Project ALS

Project ALS is finding and funding a cure for ALS. Learn more at projectals.org.
(1)

09/03/2026

If you could ask an ALS researcher one question, what would it be?

Maybe it’s about a clinical trial, a specific gene, why some treatments work for some people and not others, or maybe your question is simply, “What’s taking so long?”

We want to hear the questions that are actually on the minds of people living with ALS, caregivers, families, and everyone across the ALS community.

Nothing is too technical or too simple, and you don’t need to know the science to ask about it. Leave your question in the comments. 📢

09/02/2026

In 2002, Dr. Hynek Wichterle and his team in the Jessell Lab at Columbia University were the first to generate limitless functional motor neurons from stem cells. Project ALS supported that study and has invested in Dr. Wichterle’s research ever since.

Again in 2008, at the Project ALS Jenifer Estess Lab for Stem Cell Research, Dr. Wichterle, Dr. Kevin Eggan from Harvard University, and Dr. Chris Henderson from Columbia University were the first to generate human models of ALS utilizing a Nobel Prize-winning technology called iPS (induced pluripotent stem cell).

That technology has seen many upgrades over the years. From leading academic labs to drug companies iPS/ALS patient models are now used to screen for drugs that may slow the disease process.

Follow Project ALS for more updates from the Therapeutics Core as this work continues.

09/01/2026

Team Project ALS is officially headed back to the TCS New York City Marathon! 💪

41 incredible runners will take on 26.2 miles through New York City with one shared goal: supporting the research working toward effective treatments and a cure for ALS.

But before we get to the starting line, we want you to meet the people behind the miles. Over the next two months, we’ll be introducing members of Team Project ALS, sharing why they’re running, who they’re running for, and what motivates them to go the distance for ALS research.

Follow along as we count down to race day and get to know the incredible team taking ALS research to the streets of New York City.

08/26/2026

Jenifer’s legacy lives on in every step we take toward a future without ALS.

We’ll keep pushing the science forward, bringing the brightest minds together, and fighting this disease until there are effective treatments and a cure.

Donate to support ALS research: https://projectals.org/?form=donate

08/22/2026

Today we remember two sisters whose strength, courage, and determination left an extraordinary mark on the ALS community.

Their legacy lives on in the countless hearts they touched, the people they inspired, and in jacifusen, the investigational therapy born from the urgent effort to help Jaci and now carrying her name forward.

Alex and Jaci showed us what it means to keep fighting, to keep hoping, and to push science toward what once seemed impossible. We are forever grateful for their strength and for everything they gave to the ALS community.

Happy birthday, Alex and Jaci. You are deeply missed, always remembered, and your impact continues. 💐

08/21/2026

If you’re reading this post, you are more likely to be diagnosed with ALS, Alzheimer’s, or Parkinson’s than at any time in our history. Why? Our population is living longer, which is good news, but we still haven’t figured out how to stop so-called “ neurodegenerative” diseases.

The Project ALS Therapeutics Core is studying protein toxicity—the protein clumps that form in neurons not only in , but all neurodegenerative diseases. What we’re learning about protein toxicity at the Core informs drug discovery across these diseases.

08/19/2026

We want to hear from those living with ALS: If you could save one part of yourself from the ravages of ALS, what would it be?

ALS can affect how someone moves, speaks, and navigates the world, but there is so much more to a person than the disease can change. This is a safe space for discussion, and there’s no right answer.

Share with us in the comments. 🫂

08/12/2026

There’s always more happening in the search for effective treatments and a cure for ALS. Stay in the know and follow along with us.

Join our mailing list for the latest on our research, progress from the Project ALS Therapeutics Core, community stories, events, and more. Join here: https://bit.ly/3RZOYyV 📩

08/11/2026

Just over a week ago Isaacboots - Torch’d dedicated his Ice Bucket Challenge to Project ALS after the Hamptons got TORCHD in the name of ALS research! 🧊

Thank you to Isaac and everyone who came together to break a sweat and donate to the research working toward effective treatments and a cure for ALS.

Swipe through for some of our favorite moments from the day. 🔥

08/10/2026

We're all excited about new therapies, such as tofersen and jacifusen, designed to treat those with "familial" ALS, which is driven by gene mutations throughout generations of a family. But those with familial ALS are only part of the puzzle; there’s a remaining 90% of those who do not have a family history of ALS and seem to experience ALS symptoms out of nowhere. Those people are diagnosed with "sporadic" ALS.

Today, the Project ALS Therapeutics Core is using AI to characterize skin samples from those living with all forms of ALS. Current data suggests that there are many sporadic sub-types of ALS. This can be conceptualized as islands in an ocean, and the ocean being ALS.

Led by teams at the University of California San Francisco, and Massachusetts General Hospital, the Core is characterizing sporadic skin samples from across the country. The readout will indicate if, for example, some sporadic patients might benefit from therapies designed for familial ALS. It may also reveal critical patient-specific information as we develop more targeted medicine for sporadic ALS.

Address

New York, NY

Telephone

+12124207382

Website

http://www.projectals.org/

Alerts

Be the first to know and let us send you an email when Project ALS posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Project ALS:

Want your business to be the top-listed Health & Beauty Business in New York?