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Jemma’s Journey, Sublette, KS (2026)

10/03/2026

Update on Jemma:

Thursday, we got to KC about midnight and checked into the ER there, they brought her back quickly and consulted with neurology and neurosurgery while we waited. I explained all of her symptoms and conditions again and they ordered more labs, a viral panel, and an XRay Shunt Series. They admitted Jemma into the hospital and got her into a room at about 5 am, they kept her for further observation of seizures and planned for her to have an MRI the next day. Jemma remained stable and did not have another seizure. They were finally able to get her sedated and into MRI at about 3 pm yesterday. I asked for neurosurgery consult 3 times by this time, to no avail.

Because her ventricles are not enlarged, and the shunt appears to be draining, and the shunt series is also unremarkable and it appears to be working, they do not want to pursue any further into the shunt over-draining being the problem. Even after I explained the sudden Ataxia episode with difficulty walking, vomiting and sudden breakthrough seizure, Neurosurgery referred back to Neurology, and they believe that because all the tests showed the VP shunt was working, and the MRI is stable with no significant changes from baseline scans, they believe this seizure resulting in status and the extended post-ictal state (after seizure lethargy & recovery period) is a development of her drug-resistant epilepsy condition worsening. I’m so frustrated, and so exhausted.

Yesterday evening we decided since we were getting nowhere with the specialty consults, there was no further testing ordered, and most likely they were just waiting to round tomorrow morning and discharge her anyway, so we asked the attending doctor to expedite the process and just let us leave that evening. Jemma was on the general Peds unit and had a great attending physician there, but the way the medical system is set up and it being the weekend, her hands were essentially tied and she had nothing more she could do but have us wait. I hate when specialties do this and bounce us back and forth, because neither wants to investigate any further, they both throw their hands up. Neurosurgery doesn’t believe Slit Ventricle Syndrome could be the cause of this but they won’t even try to rule it out and frankly, I have learned they’re the type to step back until every other specialty has worked to rule out every other possible cause until they are the last one left and once other doctors have figured it out for them, then they act.

Neurology believes this just her epilepsy worsening and MRI shows mesial temporal sclerosis and that is consistent with her Epilepsy condition but does not explain the Ataxia. In this case they just refuse to believe it could be SVS because it’s so “rare” and did not even come to allow me to plead my case and discuss the possibility of SVS. Rare means nothing to me, her cancer was rare, the surgery survival rate was rare, epilepsy and infantile spasms were rare, the fact that Jemma can still walk and talk is rare. So many things about her are rare, and using rarity as an excuse to refuse to keep looking is a disservice to Jemma.

The attending doctor agreed that a second opinion is never a bad idea. So at about 8 pm, we left the hospital and headed home. We stopped for the night halfway to get some sleep and now we’re on the road to drive the rest of the way home. If Jemma worsens, we’ll do this again and take her in to be seen and push for transfer to a different hospital. In the meantime, I plan to call and look into other hospitals and for more options and get a fresh set of eyes to look at her scans.

Thank you all for praying, Jemma’s last post had so many comments and was spread to so many people from everywhere. We’re so grateful, we read every single comment and message and we are thankful for every single prayer and word of encouragement. 💛

Even when things in life are not good, we know that God is. I’ll never know the reason for suffering, especially for children and why He won’t take it away. But I don’t think we’re meant to know that. If God would audibly answer that question for me, I would probably just ask another question and it would never be enough. What I do know, is that this can’t compare to the joy that’s coming. I have hope we will figure this out. I know that God has been near all the time, I know that He isn’t surprised by anything, nor is He overwhelmed by our problems or questions, He’s steady. He sees it all and is with us in it. He’s listened to every desperate plea, frustration and outright anger we’ve had. He’s provided so much comfort, peace and presence. That is enough.

He has provided miracle after miracle already. Jemma is physical evidence of that. The first time Jemma got out of bed during this hospital stay, the nurse was in the room and turned around to look and gasped “SHE CAN WALK?!” She was in disbelief. “Look at her! She’s walking?!” “How can she walk?” I laughed and told her yes, she can walk and eat and communicate in her own way, but yes she can do all of that. I told her Jemma is a living miracle. She was so shocked, she said that what she had judged by looking at Jemma’s chart, scans and medical history, she never expected to see her walk. She had chills and tears in her eyes watching Jemma trot her merry way down the hall to the playroom. I was reminded again of how much God has done and how immensely grateful I am for that. We get caught up in the difficulties we have and sometimes forget how blessed we have been. 💛

Jemma will continue to defy the impossibilities and will never let history and suffering define her. 💛

I’ll keep you all updated as we work on figuring out next steps. 🎗️

10/02/2026

Please pray for our Jemma. Today she woke up and had a typical morning, I gave her medications like normal, she went down for her usual nap. About 30 minutes later I walked by her door and could hear her hiccuping rapidly and with force. I rushed into her room and she had thrown up and was having a seizure, I got her up and took her to the living room to get a better look at her. She was having short shallow breathing, rapid heart rate and totally disoriented and was not responding to me, after 5-7 minutes I gave her rescue medication. I swiped her magnet on her VNS, I waited another 5 minutes. She was still not coming out of the seizure. I decided to call 911 and EMS came to stabilize her and transfer to Garden. In the ambulance the seizure finally stopped, but she was still lethargic and unresponsive to any communication. She had about a 20-25 minute seizure that went into status epilepticus with a short break of consciousness in between.

We got to Garden and she had a CT done that showed her VP Shunt appears to be working, but maybe too much, her ventricles are slits. She has very little fluid in her brain. We waited all day for flight transfer, first to Children’s Mercy KC, then because of the storm system moving east we were looking into ground transfer via ambulance, but the ambulance company also declined due to the weather conditions in the east. Then the doctor looked into Colorado Children’s, but because they are unfamiliar with Jemma and time was ticking, we decided to transfer her ourselves. So we’re on our way to KC now to have her shunt checked at Children’s Mercy. We should arrive in KC about midnight if all goes well.

Jemma didn’t talk or make eye contact with us after her seizure for almost 6 hours today. She’s stable now after rescue and more meds in the ER, so she’s okay to travel with us and we’ve made transfers like this before so we’re comfortable taking her and we know it’s sadly but truthfully so much faster this way.

Please pray for our girl, about two weeks ago she had a couple days of ataxia, where she woke up in the morning unable to walk independently and had to hold on to the wall for support and spent two days falling frequently with very poor balance, she’s also had random bouts of vomiting along with this, I had been suspecting a shunt problem for a while already but didn’t want to jump to conclusions before we could rule out more typical, lesser problems like a virus or illness. But today, with a seizure like this going into status epilepticus we know something is wrong. There is a possibility it could be a progression of her epilepsy as well. We were just so hopeful she was getting better with going a couple weeks without a seizure. Her team has told us epilepsy can behave this way at this stage, either frequent less intense seizures or random, very intense seizures that won’t respond to rescue leading to status episode like today.

Jemma has so many variables to consider in cases like these. It’s like playing chess with an invisible, unpredictable opponent. We’re exhausted, we had 16 hours at home before this incident and our older two kiddos took it pretty hard. Please pray for them as well, being the siblings of a medical kid takes a huge toll on them and although they are so tough and always understanding, they struggled today. They never know when their parents and sister will have to go in an emergency and living with that has worn on them. Please pray for them, Jemma and us. We want to find answers and better treatment for her. 💛

Jerry Penner Jessica Penner

09/30/2026

Another trip to KC this week for Jemma! There’s so much to update you all on from the last several weeks.

Tuesday at 5 am we were wheels up to get to KC by 12:30 for Jemma’s appointment with the endocrinologist in the cancer survivorship clinic. He examined her and ordered several labs to check her growth hormones, cortisol levels, and the function of her pituitary and adrenal glands. We talked a lot about the effects of the 4 intense chemotherapy drugs Jemma received as an infant. Sitting in rooms like these bring back the harsh reality that we were so naive to in the beginning, part of us expected to leave cancer and all its horrors behind when she rang that bell. We’ve since learned that bell was just the beginning of the next chapter. We took Jemma down to the lab right away and while she screamed through it, it was quick enough and now we wait on results.

We tell her where we are and what we’re doing there and are honest about what she’ll have to have done, but she doesn’t grasp it all just yet. What she does recognize though, is the hospital and she knows when the doors shut and needles come out it means pain, but she never knows how much pain it will be, and it breaks my heart. She’s starting crying “mamamamamama!” during procedures of any kind and I can see the fear on her face and she can’t understand why I won’t make it stop. The second they have what they need, she’s out the door. I thought she may be lucky to not remember much of what all she’s been through, but it seems that she does know enough to panic and cry anytime she’s even just in a clinic office and the door shuts.

Afterwards she had another appointment at Hanger clinic to pick up her AFO brace and while it took a long time, she did pretty good as long as daddy stayed playing with her. 🥰

This morning she had a dentist appointment at the hospital and they checked on her crowns she already has and said her teeth looked great otherwise! She’s had some sensitivity, but to get a really thorough examination and cleaning they’d need to get X-rays, and in order to do that she would need to be sedated to have it all done in a procedure room, so dental care for her is just monitoring her until we’re sure she’s having pain and will need treatment so we can justify sedating her for it. They’ll see her again in 6 months to check again unless she has more pain then we’ll be back sooner of course.

On the epilepsy front, we have good news! Jemma started a 4th new medication called Epidiolex (basically medical grade C*D oil), and her seizures have drastically decreased since she’s been on the full dose of it. So we haven’t seen any seizures in a week now! We’re cautiously optimistic because this is pretty classic with having drug-resistant epilepsy and Jemma, so much so that there’s a term called a “honeymoon phase” in medicine for it. Many times over years and medications, Jemma will stop having seizures for a short time after starting a new medication but it doesn’t take long and her brain finds a way around it again and seizures pick back up or morph into a new type. But we’re praying and hoping this will work. They’re also working on starting medical Ketogenic diet soon, and while we wanted to avoid this treatment at first because after just learning to love food again, we didn’t want to take that away. Medical Keto comes with a host of physical side effects too but is much less sedating cognitively compared to traditional epilepsy treatments. They also discovered on her last EEG that she was sleeping extremely poorly, her brain was constantly firing and interrupting her sleep cycle so she was having very little REM and deep sleep. They prescribed another medication to help her sleep and we’ve started some different mineral supplements to hopefully help support her sleep too.

In a perfect scenario where I could have things my way, I would love if we could really tailor her VNS to be the most effective possible, cut down to just one or two medications along with ketogenic diet and have seizures stay controlled that way, so Jemma could be free of the daily medication fog she lives under and she could think more clearly and learn more easily without heavy drugs making her irritable, aggressive, and confused. A medical mom can dream right? 🤪🙈

She’s been in school for about 5 weeks for 2.5 hours a day 4 days a week, and she absolutely loves her “Keeyee!” and “Bettee!” It has definitely been an adjustment for her and we’re figuring things out, I’m considering enrolling her in a part-time ABA program in Wichita to help get her more resources and therapy she desperately needs because we’re so limited on options for her complexities out here in the wild west.😆

Thank you all for reading this and praying for our Jemma. She’s a beautiful light in our life and we’re so proud of how far she’s come. 💛

Jerry Penner Jessica Penner

09/04/2026

This is why accessibility is important!

This playground had a maze of equipment to get through in order to use the slide and there was no way for Jemma to get through herself, but she desperately wanted to slide. Her siblings would come down and she would try to climb up too with them and it hurt to see her want so badly to play and not be able to, so I picked her up so many times and climbed with her so that she could!

For as long I’m able, I will make a way for her to be included. 🫶🏻✨🥹💛

09/04/2026

NEORGANA DAYS 3-7

I’ve had many people ask about an update on Jemma’s Muse Stem Cell treatment in Merida, with school and sports starting up I’ve fallen behind in posting but finally found some time!

On Day 3, they did the IV stem cells and she received 20 million cells by IV, it was a bit of a process because Jemma’s left side is affected the most by the Cerebral Palsy and has never been able to keep an IV in that arm/hand. They wanted to try because they want the cells to work on that affected side, so even after I told them it didn’t work they had to find out themselves and we ended up on her right arm. But the process was fast and although she screamed through it, it did not take long.

She continued to Neuro Physiotherapy afterwards, and she loved Ramòn! He was definitely one of our favorites because we could see how knowledgeable he was, and he was able to get Jemma to work for a full 45 minutes, she took a few breaks in between but he really believed in her and pushed her. He was determined for her, and gave us so much advice on how to help her more at home. I love when therapists push Jemma to be her best, and he definitely did.

On Day 4, Jemma recieved 10 million more cells intranasally, and the process went well too, with crying and fits, but it’s always expected because after all the medical trauma she’s had in her life and her inability to fully understand what is going on, her fight or flight response starts and she expects the worst. Lots of cuddles and reassurance gets her back to herself after a few minutes though. She did seem more tired this day, and it was a lot of busy traveling and hard work for her. The cells also cause some fatigue as they begin to work on healing her and we think she was having some of the side effects.

Day 5, she had more Neurofeedback therapy and with some M&M bribing from the therapist and her favorite songs she was able to pay attention for a much longer period, 15 minutes was great gain compared to the 5 seconds she had on the first sessions.

We spent a lot of the evenings exploring Merida, and the city was just beautiful, so much extraordinary architecture and culture everywhere. While communication was hard and driving was less organized than the US, the people of Merida were so friendly and we felt safe the entire time. Merida is one of the safest cities in North America, and the safest in Mexico. I was nervous about this before traveling but was relieved after a few days in.

We stayed at a fabulous hotel and the service, guys.. amazing. The staff was so helpful that is almost got uncomfortable because us Americans are so used to just handling everything ourselves all the time, that when they bring your vehicle, open the doors and load your things, every single time you come and go, it feels strange. The waitstaff pulls out your chair for you, and clears tables as soon as you’re ready and not before, only bringing the check when you ask for it. We never felt rushed and I loved it, the atmosphere felt slower and like people enjoyed their life with far less stress and hustle we see in the US. I wish we could bring a little more of that relaxed vibe back home. Also, gas station attendants should be everywhere, in my opinion lol.

RESULTS! ✨

So far, we’ve seen Jemma use her left hand far more than she was able to before. She would always tuck her lefty into her side and rarely brought it out and when she did it was super uncomfortable for her and even seemed painful at times for us to touch and hold. But after a couple days we noticed her pulling up her left hand and holding it with her right without discomfort! It may seem small but just that she doesn’t seem like it hurts her anymore is a big win!

She’s also started imitating everything! She’s speaking more verbally and this was huge reason we did this treatment, for her to speak. We can tell she has so much to say and is just trapped. She comprehends far more than she’s able to speak so this stride towards more verbal communication is huge for her, she’s just continued to speak more as we’ve been home and it’s so amazing to witness. 🥹✨ She’s even using and understanding her speech device now, using it more intentionally and independently than she used to!

We’ve even seen an improvement in disruptive behaviors at home too, she seems more regulated and calm than before. She was like an energizer bunny before and not in a fun way, every table would be swiped and cleared, countless remotes in the toilet, every door has to be locked to prevent her running away, every toy was chucked down the staircase and if her siblings got too close they were victims to some serious injuries when Jemma was upset. It is still hard and she still has days like this, but since the stem cells we’ve noticed a decrease and many more better days than bad ones. This is my biggest prayer, for Jemma to be able to be social, safely. For her to be calm and learn to play with her peers and for them to be able to love her like we do. We know a sweet, funny, and playful Jemma and we want the world to see that part of her, not just the dysregulated and impulsive side of her she is in loud, public, unpredictable environments.
So that we’ve seen improvement in this is just an answered prayer and blessing.💛

We’re so excited to see how much these cells will improve her life as they continue to work for her! 🫶🏻✨💛

08/25/2026

The Penner’s are back to school!!💛

Jackson is in 5th grade this year, how? My big boy was in preschool yesterday!? 🥹 He won’t say it, but he’s happy to go back and see all his friends again, & most of all get back into sports season! 🏈💙

Our beautiful Jane will be in 3rd grade, and she’ll for sure bring her spunky and fun personality to her class and I’m a little jealous they get to hear her signature hilarious statements all day now. 💕🌸

& our Jemma!!🥹✨ She’s going to preschool! We are so excited for her to learn and play with her class. She just loves her teacher “Kee-yee”. ☺️ She will just attend in the afternoons for now to work up to a full day as her medications and medical state allow, and as she shows us she’s able. We feel blessed and grateful to see this milestone come for her, so many times we wondered if she’d make it to see this day and it feels humbling to witness it today. She’s growing up and we’re so proud of her! 🎗️💛✨

Miss Jessi (mama) will also be at school as a district para and I’m so excited to be a part of the school and help in every way I can, I’m grateful for our school allowing me to be able to be close to Jemma in case of seizures or emergencies. It will be great year! 🫶🏻🤓
📚✨

Jerry Penner
Jessica Penner

08/19/2026

We were encouraged to record videos to have for us at home to help us show her how to make proper sounds. We’re working on 3 consonant sounds, M, P, and B. As well as 3 vowel sounds, O, A, and E. The way Simone puts her hands around Jemma’s face was new to me and surprising, (she used plenty of hand sanitizer in between) but Jemma’s responded so well to it and was able to understand pretty quickly! 🫶🏻 we’re excited to see what the rest of the week will do for her!

08/19/2026

NEORGANA DAY 1 & 2 💛

We arrived in Merida Mexico on Sunday afternoon for Jemma’s stem cell therapy this week. On Monday, Jemma had a red light therapy session, speech therapy and we got to meet her team of nurses, Jemma especially loved her speech therapist Simonè. We’re surprised at how hands-on therapy is here. Everyone one we’ve met is so friendly and high-energy. It’s obvious this is their passion and they work hard to help Jemma. I thought she’d become overwhelmed by some of the things being so close to her but surprisingly she wasn’t. Any time she’s become upset, the therapist would pause the session to give Jemma some vestibular input, either by literally picking up our 50 lb girl and swinging her, bringing in a trampoline for her to jump on, picking her up to help her jump like a frog. At first I wasn’t realizing what they were doing, but by the end of the second day I figured out that these people are trained in kids with sensory processing difficulties and autism and it has changed the way they work with kids during therapies. Jemma was able to work for a full 30-45 minutes without a meltdown, just because they gave her a break and a distraction with short burst of different sensory input and that was enough to “reset” and continue working! I’m going to try these things at home with her now too. I feel silly I hadn’t thought of them sooner. 💛☺️✨

On Tuesday, Jemma had more speech therapy in the morning after we had a little detour at the wrong house and met a very confused older gentleman. 🙈🤪 We found Simone eventually though and she had a shorter session because her morning meds had really affected her that day. Then she took a quick nap in the car while we drove to the next Neurofeedback appointment, there they placed a lead on her head and both ears. I told the the therapist enough with my facial expressions that Jemma would not be happy with the leads, to which she told me many, many times to “just relax mom”. 😂🤪 I thought I was pretty chill but my face always gives me away. It was a new kind of therapy I’d never seen, she put on a tv show for Jemma to watch, and as long as Jemma paid attention the screen was clear, but if she lost focus the screen would blur. You can imagine with the first session the screen was blurred most of the time, as Jemma improves her attention span, she’ll be able to watch the show. So interesting! ☺️

After these therapies we drove back to the Neorgana clinic for the nasal stem cell treatment! We signed all consents after reading and discussing them, the team of nurses wrapped Jemma into a little burrito and they administered the 5 million stem cells slowly in small intervals into each nostril until the syringe was empty. She wasn’t a big fan, but it was over in 5 minutes and she did pretty good overall! Now we just wait for the cells to start working! By the end of the day, I already started to notice Jemma repeating more words we were saying, and more clearly too. I noticed her speaking more independently, telling us more of what she wanted like “wee!” to slide at the playground! I don’t want to get ahead of myself just yet because I’m staying cautiously hopeful to see benefit but it seemed to me like it was starting to work! 🥹💛🙏🏻 The cells should begin to work right away and last for 4-6 months and continue to benefit in that time.

Right after the clinic, we drove to se Ramon for physical therapy and he was also amazing with Jemma. She worked with him the whole time while he got on the floor with her and massaged her tight left leg before starting to help her keep calm. He showed us how to help Jemma sit better, she still sits in the “hemi-scoot” position while on the floor and he said we should always correct her posture to prevent postural scoliosis, I’d never had anyone tell us that before but it made sense! He also showed us how to teach her safe falling, he gently pushed her right side in order to stimulate her left arm to come out and protect herself, he said this reflex in important for safety and we know Jemma really needs it! Another thing we’d never seen in other therapies or thought of ourselves. He was so knowledgeable in everything and had a great approach to Jemma, staying with her on the floor the entire time. She responded so quickly to the exercises and when she got irritated, he switched her to rolling backwards on a ball and giving lots of deep pressure to regulate her again. I was so impressed!

Mérida has been a whole new experience for us and without the help of Jerry’s parents, I don’t know how we’d do it. We can’t speak any Spanish and have desperately wished we could, not being able to communicate has personally enlightened me in Jemma’s struggles with communication, it is so incredibly frustrating to need something and yet not be able to communicate it. Using translating apps help but feel different and impersonal and limits speech so much, similar to how her device would be for her too. We take for granted our ability to speak and communicate all the time and this only fueled me to find more ways and work harder to help Jemma communicate what she so desperately wants to tell us. Gerhard has been such a great help to translate for us while we’re here, being trilingual is amazing skill to have and we’re so grateful for his help, and for Elena being able to help us with Jemma, and Jackson and Jane, the quality of a trip like this depends on a village to lighten the load for us and they have been so selfless in following us here and lending us their hands and their voice.🫶🏻💛🥹✨ We are so grateful for them.

We are so excited for day 3 today!

Jessica Penner
Jerry Penner
Elena Penner
Gerhard Penner

08/12/2026

Results of Jemma’s EEG: as usual her brain pattern is very abnormal, and she is having Hysarrhythmia. According to the neurologist, this background activity could be caused by a number of things but not necessarily just from the original tumor resection since the activity is all over her brain now, it could be the chemotherapy drugs, the refractory seizures over time in conjunction with the damage from cancer. Years ago, when this was first seen, it was primarily on the one side where the scar tissue is, but now the whole brain is involved. The pattern has changed to slower spike-wave discharges. It means that Jemma is at risk for seizures of varying intensity at all times and the seizure types could change and evolve to be worse over time because the brain is irritated and disorganized at baseline. The neurologist confirmed what I have thought for a while already, that Jemma does have Lennox-Gastaut Syndrome.
However, it is in early stage and on the more mild end of the spectrum of the disease. Still, since we’ve chased this Hypsarrhythmia / Spasms so many times already with steroids and she is at full dose of the only medication that treats it, her doctor decided it was a fair idea to switch one of the other seizure medications and hope that might help ease behavioral side effects and reduce seizures and their likelihood. Long term steroid use is not an option, it’s hospitalized her before and if it hasn’t kept them at bay by now, it likely won’t at all. I struggled to hear this news today for some reason, even though I had already suspected it for a while now. Having it confirmed just felt so disheartening, we know it means she will likely deal with this for the rest of her life and we don’t want that for her. I’m still thinking and looking for anything that could possibly change this or improve it more yet somehow. God has made the impossible, possible for Jemma before and He could do it again. Please pray that changing these medications will do good, there is a chance making this change could make things worse. She has another appointment next month to discuss it more and make a plan to do it as safely as possible.

The neurologist also made two adjustments to her VNS during her stay. The device will cycle much faster now and at higher frequency, that will hopefully work to regulate her brain too, and an even stronger frequency for rescue with the magnet. He did tell us that these settings will drain the VNS battery much faster than before, giving the device only about 2-3 more years before she will need another surgery to replace it. He also increased the dosage of her oral rescue medication and provided Jemma with a bridge of it to help with travel next week, since that seems to be a trigger for her.

The GI team stopped by too after we asked for consult on her inflamed GTube button site, she suspected a yeast infection and prescribed a medicated ointment for her and it is already helping! She also gave us an extra GTube for backup, while we wait for the new size to be shipped to us.

Jemma did so good after getting out of the hospital, just 2 hours after discharge she went right back to rehab therapy at AbilityKC and worked hard again for her therapists! She was happy to get to go back and play with Kyla! Or “Tiya” as Jemma calls her. ☺️ She’s really become our friend over the past three years of treatment here and we just love her.

Tomorrow, I have the first parent coaching session with the RUBI program through Children’s Mercy where they’ll teach me ways to help Jemma with behavior management at home and school, basically ABA (applied behavioral analysis) training for parents since the system is overloaded with literally thousands kids and families like ours needing help and we’re still waiting (since April) for an evaluation date for Jemma’s autism diagnosis. Her therapists and specialty providers don’t doubt that she has a lot of characteristics of autism and most likely has it. I don’t like tacking on another diagnosis to her already long list, but if it means she gets the resources she needs and has more support to thrive and grow to the best she possibly can, then so be it.

We will also bring Jemma’s wheelchair to AbilityKC for Mr. Robert to adjust the chair to fit Jemma better for use at school. It will be the best way for her to be in a classroom, serving as a stand alone desk of sorts with an attached tray and straps with buckles to keep her safe and comfortable while shes learning to sit in one place for short times, when she gets tired and needs a break, and if she needs to go more than a couple hundred feet anywhere. On Friday, she will get the turtle brace molded to her left ankle, and measured for her AFO brace. We’re hoping she’ll learn to get used to the braces more easily this year now that she’s older and that she can realize that it is helping her to walk and stay balanced better and they are NOT mini prison shackles/torture devices like she has believed up until now. 🤪😂

A busy last week here in KC!

Thank you all so much for your prayers and support! 💛🎗️🫶🏻✨

Jemma’s Journey

10/03/2026

10/02/2026

09/30/2026

09/04/2026

09/04/2026

08/25/2026

08/19/2026

08/19/2026

08/12/2026

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