27/01/2026
🩺🧬 To all clinical geneticists, pediatricians & neurodevelopment teams: Please help us expand PATRAS—the Hashtag / Hashtag / Hashtag Registry at Otto-von-Guericke-Universität Magdeburg, powered by EURAS Project 🇪🇺🔬
🧬 In rare diseases, every single data record counts. By contributing, you help improve diagnosis, care, and—through EURAS—the development of new, targeted therapies specifically for RASopathies. 🙌✨
🏥👩⚕️👨⚕️ Clinicians: want to become a referral / dissemination site?
We’ll provide the flyer, onboarding support, and a clear pathway for families to consent ✍️📄 and participate 📲. Worldwide 🌍!
👨👩👧👦 Families: your data helps accelerate targeted therapies 🎯💊 and clinical trial readiness ✅.
WWW.RASOPATHIES.EU
📈 We’re aiming to replicate our Hashtag success (520 patients registered!) 💙✨ for the Hashtag community.
EURICE – European Research and Project Office GmbH AIT Austrian Institute of Technology Universitätsklinikum Erlangen SYNGAP Elternhilfe e.V. Paracelsus Medizinische Privatuniversität Universidad de Málaga Turun yliopisto - University of Turku ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM Ruprecht-Karls-Universität Heidelberg / Heidelberg University Universität Ulm The University of Edinburgh
📎 Flyer attached | 🌍 www.euras-project.eu | 📩 [email protected] (org) | ✉️ [email protected] (medical)
