Ehlers Danlos Syndrome Support

Ehlers Danlos Syndrome Support Target 125k Living with strength and
courage through
Ehlers-Danlos Syndrome & chronic illness Here to support, share, and raise awareness.

You're never alone together we're stronger Follow for real stories, hope, and a caring community

06/12/2026

True story unfortunately

Testing proves that those with hypermobile EDS do not respond to local anaesthetics. We feel it all – but we're often di...
06/12/2026

Testing proves that those with hypermobile EDS do not respond to local anaesthetics. We feel it all – but we're often dismissed as hysterics. Needless to say, we hate going to the dentist. 🦓🦷💔😖💉💜

Me: I have Ehlers-Danlos Syndrome. Them: Does it hurt? Me: Only when I breathe – and move, and stand, and exist. 🦓💔😅🫁💜
06/12/2026

Me: I have Ehlers-Danlos Syndrome. Them: Does it hurt? Me: Only when I breathe – and move, and stand, and exist. 🦓💔😅🫁💜

06/12/2026
The zebra is our mascot. "When you hear hoofbeats, think horses, not zebras" – it makes doctors look for common causes. ...
06/11/2026

The zebra is our mascot. "When you hear hoofbeats, think horses, not zebras" – it makes doctors look for common causes. It often works. But zebras, as rare as they are, DO exist. Doctors forget. We don't. 🦓💔🩺🔍🚫💜

06/11/2026

Knee pain in EDS: the kneecap is loose because the soft tissues holding it in place are loose. After years of sliding around, the cartilage wears down – chondromalacia. Crunching, grinding, pain when kneeling or climbing stairs. Your knees aren't just noisy; they're wearing out from instability. 🦓🦵💥😣🔊💜

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