Scleroderma Australia

Scleroderma Australia Australia's national voice for scleroderma. We raise awareness, fund research, and walk alongside the people and families living with this condition.

You are not alone here.

DID YOU KNOW scleroderma is NOT contagious, infectious, cancerous, or malignant?Scleroderma is a rare autoimmune disease...
02/06/2026

DID YOU KNOW scleroderma is NOT contagious, infectious, cancerous, or malignant?

Scleroderma is a rare autoimmune disease that affects the body’s connective tissue.

While it can impact daily life in many ways, it cannot be caught or passed from person to person.

Raising awareness helps break misconceptions, encourage understanding, and support those living with this complex condition every day.

June isn’t just the start of winter - it’s also Scleroderma Awareness Month. 💛This month, we’re inviting Australians to ...
01/06/2026

June isn’t just the start of winter - it’s also Scleroderma Awareness Month. 💛

This month, we’re inviting Australians to come together, raise awareness, and support the more than 6,000 people living with scleroderma across the country.

For many people living with scleroderma, winter is more than just cold weather. Symptoms such as Raynaud’s phenomenon, digital ulcers, joint stiffness, and breathing difficulties can become even more challenging during the colder months, making everyday activities harder and more painful.

That’s why our Snuggle Up for Scleroderma campaign is so vital - helping raise awareness, fund specialist nursing support, and stand alongside those affected by scleroderma.

As temperatures drop, staying warm and cosy becomes essential for many people living with scleroderma. This campaign encourages everyone to embrace the warmth, connect with others, and raise vital funds for dedicated Scleroderma Nurses.

These specialised nurses provide expert care, education, support, and guidance to patients and families navigating this complex condition. Yet currently, there is no government funding for Scleroderma Nurses in Australia.

Every dollar raised goes directly towards supporting the scleroderma community and helping ensure people affected by scleroderma have access to the care they need.

Easy ways to get involved:
- Host a cosy afternoon tea with friends and family
- Organise a movie night or slumber party
- Hold a comfy clothes or casual day at your workplace
- Start a fundraiser in your local community
- Make a donation to support dedicated Scleroderma Nurses

Together, we can raise awareness, provide support, and help bring warmth to those living with scleroderma this winter.


June is World Scleroderma Awareness Month and as the colder weather arrives, staying warm isn’t just cosy… for many in o...
28/05/2026

June is World Scleroderma Awareness Month and as the colder weather arrives, staying warm isn’t just cosy… for many in our community, it’s essential.

For people living with scleroderma and Raynaud’s phenomenon, cold temperatures can be painful and make everyday activities more challenging. That’s why Snuggle Up is all about slowing down, staying warm, and finding simple, meaningful ways to give back.

How you can take part:
Think cosy, simple, and connected…
- Host a movie night or slumber party
- Invite friends for a warm afternoon tea (gloves + scarves encouraged!)
- Run a comfy clothes day at work or school
- Stay in and turn a cosy night into a cause

Because not everyone can take on physically demanding challenges - Snuggle Up is designed so everyone can be involved, just by showing up in their own way.

Together, we can:
- Raise vital funds for dedicated scleroderma nurses across Australia
- Raise vital funds for research and support
- Increase awareness of scleroderma
- Bring communities together in warmth and kindness

SWIPE through for a simple step-by-step guide to set up your Snuggle Up fundraiser on Scleroderma Australia’s My Cause page.

Easy fundraising ideas:
• Cosy day at work or school
• Comfy clothes day with donations
• Donate what you’d usually spend on a night out
• Share a cosy photo + fundraising link

Remember to send your link, post updates, share photos, and thank your supporters - the more you share, the more impact you create. 💛

Let’s get cosy, raise awareness, and support Australians living with scleroderma this winter.

Reminder: To ensure your fundraising is included in the campaign and to avoid any extra fees, please start your fundraiser from our official page.



28/05/2026

🧤 Cold hands, warm heart..
Drop a ❄️ if you relate!

DID YOU KNOW colder weather can make scleroderma symptoms feel even tougher? For many people living with scleroderma, th...
27/05/2026

DID YOU KNOW colder weather can make scleroderma symptoms feel even tougher?

For many people living with scleroderma, the colder months can increase pain, stiffness, fatigue, and circulation issues like Raynaud’s. Everyday tasks can suddenly take more energy, and keeping warm becomes more than just comfort - it’s part of managing symptoms.

That’s why campaigns like Snuggle Up for Scleroderma matter so much.
Snuggle Up is all about raising awareness, showing support, and helping people living with scleroderma feel seen, heard, and wrapped in community during the colder season. It also helps fund specialist scleroderma nurses who provide vital care, guidance, education, and support to people navigating this complex condition every day.

As little as $1 can help make a difference. Every donation contributes towards ensuring people living with scleroderma have access to knowledgeable nurses who understand the condition, help coordinate care, provide emotional support, and improve quality of life for patients and families alike.

Mark your calendars for Scleroderma Victoria’s Gene Swinstead Memorial Luncheon!WHEN: Sunday, 28 June 2026, 11:30am – 3:...
26/05/2026

Mark your calendars for Scleroderma Victoria’s Gene Swinstead Memorial Luncheon!

WHEN: Sunday, 28 June 2026, 11:30am – 3:00pm
WHERE: The London Tavern Hotel, 238 Lennox Street, Richmond VIC 3121

Scleroderma Victoria’s annual World Scleroderma Day Luncheon now proudly carries the name of a much-loved friend and former President, Gene Swinstead.

Gene was at the heart of this special event for many years, and his passion for bringing people together made the luncheon a truly meaningful day for the scleroderma community. His dedication, warmth and support helped create a space for connection, reflection and community - something he truly adored.

This special gathering honours Gene’s legacy while helping raise vital awareness and funds for Scleroderma Victoria.

Your ticket includes:
- A delicious two-course sit-down luncheon
- Beer and wine included
- An afternoon of connection, remembrance and community
- The opportunity to support people living with scleroderma

🎟️ Tickets are $90 per person (all inclusive)

Come along for a meaningful afternoon of remembrance, community and impact.

Get your tickets your tickets today! Link in comments.

22/05/2026

When you live with scleroderma, winter doesn't just feel cold. For many, it brings pain, isolation, and life-changing challenges.

This June 29th, join us and Snuggle Up for Scleroderma!

There are so many simple ways to get involved and “snuggle up” to raise awareness and funds:

• Host a slumber party in your favourite PJs - in person or online
• Organise a cosy film night with friends or family
• Throw an afternoon tea with gloves and scarves
• Plan a casual clothes day at your workplace and get your team involved

However you choose to take part, every little bit helps 💛 Even just $1 a day can help fund specialist nursing support and ongoing care for people living with scleroderma across Australia.

Today is Global Accessibility Awareness Day (GAAD)!DID YOU KNOW that over one billion people worldwide live with a disab...
21/05/2026

Today is Global Accessibility Awareness Day (GAAD)!

DID YOU KNOW that over one billion people worldwide live with a disability or impairment?

GAAD is about starting conversations, sharing ideas, and learning how we can make the digital world more inclusive for everyone - because when digital spaces are accessible, more people can independently access, understand, and interact with content, services, and experiences online.

Let’s keep building digital spaces that work for everyone!

Address

East Melbourne, VIC

Website

https://feedlink.io/sclerodermaaustralia, https://www.sclerodermaaustralia.com.

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