Hope for Ayden

Hope for Ayden Strength. Courage.

Determination
Ayden was born with spastic quadriplegic cerebral palsy and is under palliative care after a bleed to the Brain inutro at 32 weeks then born prematurely at 35 weeks with his twins sister.

Time in the standing frame this morning πŸ™‚
28/05/2026

Time in the standing frame this morning πŸ™‚

Went out with Ayden and his big sister Ainsley to the biggest morning tea yesterday was a nice little outing supporting ...
22/05/2026

Went out with Ayden and his big sister Ainsley to the biggest morning tea yesterday was a nice little outing supporting a good cause.

Woo hoo 20 days now no vomiting πŸŽ‰ Still getting used to the change of the New peg button but, feeds and medications are ...
19/05/2026

Woo hoo 20 days now no vomiting πŸŽ‰
Still getting used to the change of the New peg button but, feeds and medications are going well so far.

Home time!! Heading back home to celebrate Ayden's sister Anastasia's 16th birthday today πŸŽ‚πŸŽˆ
18/05/2026

Home time!!
Heading back home to celebrate Ayden's sister Anastasia's 16th birthday today πŸŽ‚πŸŽˆ

Went outside for a walk and to see how Ayden goes in the wheelchair after having the steroids injected into his hips.
17/05/2026

Went outside for a walk and to see how Ayden goes in the wheelchair after having the steroids injected into his hips.

So Ayden had a really bad day yesterday πŸ˜” he had temps and was in pain so they put him on iv antibiotics.Today he doing ...
17/05/2026

So Ayden had a really bad day yesterday πŸ˜” he had temps and was in pain so they put him on iv antibiotics.
Today he doing and looking great πŸ₯° so hopefully home tomorrow fingers crossed so we can celebrate his sister Anastasia's 16th birthday.

Everything went well Ayden is in recovery and waiting to head back down to the childrens ward
15/05/2026

Everything went well Ayden is in recovery and waiting to head back down to the childrens ward

Ayden has been admitted for a planned procedure at 10am in the morning to have his mic-key button changed over to a GJ b...
14/05/2026

Ayden has been admitted for a planned procedure at 10am in the morning to have his mic-key button changed over to a GJ button because of his constant vomiting, but in the last 16 days now we have had no vomiting at all. That's the longest he has ever gone without vomiting ever 🀦 He is also getting steroid injections into his hips to see if it helps with pain when sitting in his wheelchair and being in his standing frame Ayden will then go to ICU to recover as a precaution.

Ayden got his new second skin Thursday.How cute is it πŸ₯°Fits him very nicely and makes him sit great in his wheelchair.
24/04/2026

Ayden got his new second skin Thursday.
How cute is it πŸ₯°
Fits him very nicely and makes him sit great in his wheelchair.

We are back home πŸ™‚ Ayden is doing and looking so much better he is still on ear drops and antibiotics for his ear infect...
22/04/2026

We are back home πŸ™‚
Ayden is doing and looking so much better he is still on ear drops and antibiotics for his ear infections

Address

Ayr, QLD
4807

Telephone

+61401145333

Website

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