Bills for Brantley

Home
Bills for Brantley

This is the official page for the fundraiser Bills for Brantley. It will be Sunday, October 13 from 1-4 at the Ashore Resort and Beach Club.

11/04/2026

Happy International Siblings Day to Brantley's most devoted supporter. His sister Marlie has a deeper love and affection for him than anyone else possibly can.

08/04/2026

Brantley had the best day at the 2026 White House Easter Egg Roll! 🐣 Through all the chaos, music, and laughter — he napped through most of it (classic Brantley 😄), but that didn't stop the adventures.

While he rested with mommy, daddy and sissy were busy collecting toys, playing games, and enjoying some quality craft time together. 💛

But the moment that truly stopped us in our tracks? Stumbling upon an audible egg hunt — designed specifically for children with visual impairments. Watching it unfold with another family was nothing short of breathtaking. Tears were shed. Hearts were full.

The family running it was incredibly sweet and wanted to hear all about Brantley's story. One of their daughters gently rubbed his hand and talked softly to him — and just like that, he was calm. 🥺 They even gifted him an audible textured egg with Braille writing on it — a treasure we'll always keep.

Audible Easter Eggs for the Visually Impaired — thank you for showing the world what true inclusion looks like. Seeing children with disabilities celebrated and included is everything.

Inclusion matters. Always. 🐣💙

17/03/2026

💜Therapy days look different every session. Some days are filled with smiles and giggles, and other days bring tears and a whole lot of defiance. It's hard, it's real, and it's part of the journey.

But that's when big sister swoops in and does what she does best — gets Brantley to crack a giggle even in the toughest moments.

✨ There is nothing quite like watching that happen.

Not everyone gets a cheerleader like her. She loves that boy with everything she has, and it shows every single day. She is hands down his BIGGEST supporter. 🤍

28/02/2026

January 2024 our lives changed forever when Brantley was diagnosed with ZC4H2 — a condition so rare that fewer than 300 people in the entire world share it. Every single day, he navigates a life shaped by feeding challenges, muscle differences, the inability to speak verbally, and developmental milestones that arrive on his own unique timeline.

One of the most remarkable things about ZC4H2 is that no two children experience it the same way. Brantley's journey is entirely his own — a one-of-a-kind story within an already extraordinarily rare condition. That's a kind of rarity most people will never fully understand.

And yet — that boy smiles. He lights up every room, every hard day, every moment we weren't sure we could get through. His joy is not in spite of his challenges; it's proof of who he is at his core. ZC4H2 is part of his life, but it will never be the whole of it.

Like countless families raising medically complex children, we spend enormous energy fighting systems that were never built with kids like Brantley in mind. The denials, the red tape, the constant battle to access what he rightfully deserves — it's exhausting. But we don't stop. We never will.

We carry on sharing his story because awareness matters. Because the world should know his name and understand what families like ours face every day. Brantley deserves every door that's open to any child — and his rare, remarkable life only makes his future more worth fighting for.

Today, we proudly wear our "Bills for Brantley" shirts as a reminder of exactly who he is — rare in every sense of the word, and stronger than most people will ever know. It's more than just a shirt; it's a statement that this little boy is seen, celebrated, and fiercely loved.

Happy Rare Disease Day to our boy, and to every child out there reminding us that the most extraordinary strength often comes in the rarest forms. 💙

14/11/2025

Brantley doing big things with a bigger smile!

24/10/2025

We want to wish a big Happy Birthday to Brantley! Today he turns 3 years old, and has made so much progress in that time. Through ups and downs Brantley continually smiles and makes anyones day brighter. We want to thank everyone for their continued support and love for our little buddy!

05/10/2025

Brantley recently started full time at daycare and he loves it! He’s made plenty of new friend’s and charms the hearts of all his teachers. Brantley gets excited everyday when it’s time to start his day. Here’s a peek into his first “school picture”, and we think it speaks for itself to how happy he is!

08/09/2025

🌟 Brantley's Amazing First Week of Preschool!

What a wonderful start to the school year! Brantley has absolutely blossomed during his first week of preschool, embracing every moment with enthusiasm and joy.

🌟 Outdoor Observations

Even when he's not actively playing outside, Brantley has found his own special way to enjoy outdoor time by watching his friends play. His observational skills and engagement with what's happening around him show just how connected he is to his school community.

🦸🏼‍♂️ "Super Brantley" Emerges!

Perhaps the most wonderful news of all is seeing Brantley transform into "Super Brantley" – absolutely radiant with smiles and laughter. When mommy arrived for pickup this afternoon, she was greeted by the happiest little boy, glowing with the confidence and contentment that comes from a truly successful school experience.

This first week has shown that Brantley is exactly where he needs to be, thriving in his new environment and embracing all the opportunities for growth, friendship, and fun that preschool has to offer. Here's to many more weeks of watching Super Brantley shine! ✨

01/07/2025

During the last several months, Brantley has been thriving with the support of his dedicated babysitters who made sure he enjoyed regular snuggles, lunch outings, and peaceful stroller walks.

The summer break has brought him extra joy as he soaks up additional snuggles with mommy and sissy, who are both home from school, creating precious bonding moments throughout the day. Pool time with his cousins has become a highlight, filled with laughter and family connection.

On the medical front, Brantley continues his steady progress with weekly therapy sessions and maintains regular check-in visits at Children's National, and Nemours for ongoing updates and monitoring. Looking ahead to summer, the focus remains on maintaining his therapy routine while incorporating some exciting aquatic therapy and intensive sessions that will complement his current treatment plan.

Our family is also prioritizing quality time together while working toward establishing a solid schedule that will help Brantley transition smoothly into the upcoming school year at daycare, setting him up for continued success and growth.

09/03/2025

This past week, Brantley experienced the wonder of visiting the most magical place on earth where he met his best pals, Mickey Mouse & friends. The trip was nothing short of magical as Brantley's face lit up with joy and excitement at every turn, creating precious memories that will be treasured for years to come. From immersive storytellings on rides to character encounters, each moment was filled with the special kind of enchantment that only exists when dreams come true.

We extend our heartfelt gratitude to our anonymous donor for the generous Disney Vacation Club accommodation. Your kindness has made an immeasurable difference.

Disclaimer: No Bills for Brantley funds were used for this trip, as they are exclusively directed toward his medical needs.

01/03/2025

In a world of billions, our son Brantley stands among fewer than 300 individuals worldwide with ZC4H2, a rare genetic condition shaping his daily life through feeding difficulties, muscle challenges, inability to communicate verbally, and delayed milestones.

What makes ZC4H2 truly extraordinary is how uniquely it affects each child. Brantley's experience is entirely his own – rarity at its most profound, not just in the condition itself, but in how distinctly it manifests in each child.

Through it all, Brantley's smile lights up our world. His happiness amid these obstacles showcases his incredible strength. This rare disease may influence aspects of his life, but it will never define his spirit.

Like many families of medically complex children, we face constant denials of support – a frustrating reality beyond his medical needs. Yet we remain steadfast advocates, navigating complex systems and refusing to accept "no" when it comes to securing what our son deserves.

We're committed to raising awareness about ZC4H2 and ensuring the world recognizes the remarkable fighter living with it. Brantley deserves every opportunity available to any child – his rare journey only makes his potential that much more extraordinary.

On this Rare Disease Day, we celebrate our happy boy and all children like him who show us that true strength often comes in the rarest packages.

Address

Website

facebook.com

Alerts

Be the first to know and let us send you an email when Bills for Brantley posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Want your business to be the top-listed Health & Beauty Business?

Country:

City: