05/24/2026
Comfort and coffee
So… There’s been a lot I’ve wanted to write about in the last 72 hours. It’s only been about 72 hours since my last entry, but it feels like 2 weeks to me, 2 torturous weeks. So much has happened and yet nothing has happened. It’s Memorial Day weekend and we all know how quickly hospitals get testing and scheduling done.
I arrived at OHSU (Oregon Health and Science University for you outlanders) in Portland around 1:30am Thursday morning. I was given oxycodone, my vitals were taken and I was “kissed” good night by the team of nurses, all very sympathetic to my condition. I must say, cancer care is one of the best for empathy and accommodation. I have my own room (unlike last time at this hospital). It has a beautiful view of the Willamette River, a less-metropolized portion of Portland and Mt. Hood in the distance. My room has a locking closet, large-screen TV, private bathroom and shower, fold-down couch and recliner – everything people pay good money for at luxury hotels. I am well taken care of in this place. Why then does it feel so prison like?
Fair warning – this post is going to be everywhere, and I’ll blame it on the meds if I want to. I walk the halls when I’m up to it and get glimpses of other patients who are pretty-much bedridden. Or, I meet them walking the same halls, but they have to use a walker or have large bandages, indicating large surgeries. When it comes to who shouldn’t be complaining, it’s me. I shouldn’t be complaining.
And yet… I’ve shed more tears in this fancy room than any of my other hospital stays. When I saw a bald woman walking the halls on the first day, I went to my room and wept, knowing that was going to be me someday. I already have a complex about my looks, being bald is like the final white flag of surrender for any attempts at beauty. It looks like I’ll be in hiding for the next year.
I learned near the beginning of day 2 that my body doesn’t tolerate oxycodone. In fact, the drug amplifies the pain over time and the more I take, the worse it gets. I almost knew this already but thought I’d give it another try. I won’t make that mistake again. I asked for my old, faithful hydrocodone and was granted it shortly but not before receiving a couple doses of fentanyl. I do love how that stuff makes me feel within the first 15 minutes, but something strange happens to me as it wears off. So, now I’m avoiding that as well.
I was finally feeling a little better last night and then this morning they tried switching me to dilauded – which may as well have been oxy. The nurses said the change was made due to my liver implications with the acetaminophen. I fought for clarity and finally got the OK from the GI team. So, not only did I get my hydro back, but I also got approval to try acetaminophen by itself. Maybe that was the only part of hydro helping me. The review is still out on that.
During these couple days of drug-swaps, I have been in a lot of pain. I’ve already written about pain, but this trial has made me almost desperate for relief. It feels easier to not exist sometimes. Of course, I can’t tell the nurses that because they’d lock me in a padded room and check on me every 30 minutes. I already feel claustrophobic with their check-ups, urine-monitoring, bowel-monitoring and the dozen other check-ups they do every two hours. Did they not learn in medical school that rest is essential for healing? How is one supposed to rest with all of that going on. I’m already racked with pain, do we have to talk about it all the time too? “What’s your pain level? How are you feeling? Give me your arm. We’re drawing blood. I just need to check your temp,” and on and on it goes.
Anyway, that’s most of my complaining. This post is about comfort. Oh, I’m also on day 7 of my water fast. I believe the empty stomach is adding to the discomfort of taking pain medicines regularly. The IV antibiotics (dripped for 5 hours with a 4-hour rest in between) is also having an effect on my stomach. I’ve actually come to the place where I can’t fully tell whether my stomach hurts from all of that or because of the tumor. I can’t tell the difference anymore. I digress.
I am sitting in the recliner feeling much ess pain (probably a level 1) from my recent dose of hydro. I thought to myself that a coffee sounds really good right now. My mind drifted to me sitting on my cousin’s couch, sipping coffee. The atmosphere is homey, there is that sweet comfort of absolute love, there are a couple dogs vying for my attention and I’m in my happy place, chatting about the world and life over a cup of creamy, sweet coffee.
My coffee habit started when I was a pr***en, sitting in my parents’ living room on a Saturday morning with much of the same circumstances. I call coffee my last addiction, but it’s more than that. It’s a representation of ultimate comfort and peace. It’s a hot Starbucks on a road trip with friends. It’s a Frappuccino with my daughter as we cruise up Highway 101 on a Sunday morning “coffee drive,” where we just drive for the enjoyment with no goal in mind.
So, as I think of these things and my inclination to call room service for that cup of coffee, I must ask myself if that comfort will actually comfort me in this moment. And I think of all the other things I have called on for comfort over the years. Although I’ve lost quite a bit of weight in the last couple years, I still have a lot to go and that is largely because of seeking comfort in food and sweets. The cancer now growing (well… technically it’s receding due to the autophagy of fasting) is due to that search for comfort.
It sounds like I’m blaming myself or that it’s not ok to seek feel-good things when bad things are happening. But what if I had found comfort in meditation or journaling or walking or any number of healthy things instead? I can’t bank on “what if,” but I can change the future and create those new habits now.
I just wanted to put the spotlight on comfort and how desperately I need some right now with this pain struggle. This venting (can we call it journaling?) is my substitute for that coffee. It’s releasing steam and letting me breathe easier, just like that coffee may have done but without the harmful side effects.
I guess I should give an actual medical update while I’m here too. Because the tumor grew, squishing (technical term) another portion of my bile duct, I need another ERCP procedure. That’s the endoscopic one where they push stents into my bile duct to open it up. My bloodwork shows high liver enzymes and bilirubin, all indicative of a blocked bile duct. I’m also on antibiotics as a precaution. Because of the timing of my arrival and this being a holiday weekend, that procedure will not take place until Tuesday. It is usually an outpatient procedure and should go fairly quickly and easily.
The oncologists here will be (more than likely) giving me my first dose of chemo on Wednesday. I should be released Thursday – barring any complications.
Because of the fasting, I can feel a change in my body. Or, I think it’s the fasting. There cannot not be changes. I did say I can’t tell where the pain is coming from which makes me wonder if it’s more nausea from the meds than pain from the tumor. In that case, maybe I can taper down the meds and see how I feel. Unfortunately, the only way to test my theory is to do just that – which leads to risk of heightened pain during the testing time. I’m running low on emotional/energetic resilience, so I’m not sure I’m up for it. But, I do feel a change in the tumor-area pain.
I’ve had my hopes up before, so I’m trying to not get them up now. By the 7th day of water fasting though, the body begins to really “attack” the weakened tissues/cells of the body for fuel. One doctor said it’s like “flipping the script” on cancer. See, cancer takes from the body to thrive, making the person weak. But, when the body is in a deep state of autophagy (literally meaning to “eat itself”), it flips the script on cancer and begins to eat it for fuel instead.
Fasting weakens the cancer cells and slows/stops the reproduction of cancer simply due to depriving cancer of its main fuel source: glucose. This is why a ketogenic diet is therapeutic as well. No glucose, no growth. I also have done enough research and have practiced fasting on myself enough to know that positive changes are taking place in my body. Of course, all of this is at cellular levels, so it’s difficult to see or feel daily changes. It’s just like seeing someone who’s lost a lot of weight. If you see them every day, you don’t notice the changes.
In the throws of my worst pain, I forced myself to look ahead. I know that I won’t be in pain another 20 days from now. I know substantial, positive changes will have taken place long before I end this water fast and I just need to hold tight until then. The pain will eventually subside. It will. It’s hard to know that when I feel this badly but it’s a solid truth I’m holding on to for dear life.