Paralysed with love

Paralysed with love A 20-something year old girl navigating life with chronic illness.

📖 THE CHRONIC ILLNESS INSTRUCTION MANUAL 📖Unfortunately, there was no instruction manual included when I unlocked the ✨c...
30/08/2026

📖 THE CHRONIC ILLNESS INSTRUCTION MANUAL 📖

Unfortunately, there was no instruction manual included when I unlocked the ✨chronic illness starter pack✨… so I made one myself. 😂

7 pages of:
🫠 symptoms that make absolutely no sense
🤨 unsolicited medical advice
🛌 energy levels that change without warning
🏥 appointments that somehow become a full-time job
😂 dark humour as a coping mechanism
💚 and the occasional reminder that life is tough, but so are we.

Because sometimes you have to laugh at the absolute chaos your body throws at you.

Chronic illness is hard. But finding people who GET IT makes it a little less lonely. 🫶

👇 CALLING THE CHRONIC ILLNESS CREW:
What would you put on Page 8 of the instruction manual?

Drop your funniest answer below — I KNOW you’ve got one. 😂

29/08/2026

Not everyone is going to believe you have a chronic illness… and honestly? That’s not your problem. ✨

You don’t owe anyone a diagnosis, a medical file, a symptom checklist, or a detailed explanation of why you can’t “just push through.”

If someone questions whether you’re really sick because you look fine, remember: they’re seeing a moment, not your entire reality.

I’d rather spend my limited energy managing my health than convincing someone who has already decided not to understand. 🫶

Your illness is valid.
Your pain is valid.
Your limitations are valid.
And you don’t need anyone’s permission to take care of yourself. 💛

Have you ever had someone question your chronic illness? Tell me in the comments — let’s remind each other that we’re not alone. 👇

29/08/2026

Sometimes I have to remind myself that it’s going to be okay. 🤍

Even when life feels heavy.
Even when things don’t go according to plan.
Even when I’m exhausted from constantly trying to hold everything together.

I don’t need to have everything figured out right now. I just need to take it one day, one moment, one breath at a time.

Hard times don’t last forever. A bad day doesn’t mean a bad life. And struggling doesn’t mean I’m failing. 🌱

So if you’re going through something difficult right now, let this be your reminder too:

You are allowed to not be okay right now… and still believe that one day you will be. 🫶

I’m reminding myself of this today, too.

💬 What’s something you need to remind yourself of today?

29/08/2026

A little reminder from Dolly, me & my very wise doggo nephew 🐶✨

You don’t have to know what’s around the corner. You just have to be brave enough to keep showing up, keep trying, and keep living your life—even when there’s a chance it might not go exactly how you hoped.

Sometimes the biggest loss is never giving yourself the chance to win. 💫

So here’s your sign: get back in the game. Take the chance. Make the move. Say yes to something that scares you a little.

And if you needed this reminder today, consider this your nudge. 🫶

🐾 What’s one thing you’re going to stop letting fear hold you back from? Tell me in the comments.

28/08/2026

If you’re prone to hand cramps, you’ll understand the struggle of finding a pen that doesn’t have you questioning your life choices after five minutes. 😂✍️

I’m someone who is prone to cramping, but I’ve found that I don’t get a cramp when I’m using my Esterbrook Niblet — which honestly makes writing feel so much more enjoyable.

It’s become one of those little everyday things that makes a bigger difference than you’d expect. 💕

Now I need to know…

✨ Have you tried an Esterbrook Niblet?
✨ If you haven’t, would you want to?
✨ And most importantly… which colourway would you choose? 👀

Tell me your pick in the comments! 👇🏼💖

A little week in my life ✨Sleep studies, migraines, tube feeds, appointments, journaling, family time, tiny joys & danci...
28/08/2026

A little week in my life ✨
Sleep studies, migraines, tube feeds, appointments, journaling, family time, tiny joys & dancing in the sunshine ☀️💃

A very ✨chronically chaotic✨ week, but we found some good bits in there too. 🤍

27/08/2026

Yesterday’s achievement does not come with a 24-hour warranty. 😂

Chronic illness really said:
✨ You did the thing yesterday?
✨ Great!
✨ Now suffer the consequences. ✨

My body has apparently never heard of consistency. 💀

If you’ve ever been hit with the classic “but you did it yesterday…” — tell me what it was 👇😂

Let’s see how many of us are living with a body that runs on randomised settings. 🫠

27/08/2026

Things people with chronic illness are officially retiring from their vocabulary 🚫😂

“Have you tried yoga?”
“But you don’t look sick!”
“You’re too young for that.”
“Just think positive!”

Respectfully… please stop. 😂

What’s the ONE thing you’re sick of hearing? 👇
Drop it in the comments so we can collectively add it to the chronic illness DO NOT SAY list. 📝💀

27/08/2026

Some seasons are full of hospital beds, hard days and moments you never imagined you’d have to face. But they’re also filled with laughter, love, little wins and moments that make it all worth it. 🍯💛

Don’t let the bees steal your chance to taste the honey. Thank you Dolly 💛

What’s one little “honey” moment you’re holding onto lately? ✨

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Hobart, TAS

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