05/12/2026
When my OT told me I’d moved through CRPS symptoms faster than anyone she’s seen in 26 years, I felt grateful, emotional, and honestly stunned. I also knew I couldn’t keep what I learned to myself.
After I broke my wrist, had surgery, and developed CRPS, it traveled up my arm, contributed to frozen shoulder, and spread into my back. Ten months later, I was back trying beginner’s archery. I still had shoulder weakness, but I didn’t have hand or wrist pain that day.
No promises. No magic cure. No one-size-fits-all plan.
But I do believe we’re focusing on something often overlooked in CRPS support:
The nervous system, vagus nerve, and brain-pain loop. Not because CRPS is “in your head.” It’s not.
But because the brain, nervous system, immune system, stress response, and body are constantly communicating. With CRPS, those signals can get loud and protective.
That’s where we’re starting. A gentle, layered approach. Supportive tools. Compassion for bodies that have been through a lot.
No pressure. No big claims. Just a space to try, learn, and see what helps.
Here’s to taming the flame, one gentle step at a time. 🧡
https://docs.google.com/forms/d/e/1FAIpQLSfwapSPmElKTRlKNyIXQqBgh55SKjXdGnsDj6u9vp9549Z6yw/viewform?usp=header