Samuels rare life

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Samuels rare life

This is a personal blog to keep everyone updated on Samuel and our journey with AGS.

15/08/2026

Samuel smashing his therapy intensives at Centre of Movement 💪🤩👏

15/08/2026

🤩💪

15/08/2026

💪🤩

15/08/2026

While we were in Brisbane for appointments at QCH we took some time and travelled to the Gold Coast for some intensives at Centre of Movement.
Samuel once again showed us how incredibly brave and strong he is!
So much hard work, he absolutely smashed it! 💪🤩👏

05/08/2026

Time to head home for this tired brave boy! It's been a big trip, lots to tell, will update once we are home and settled 😊

02/08/2026

Off to Brisbane we go for a few days of appointments at QCH and therapy intensives at Centre of Movement 💪🤩

27/07/2026

Look at this absolute champion! 💪🤩

Samuel is much better and finally went back to school today, and as you can see, he had the best day!

So thankful for everyones prayers, messages, comments and love ❤️
Samuel has the best supporters!

21/07/2026

Some days it's just hard, yesterday was one of those days.
After a week of increased secretions, that meant suctioning every 2-3hrs throughout the night and making it unsafe to be at school during the day.
We finally gave in and headed to ED.
It was a long day of investigating with not many answers.
For now he is on antibiotics and we are waiting to see all of his specialists at QCH in two weeks time.
Please keep Samuel in your prayers 🙏
This is hard on his little body and we hate him missing his much loved school time 😔

20/06/2026

Now we know why Samuel has so many turtle friends. 🐢

Address

501 Stanley St, South Brisbane
Brisbane, QLD

Website

https://www.gofundme.com/f/support-samuels-journey-to-mobility-and-independence

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