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Allison Baggott-Rowe

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Allison Baggott-Rowe

Award-Winning Author | Disability Advocate | TEDx Speaker | Writing in liminal spaces about taboo spaces. Allison’s work often features liminal spaces.

Allison Baggott-Rowe is an International Award-winning author with disabilities hoping to build worlds that challenge and inspire readers to consider our place on the planet, especially in a world that can be challenging for disabled/chronically ill individuals to inhabit. She is one of Marquis “Who’s Who in America 2024” and delivered a TEDx talk on overcoming medical adversity in 2018, entitled

"A Fall Does Not Define You, But How You Rise Will Redefine You." Her previous short stories and personal essays have been featured in several acclaimed works, including the 2023 international bestselling anthology "You Can, You Will." She also contributed the winning piece for Inked in Gray's 2022 anthology contest, We Deserve to Exist. Allison possesses a wealth of creative experiences, including performing as an aerialist for “Cirque,” defending the title of a Top 100 USCF competitive female chess player in the United States, and receiving national medals for excellence in Irish Music performance. In 2024, she won Harvard University's Judith Wood Prize upon graduation for being a student who advocates for disability access on the heels of receiving the Swarthmore Book Award. When not writing from her favorite perch on the couch, Allison enjoys taking her dogs (Samwise and Rosie) to the park, embarking on adventures with her husband into the wilds of Ohio, and playing enchanting tabletop board games. She also has a pesky habit of diving into any body of water she finds, from the lap lane in the gym pool to the Aegean Sea.

17/05/2026

A gentle reminder that healing and productivity are not the same thing 💜

Some days the win is answering emails. Some days it’s advocating publicly. Some days it’s making it through a medical appointment.
 And some days it’s sitting quietly absorbing the sunset with the people (and pets) you love most.

I’m trying to get better at celebrating all versions of progress instead of only the visible ones.

What’s something small that helped you feel grounded this week? ✨

14/05/2026

One of the strangest parts of chronic illness is becoming incredibly skilled at appearing “fine.”
You learn how to smile through pain. How to translate exhaustion into politeness. How to make complex medical realities sound simple enough for other people to digest.
But “looking okay” and being okay are rarely the same thing.
A huge part of why I wrote Beyond Exhaustion was because I wanted patients, caregivers, and healthcare providers to better understand the invisible labor happening behind the scenes every single day.
Not just survival. The planning. The adapting. The grieving. The resilience. The constant recalculation.
And also the joy, creativity, humor, love, and community that still exist alongside all of it. 💜

07/05/2026

In 2023, I didn’t understand what my body was trying to tell me during the Flying Pig Half-Marathon.

I thought I just needed to be stronger—so I pushed through the pain, the fatigue, the discomfort.

At mile 7.5, everything went hazy.

It wasn’t the rain.

It was me.

I collapsed.

First responders medically withdrew me from the race. I begged to go back—but they chose my body when I couldn’t.

At the time, I thought I had failed. Especially in front of my family.

This year, I crossed the finish line.

Not because I pushed harder— but because I finally had answers.

Living with Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, and Type 1 diabetes means my body plays by different rules.

Once I understood that, everything changed.

Support changed it. Access changed it. Being believed changed it.

If you’re still in the “before,” you’re not behind.
You might still be searching for answers.

Keep going. 💜

03/05/2026

There was a moment when I realized I couldn’t keep living like my body would eventually “catch up” to my expectations.
I had been treating my limits like temporary obstacles—something I could push past if I just tried hard enough.
But that wasn’t what my body needed.
It needed me to listen.
To adapt. To build a life around what was sustainable, not just what was expected.
That shift changed everything.
Not overnight. Not perfectly. But meaningfully.
It’s part of what led me to write Beyond Exhaustion—to put language to that experience and to help others feel less alone in it.
If you’ve had a moment like that, I see you. 💜

30/04/2026

There’s a gap between what patients experience and what providers are trained to see.
Most of us aren’t asking for perfection.
We’re asking to be heard. To be believed. To be met with curiosity instead of dismissal. When that happens, care changes. When that happens…you can change the world.
This is something I explore deeply in Beyond Exhaustion—and something I hope continues to shift in meaningful ways.
If you’re in healthcare, I’m so glad you’re here. 💜

29/04/2026

These numbers aren’t abstract. They’re lived.

Thousands of finger pricks. Hundreds of injections. Constant site changes.

This is what managing Type 1 diabetes actually looks like over time.

It’s not just “checking your sugar.”
 It’s a lifetime of decisions, calculations, and resilience.

28 years today—and still going. 💜

#ɴᴇᴠᴇʀɢɪᴠᴇᴜᴘ

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