️ ANYONE who wants to win FREE tickets to Pitch In for Brain Health with the Giants—today is your chance!Enter now by c...
06/08/2026

⚾️ ANYONE who wants to win FREE tickets to Pitch In for Brain Health with the Giants—today is your chance!

Enter now by completing the form:
🔗 linktr.ee/TAAF15

Didn't win? Don't worry—tickets are just **$18** and include a special event ticket to the game while supporting TAAF's mission.

Join TAAF for **Home Base Weekend**, a two-day celebration of community, connection, and brain health.

📍 **Day 1: Pitch In for Brain Health with the Giants**
Celebrate alongside survivors, caregivers, physicians, nurses, and supporters as we raise awareness and cheer on the Giants together. (Link to buy in comments)

📍 **Day 2: Extra Innings: Cheers to the Care Team**
Meet members of the UCSF and Stanford Neuro Care Teams—including physicians, nurses, and leaders in neurosurgery, neurology, and neurointerventional radiology—while connecting with survivors, caregivers, and supporters from across the TAAF community.

Plus, from **6:00 PM – 9:00 PM, 100% of tips at Jackalope** will benefit TAAF's mission to support brain aneurysm and AVM awareness, education, research, and community programs.

🧠 Meet the Care Team.
🤝 Connect with the Community.
❤️ Support TAAF with Every Tip.

If you could tell the world one thing about AVMs, what would it be? 💚
06/05/2026

If you could tell the world one thing about AVMs, what would it be? 💚

Join TAAF Support Groups – June 4, 2026! ✨Three meetings. One amazing night.🕕 6:00 PM BST | 6:00 PM EDT | 6:00 PM PDT💻 V...
06/03/2026

Join TAAF Support Groups – June 4, 2026! ✨

Three meetings. One amazing night.

🕕 6:00 PM BST | 6:00 PM EDT | 6:00 PM PDT
💻 Virtual on Zoom

Questions? 📧 [email protected]

Already receive our emails? No need to register—we've got you!

And if you're in Northern California, we're excited to continue growing our newest support group community: The Aneurysm and AVM Foundation SF Bay Area Support Group at UCSF.

For many years, TAAF's support group was rooted at UCSF. When the pandemic told us we couldn't be together, we built something new—an online community that now reaches survivors, caregivers, and families across the country and around the world.

Returning to UCSF isn't a replacement for that community. It's an extension of it. A coming home.

June is Migraine & Headache Awareness Month 💜Migraine and headache are often used interchangeably—but they're not the sa...
06/02/2026

June is Migraine & Headache Awareness Month 💜

Migraine and headache are often used interchangeably—but they're not the same thing.

This month, we're sharing facts to help raise awareness, reduce misconceptions, and encourage people to recognize when symptoms may require medical attention.

🔹 A headache is a symptom.
🔹 Migraine is a neurological disease.
🔹 Not every severe headache is a migraine.
🔹 Some headaches can signal a medical emergency.

A thunderclap headache is sudden, severe, and reaches maximum intensity within seconds to minutes. It is different from a typical migraine and should be evaluated immediately.

🚨 Seek emergency care for:
• A sudden "worst headache of your life"
• A thunderclap headache
• Head pain with weakness, confusion, vision changes, difficulty speaking, or loss of consciousness

Millions of people live with migraine disease, including many in the brain aneurysm, AVM, and HHT communities.

Awareness matters. Knowing the difference can save lives.

Your voice matters. 💜Want to help others, raise awareness, and make a real impact?Apply to become a TAAF Youth Ambassado...
06/01/2026

Your voice matters. 💜
Want to help others, raise awareness, and make a real impact?

Apply to become a TAAF Youth Ambassador.

📅 Applications Open June 1–15

📧 Email [email protected] to request an application.

Ages 10–18

The Future of Cerebrovascular Research Starts Here.We are proud to announce the recipients of the 2026 TAAF Cerebrovascu...
05/29/2026

The Future of Cerebrovascular Research Starts Here.

We are proud to announce the recipients of the 2026 TAAF Cerebrovascular Research Grants.

This year, TAAF received a record-breaking 35 applications, making this one of the most competitive grant cycles in our history. After careful review, four projects were selected for funding—each offering new hope for patients affected by brain aneurysms and AVMs.

Swipe to meet the researchers and learn more about their work.

To every researcher who applied: thank you. To every donor, fundraiser, volunteer, and supporter who made these grants possible: this is your impact.

Together, we are building a future with more answers, better treatments, and more hope.

Address

28 Geary Street, Suite 650 #2529
San Francisco, CA
94108

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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+15104644540

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