Liam’s Journey

Liam’s Journey Liam was diagnosed back in June 2021 with Duchenne Muscular Dystrophy. We want to bring awareness to this rare genetic disorder.

This page brings the ups and the downs that Liam will conquer throughout this life we have together.

07/01/2026

Good morning, just wanted to give an update about our GoFundMe. After doing some more research, we learned that our specific Tucson will not be able to receive an electric lift like we had hoped. We were able to go ahead and buy a hitch kit so that we can put a normal cargo storage hitch. This will help us transport the wheelchair currently but once he gets a bigger one, we’ll have to find a new set up.

Every dollar we have left is waiting as a down deposit for a new vehicle that could have a lift installed. We have a bit to figure out with that but hopefully everything will work out.

Thank you for everyone who’s donated or shared to help us get to where we need. 💚

06/27/2026

the past summers Liam wasn’t sure if he was going to be able to swim without a life jacket. This summer, the determination outranked the worries. we officially have a swimmer in the shallow end under water and all. I wish I had a video to show. But instead enjoy his little cannonballs. 😆

Liam and I have been hitting up the movie theater every week this summer to enjoy their $1 deals. Best summer tradition ...
06/22/2026

Liam and I have been hitting up the movie theater every week this summer to enjoy their $1 deals. Best summer tradition we’ve done since moving to Tennessee

As summer continues bringing warmer days, Liam‘s body is feeling more comfortable indoors rather than outside. Unless we...
06/15/2026

As summer continues bringing warmer days, Liam‘s body is feeling more comfortable indoors rather than outside. Unless we’re in a pool, of course. This is necessarily a bad thing as it helps his body rest, and it keeps him from having any moments where he’s uncomfortable or feeling overwhelmed. The one thing that it has done so much for him in ways I can’t would be bringing his imagination to a whole new level of thinking.

Liam has been creating, coloring, and design for morning tonight. He loves to design his own different Pokémon and give them abilities. He’s creating secret underground buildings and city plans. Here are a few of his most recent pictures that he’s worked on that he would like to show everyone 

06/14/2026

My name is Lateisha Medeiros, sister of Adrien Joseph Leon… Lateisha Medeiros needs your support for Unite to Fight Duchenne: Honor Adrien by Supporting Rory

Sneaking in those cuddles 🥰
06/05/2026

Sneaking in those cuddles 🥰

06/05/2026

Starting our summer strong with becoming a paleontologist at our local library. This summer we dive into all the fun activities to learn about dinosaurs, fossils, and anything geology!

05/30/2026

Meet Rory! 💙

Rory is 8 years old and is the current honoree for For The Love Of Pook. He is a creative, LEGO loving warrior who is Stronger than Duchenne every single day.

We are raising funds specifically to help Rory and his family cover:
• Specialist travel costs

• Medical treatments and therapies

• An adaptive bike to help him keep his independence and mobility

Every dollar goes directly to Rory and boys like him, not to research; to ensure they can enjoy the childhood they deserve.

How you can help today:🚨‼️🚨‼️🚨
1. Donate: Click the link in our bio to contribute to Rory’s journey.

2. Interact: Drop a 💙 or a "Go Rory!" in the comments to boost this post so more people see it!

3. Share: Put this on your story to help us reach our goal!

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White House, TN

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