Hearts for Lucy

Hearts for Lucy Lucy has an ultra-rare genetic condition called SMARD1. Follow her story and watch her grow!

Yesterday was the 7th Annual Links for Lucy tournament and it was an amazing day! The weather was beautiful, the beer wa...
08/30/2026

Yesterday was the 7th Annual Links for Lucy tournament and it was an amazing day! The weather was beautiful, the beer was cold, and fun was had by all. We once again want to thank all the participants, donors, and our family and friends who organize this event for supporting Lucy and our family. We are so blessed to have so many awesome people in our lives. ❤️⛳️

First day of school ✅
08/25/2026

First day of school ✅

It’s Lucy’s last weekend before school starts and we did it up BIG! Yesterday was the perfect pool day and today was the...
08/23/2026

It’s Lucy’s last weekend before school starts and we did it up BIG! Yesterday was the perfect pool day and today was the perfect day for an *extra* special zoo trip! Lucy’s aunt and uncle gifted her a behind-the-scenes elephant tour. We were able to see three of the female elephants up close and learn all about them. Of course, we also had to visit some of our other favorite exhibits. We kept asking her if she was ready to leave and she would say “nooo” and shake her head. If you know her, that’s unusual, especially when she’s out in the heat. But she had Mom and Dad to herself and she was having too much fun!!!

Less than two weeks away — sign up now!
08/16/2026

Less than two weeks away — sign up now!

Registration is now open for the 7th annual Links for Lucy golf tournament! This is such a fun event and it goes a long way in supporting Lucy. Sponsorships and donations also appreciated. We can’t wait!

Registration link: www.linksforlucy.org

08/04/2026

💜 July with Lucy! 💜

08/01/2026

Video of Lucy on the carousel yesterday — she was so happy!

Lucy had a fun day at the St. Louis Carousel and the Butterfly House - extra fun because Aunt Lisa and cousin Allie came...
07/31/2026

Lucy had a fun day at the St. Louis Carousel and the Butterfly House - extra fun because Aunt Lisa and cousin Allie came too!

Lucy had a fantastic day at the Magic House!
07/17/2026

Lucy had a fantastic day at the Magic House!

07/06/2026

☀️ June with Lucy! ☀️

Happy Fourth from Lucy and family! Lucy started her celebration on Friday by having a barbecue with her favorite stuffie...
07/05/2026

Happy Fourth from Lucy and family! Lucy started her celebration on Friday by having a barbecue with her favorite stuffie friends (thanks Nurse Traci!) Later we partied with friends, then today we had some pool time with family (though it was rudely interrupted by storms.)

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St. Charles, MO
63303

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