Grady's Krazy Kidney Adventure

Grady's Krazy Kidney Adventure A page dedicated to keep updates on Grady's journey with Congenital Nephrotic Syndrome.

Three years of new experiences and an almost normal life! How blessed are we! Happy Three Year Kidneyversary Grady!! Sen...
08/18/2026

Three years of new experiences and an almost normal life! How blessed are we! Happy Three Year Kidneyversary Grady!!

Sending our love to the Burk family, forever grateful for Kaylie's choice to donate that gave Grady the opportunity to experience life this way!

Today marked another milestone for Grady. He officially became accessory free for the first time since he's been 10 Days...
04/30/2026

Today marked another milestone for Grady. He officially became accessory free for the first time since he's been 10 Days old, between central lines, catheters for dialysis, and his Gtube. Also how fitting when I realized it was exactly 4 years ago to the day that Grady got his G Tube placed, he got it removed and surgically closed. He was a trooper and is only dealing with a little discomfort this evening.

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