Epilepsy ACT

25/06/2026

Tomorrow, the Senate Inquiry into Epilepsy in Australia will hold its public hearing, an important step in ensuring the voices of people living with epilepsy are heard at a national level.

At Epilepsy ACT, we see every day the impact epilepsy has on individuals, families, carers and communities across the ACT and surrounding regions. The Inquiry provides a valuable opportunity for decision-makers to hear directly from people with lived experience and those working to improve support, services and outcomes.

We encourage our community to follow the hearing and stay engaged as this important discussion unfolds.

📅 Friday, 26 June
💻 Watch the hearing live:
https://www.aph.gov.au/News_and_Events/Watch_Read_Listen -content-panel

Together, we can continue advocating for greater awareness, better support and improved quality of life for all Australians affected by epilepsy.

This Friday, 26 June, an important milestone in epilepsy advocacy takes place as the Senate Inquiry into Epilepsy in Australia holds its public hearing.

This is a significant opportunity to shine a light on the experiences, challenges and needs of the more than 270,000 Australians living with epilepsy, as the Inquiry hears directly from people with lived experience, clinicians, researchers and organisations from across the country.

As the national peak body for epilepsy, Epilepsy Australia will be the first organisation to present before the Committee, drawing on the experiences and expertise of our member organisations and the broader epilepsy community. We will be advocating for practical reforms that improve awareness, diagnosis, healthcare, education, employment, safety and quality of life for Australians affected by epilepsy.

This hearing is the culmination of months of engagement across the sector and hundreds of submissions from individuals, families and organisations committed to improving outcomes for people living with epilepsy.

We thank everyone who shared their stories, experiences and expertise throughout the Inquiry process. Your voices have helped shape this national conversation.

The hearing will be streamed live online, and we encourage our community to follow this important discussion.

📅 Friday, 26 June
💻 Watch live and find hearing information:
https://www.aph.gov.au/News_and_Events/Watch_Read_Listen -content-panel

Together, we have an opportunity to help shape a stronger future for epilepsy in Australia.

Epilepsy ACT The Epilepsy Centre Epilepsy Foundation of Australia Epilepsy Queensland Epilepsy Tasmania

24/06/2026

https://www.facebook.com/share/v/19CVE3DYpw/?mibextid=wwXIfr

15/06/2026

💜🎨 The Purple Art Auction is now live! 🎨💜

The amazing girls from the 3rd Tuggeranong Junior Guides are raising funds for Epilepsy ACT through their Purple Art Auction.

Check out the artwork, place a bid, and support a great cause!

⏰ Bidding closes Friday 19 June.

🔗 https://www.32auctions.com/organizations/139267/auctions/201736?r=1&t=all

Thank you, 3rd Tuggeranong Junior Guides, for your wonderful support! 💜

29/04/2026

Want to have your say in the Senate Inquiry into Epilepsy in Australia?

Epilepsy Tasmania has created a helpful video series to guide you through the submission process—this is a great place to start if you’re unsure how to share your story or experiences.

We encourage our community to get involved. Submissions are a powerful way to help shape better outcomes for people living with epilepsy.

You can watch all videos from the series, along with other helpful information and resources, on our website:
https://epilepsyact.org.au/senate-inquiry-into-epilepsy-in-australia/

Every voice matters—your experience can help drive meaningful change.

20/04/2026

A national Senate Inquiry into epilepsy is now underway, and this is a powerful opportunity for our ACT community to be heard.

If you live with epilepsy — or support someone who does — we encourage you to share your experience. Your insight can help shape better care, stronger supports, and greater understanding across Australia.

📅 Submissions close 15 May 2026

Your submission doesn’t need to be long or formal. Simply share your story — what’s working, what challenges you face, and what needs to change.

Every voice matters. The more experiences shared, the stronger the case for improved services, safety, and awareness.

🔗 Learn more and have your say: https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

If you’d like support with your submission, the Epilepsy ACT team is here to help — please reach out anytime.

31/03/2026

As March comes to an end, there’s just one thing left to say: thank you 💜

Thank you for mucking up for epilepsy, going purple and standing with the 270,000 Australians living with epilepsy.

From fundraising, wearing purple, sharing stories, to getting a little messy in the Purple Muck Challenge - however you brought purple to life this month, you made a real difference 🤝

Thanks to our awesome community, we can continue delivering vital support services, education, training and programs for people living with epilepsy and their families.

Be proud of your efforts, and keep bringing epilepsy into the conversation wherever possible. March may be over, but the impact you’ve made will be felt all year.

We hope you’ll join us again next year. Until then, remember: every bit of support helps change lives every day.

Thank you for making March purple 💜

It's not too late to contribute. If you would like to make a last-minute donation, visit www.makemarchpurple.org.au/event/act

28/03/2026

Come down and get involved.
Kicking off at 11am.
Book reading at 11.30am
Walk starts at 12 noon
Muck challenge at 1pm.

See you all there. 😀

TODAY'S THE DAY!💜

Make March Purple for Epilepsy is on from 11am–2pm today at Poppyfield Commons, formerly Dickson Garden Centre.

Come along for kids activities, food, entertainment and a great community atmosphere — all supporting epilepsy awareness.

👉 What’s happening today: https://bit.ly/4r6lQlE