Taylor's Journey

Taylor's Journey Taylor has been diagnosed with a rare genetic disorder, neuronopathic Gaucher Disease (nGD) Type 3. Follow her journey and see what this warrior can overcome!

Taylor upgraded today!➡️goodbye to her headbands that hold onto her cochlear implant and keeps it in place.✅ hello to we...
06/13/2026

Taylor upgraded today!
➡️goodbye to her headbands that hold onto her cochlear implant and keeps it in place.
✅ hello to wearing it directly on her ear!
💜 Thank you to our favorite audiologists that helped us realize how easy it was to switch it to her ear!!! We’ve come a LONG way over the years!

Her last day of camp at Park 365!!!! We met some new friends, reconnected with old friends, and learned about a lot of new resources from parents and teachers to help us support Taylor.

Camp Hearing and Talking - first day pic!
06/08/2026

Camp Hearing and Talking - first day pic!

Guess who turned 6 today!!!!!!  From her early diagnosis with Gaucher Disease, all the hospital stays and doctor visits,...
05/16/2026

Guess who turned 6 today!!!!!! From her early diagnosis with Gaucher Disease, all the hospital stays and doctor visits, therapy sessions, etc etc. today seemed so far away back then. But look at her now. Loving Flying Squirrels baseball, soccer and drinking ranch at restaurants.
Happy birthday baby girl!!! Me and momma love you very much!!!’

05/04/2026

Taylor’s use of the swings!

This is awesome that it’s a yearly thing now!
04/29/2026

This is awesome that it’s a yearly thing now!

If you notice a lot of lights and sirens in downtown Richmond on Thursday night, know it’s cause for celebration – not concern. More than 70 first responder vehicles from throughout the state will participate in “goodnight lights,” circling the Children’s Tower with sirens on and lights fl...

Sunday morning ERT infusion and coloring! She drew and colored her family 😍
04/12/2026

Sunday morning ERT infusion and coloring! She drew and colored her family 😍

04/03/2026

Taylor watching her tablet and eating Pringles. Minding her business. She had no idea Papaw was coming.

A quick trip over to Luray Caverns during spring break. While Mommy and Grayson were looking at something, I asked Taylo...
04/02/2026

A quick trip over to Luray Caverns during spring break. While Mommy and Grayson were looking at something, I asked Taylor if she wanted to take her picture. So when I did, she quickly did the second pic and said “take a picture of my butt.” With tons of people around there ya go Tay!

Taylor likes to trick Chief the cat, by opening the door and letting him on the porch, which he loves. He thinks he can ...
03/29/2026

Taylor likes to trick Chief the cat, by opening the door and letting him on the porch, which he loves. He thinks he can somehow make it outside from there. Then she follows him on out on the porch and closes the door, trapping him out there so she can spend time with him. As you can tell, he doesn’t necessarily want to spend time with her. Yet, falls for it every single time.

Address

Scottsville, VA
24590

Website

Alerts

Be the first to know and let us send you an email when Taylor's Journey posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share