Damians journey and fight with MND

Damians journey and fight with MND Damians journey and fight with motor neurone disease
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18/06/2026

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18/06/2026

I tell ya this disease is an absolute bastard of a disease
Poor damian is struggling so much at the moment from severe depression which is understandable but the nausea and stumach issues the pain

He had another fall on the weekend that’s another broken rib after only healing from his other fractured hip and rib
He walks with a walker and a stick so he can keep as much as his independence as possible

He feels lonely this whole thing is so cruel and unfair

We need to find what’s causing this to help find a treatment

We need everyone to band together and get this awareness out there

We need government funding in qld to get more help and support and to fund more trials

He’s so brave and trying to me so strong and positive
You all are that fight this disease
Know you are not alone in this fight

We won’t stop fighting till there is a medication to help beat this beast of a thing 💙🧡



18/06/2026

Thank you so much for this wonderful surprise Jannette you have made his day he’s been so worn out and this made him smile thank you so much for your kindness and support

Well here it is a beautiful pheonix to represent rising from the ashes rising above what live throws at us reminds me th...
18/06/2026

Well here it is a beautiful pheonix to represent rising from the ashes rising above what live throws at us reminds me that we are strong and can do this 🧡💙💪
Thank you Jess from Kode Ink tattoo

17/06/2026

Today I’m off to Kode Ink tattoo to get tattooed 😬😩😃🙌
It’s something I’ve wanted tattooed on me for a while now as it symbolises strenth and the ability to rise through tough times

All of my tattoos i have got are things that remind me when things get tough i know i have the strength to keep pushing through💪

🤔can you guess what I’m getting lol ?

Normally damian comes with me to hold my hand but he will be resting at home with Lachy

So Ethan’s beautiful Andrea will be coming with me 🥰

17/06/2026

Here is the information on the trial damian and I are pushing to help get funding for I’ve been working with the ceo since before Christmas to try and help them secure more funding how amazing does this sound

So today damian and I tried out some red light therapy and pmf mat as well as compression therapy for me Soul Vibes Alch...
16/06/2026

So today damian and I tried out some red light therapy and pmf mat as well as compression therapy for me Soul Vibes Alchemy

It’s such an beautiful little place next week I’m gonna do a video run through for you while we are there

Thank you Angela for offering your services to us to see if they will help damian

Having some best friend time at the gym Lachy joined us to
16/06/2026

Having some best friend time at the gym
Lachy joined us to

16/06/2026

We would like to give a shout out to the Amazing kids at glendyne school for raising $115 to MND
That’s a fantastic effort
And we will be donating that to fight MND

15/06/2026

Tomorrow damian’s been offered a free session using different types of natural therapy’s

As damian has always said from
The beginning he’s happy to use his body for science to help find anything that could help
So tomorrow he’s gonna try some red light therapies and some very interesting other machines
We will be having weekly visits to see if anything like this could help with pain relief or help his body in anyway

Will keep you all posted and will be documenting our appointments as we go 👍🏻

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Hervey Bay, QLD

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