Scleroderma Australia

Scleroderma Australia Australia's national voice for scleroderma. We raise awareness, fund research, and walk alongside the people and families living with this condition.

You are not alone here.

25/06/2026

🌻 Just 4 days until World Scleroderma Day!
Share your fundraiser or awareness plans with us below 🧣🧤🫖👇

This June, we’re inviting workplaces across Australia to join our Snuggle Up for Scleroderma campaign by hosting a Casua...
24/06/2026

This June, we’re inviting workplaces across Australia to join our Snuggle Up for Scleroderma campaign by hosting a Casual Clothes Day and helping raise awareness and vital funds for people living with scleroderma.

Swap the suits for sweats, uniforms for hoodies, or business wear for your cosiest winter gear - all for a great cause!

Every gold coin, every comfy outfit, and every conversation helps support dedicated scleroderma nurses who work hard to provide expert care, guidance, and support for people navigating this rare autoimmune condition.

It’s a simple way to bring your team together and make a real difference.

Ready to get your workplace involved?

And remember to tag us in your photos - we’d love to see how you’re getting involved!

☕ Warm Hearts, Warm Cups - Let’s Snuggle Up for Scleroderma!This June, join our Snuggle Up campaign and help raise vital...
24/06/2026

☕ Warm Hearts, Warm Cups - Let’s Snuggle Up for Scleroderma!

This June, join our Snuggle Up campaign and help raise vital funds in support of World Scleroderma Day.

Looking for a cosy way to get involved? Why not host an Afternoon Tea Party! Wrap up in your favourite scarves and gloves, gather your friends, and enjoy a warm cuppa together.

Your support helps raise awareness and fund dedicated scleroderma nurses who provide expert care, guidance, and vital support to people living with scleroderma when they need it most!

Remember to snap a pic and tag us!

💛 Ready to host?

This June, get cosy for a cause 💛We’re inviting you to support Scleroderma Australia by hosting your own Snuggle Up fund...
24/06/2026

This June, get cosy for a cause 💛

We’re inviting you to support Scleroderma Australia by hosting your own Snuggle Up fundraiser and helping raise vital funds for dedicated scleroderma nurses who provide specialised care, support, and guidance for people living with scleroderma.

Looking for an easy way to get involved? 🎬 Why not host a movie night! Gather your friends (or jump online), grab your comfiest blankets and snacks, and enjoy a cosy night in - all while supporting a meaningful cause.

It’s a simple way to make a difference this winter.

Share your snaps and tag us -we can’t wait to see how you're getting cosy for a cause!

Winter has arrived, and for many people living with scleroderma, the cold months bring real challenges.This June, we're ...
22/06/2026

Winter has arrived, and for many people living with scleroderma, the cold months bring real challenges.

This June, we're inviting you to Snuggle Up for Scleroderma and help fund dedicated scleroderma nursing care across Australia. These nurses provide specialist support that simply isn't available everywhere. In some cities, there are none at all.

You can get involved in a way that suits you:

🧣 Host a PJ slumber party, in person or online
🎬 Organise a movie night with friends
☕ Gather for an afternoon tea in your favourite cosy layers
👕 Run a casual clothes day at your workplace

Or if you'd prefer to donate directly, your contribution helps keep specialist nurses in clinics and on telehealth screens, supporting people through treatment, answering questions, and being there when it matters most. For just $1 a day, you can help fund the nursing care that keeps this support going.

Get involved today!

Ever watched your fingers or toes turn white, blue, then red when the temperature drops?It might be more than just feeli...
18/06/2026

Ever watched your fingers or toes turn white, blue, then red when the temperature drops?

It might be more than just feeling cold! ❄️

Raynaud’s Phenomenon affects blood flow to the extremities and is often one of the earliest signs of various conditions, including scleroderma. While some people experience mild symptoms, others can face painful attacks and complications that impact daily life.

In this carousel, we’re breaking down:
👉 What Raynaud’s Phenomenon is
👉 What happens during an attack
👉 Common symptoms and triggers
👉 Tips for managing both mild and severe cases

For many people living with scleroderma, staying warm isn’t just about comfort - it’s an important part of managing their condition!

That’s why we’re inviting you to join Snuggle Up for Scleroderma. 💛

This World Scleroderma Day, gather your family, friends or colleagues, pop on your cosiest jumper, wrap up in a blanket, and help raise awareness and vital funds for people living with scleroderma.

Together, we can shine a light on a condition that many people have never heard of, while supporting those who live with it every day.

Learn more and get involved today!

18/06/2026

Cold weather can be tough for people living with scleroderma. Drop a cosy emoji to share warmth and support 🧣🧦☕

18/06/2026

Living with scleroderma often means juggling appointments, tests, treatments, and a whole team of healthcare professionals.

It can be a lot.

That's why dedicated scleroderma nurses play such an important role. 💛

They help connect the dots between specialists, answer questions, provide guidance, and support people living with scleroderma through every stage of their journey.

Sometimes, having someone in your corner who understands the condition can make all the difference!

This World Scleroderma Day (29 June), your support can help fund care and services that help make life a little less overwhelming for people living with scleroderma.

Curious about Snuggle Up for Scleroderma? 🧣❄️We've put together a fact sheet that covers everything. What scleroderma is...
16/06/2026

Curious about Snuggle Up for Scleroderma? 🧣❄️

We've put together a fact sheet that covers everything. What scleroderma is, why this campaign matters, and how you can get involved to support people living with scleroderma.

Even $1 a day helps fund specialist nursing care for people who really need it.

Download our fact sheet and information guide to find out more and start your own fundraising event. Link in the comments!

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