Skylar’s Spark - Our Epilepsy Journey

Skylar’s Spark - Our Epilepsy Journey Updates on Skylar’s Epilepsy Journey and Medical Updates. The raw, the real and the rough.

Our countdown restarts 💔 my sweet baby had 3 last night/this morning. 11:30pm, 12:40am, and 4:00am.Help us pray for more...
08/11/2026

Our countdown restarts 💔 my sweet baby had 3 last night/this morning. 11:30pm, 12:40am, and 4:00am.

Help us pray for more seizure-free days, for a relaxed brain, safety at school, and less fear and worry.

💜We are 3 full days seizure free!! 💜We also went to a HopeKids event last week and she had a blast! We are so thankful f...
08/09/2026

💜We are 3 full days seizure free!! 💜

We also went to a HopeKids event last week and she had a blast! We are so thankful for organizations like HopeKids for putting smiles on so many family’s faces.

08/07/2026

We are one day seizure free!! 💜

08/04/2026

💜 Update #8
🗓️ 8/3/2026

📝 here is our update from the appointment on 7/28. It also has some info about how she’s doing this week.

I realize that epilepsy can be confusing and especially her specific condition. If you have questions or are confused… ask away and we can address is in our next video :)

Yeah so last night/early morning was terrible 😞 We have changed nothing that should cause or affect this… epilepsy sucks...
08/04/2026

Yeah so last night/early morning was terrible 😞

We have changed nothing that should cause or affect this… epilepsy sucks

Pray with us, for seizure control as we prepare to start school 💜

08/01/2026

Well, unfortunately our seizure-free countdown restarts. 😭 Sky had a seizure this morning at 1:35am in her sleep. DANG IT!!

Her and I will come on and make a video update of our appointment last week. It’s been a busy birthday week for Bradley, so we’re behind on updates.

Sky and I are headed to meet with the neuro team this morning! We are still seizure free and I can’t believe I’m saying ...
07/28/2026

Sky and I are headed to meet with the neuro team this morning!

We are still seizure free and I can’t believe I’m saying that out loud!!

Hi everyone! Can you believe it!!! WE ARE STILL SEIZURE FREE!!! We meet with the Neuro team next week 💜🤞🏽
07/24/2026

Hi everyone! Can you believe it!!! WE ARE STILL SEIZURE FREE!!!

We meet with the Neuro team next week 💜🤞🏽

Today we applied for a seizure detection device through The Danny Did Foundation. This will allow Skylar to sleep in her...
07/20/2026

Today we applied for a seizure detection device through The Danny Did Foundation. This will allow Skylar to sleep in her bed/in her room for the first time in a very, very long time (like years).

This is a fantastic foundation, and even if we are not chosen to receive a grant, this is a foundation that should be shared with any and all Epilepsy patients far and wide.

Please give them a follow and support them in anyway you can, and pray that Skylar is able to receive funding to receive this amazing, life changing camera for her room!

07/17/2026

📝 Are we on to something??? It’s a long listen… but worth it!

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